Kyra

advocatelikeamother hashtag performance

#AdvocateLikeAMother promotes empowerment, compassion, activism, support, community, resilience, education, awareness, advocacy, strength, leadership, love, unity, inspiration, dialogue, perseverance, care, justice, empowerment, nurturing, determination, voices, change, experiences, sharing, impact, stories, connection, hope, transformation.
Eight years since diagnosis, and Carter is showing us what resilience looks like. At 12 years old, he’s doing well for someone with Sanfilippo syndrome. And yes we did find out that he is type A which is considered to be the most common/severe. Every day is a reminder to cherish the moments that matter most. 💜  #pepememe #pepetheprawn #swipe #fyp #storytime #mco #diagnosis #diagnosisstorytime #sanfilipposyndrome #disney #disneyworld #tramatized #familytrip #medicallycomplex #carterschallenge #rarediseaseawareness  #raredisease #momsofinstiktok #specialneedsmom #lifewithadisability  #caregiverlife #advocatelikeamother #specialneedsfamily #sanfilippoawareness #sanfilippolife #parentingjourney
Replying to @Rosa💀🖤 thank you for brining this up bit it’s important to jote that just becuase a child might have predominant eyebrows and a low nasal bridge. It does not mean that they have Sanfilippo syndrome which mnay parents are now worried about.  #sanfilipposyndrome #thelook #facialfeatures #genetic #phenotype #attenuated #sanfilippoawareness #raredisease #rarediseaseawareness #medicaladvocacy #caregiverlife #specialneedsmom #momlifeunfiltered #geneticdisorder #disabilityawareness #notjustalook #diagnosisjourney #rarediseasecommunity #specialneedsadvocate #undiagnosed #medicalmom #rarediseasewarrior #advocatelikeamother #specialneedsawareness #invisibleillness
If you need to be educated, just say that. #autism #autismawareness #autismacceptance #autismmom #specialneedsmom #inclusion #inclusionmatters #educate #advocatelikeamother #advocate
Marriage counseling with my Husband 😪  •Please note that we are NOT filming during therapy, & all topics mentioned in therapy remain private between us & the therapist.  NO names will be given of office & therapist for privacy.  •My husband DOES consent to the documentation & is cognitively aware when we are filming.  Any comments giving away details of locations, & people will be removed out of respect of all parties 🥰 #normalizetherapy #therapytok #therapy #couplescounseling #marriagecounseling #healing #husbandwife #mirandahowell #traumahealing #Vlog #ditlvlog #advocate #advocatelikeamother #ditl #marriageadvice #marriageproblems #healthyrelationship #normalizehealthyrelationships
Replying to @Pops should You take your child to the hospital if sick in fear of spreading your germs to other peope?  •PLEASE go to the hospita/doctor in an emergency situation. DO NOT LET THE FEAR OF SPREADINF GERMS STOP YOU FROM GETTING YOUR CHILD MEDICAL HELP THAT COULD SAVE THEM!!!  i also want to add- i NEVER said i took my child to the hospital for ANY reason. Not medical, or leisure.  I kept my child home, cared for her, watched for signs & symptoms & her pediatric team was always on standby incase i had questions or help.  IF MY CHILD NEEDED MEDICAL HELP FOR AN EMERGENCY I WOULD HAVE GONE TO THE CLOSEST CHILDRENS HOSPITAL.  Yes; i am mindful of others around me & do not want to get anyone sick with our germs, BUT if it comes to my childs wellbeing over someone else, That goes out the window.  •negative comments deleted.  #rotavirus #norovirus #virus #flu #sickseason #advocate #advocatelikeamother #childrenshospital #momvlog #Vlog #emergencyroom #emergency #contagious #germs #pediatrics #mirandahowell #chronicillness #chronicillnessawareness #sickbaby
FINALLY kicked the stomach virus out!!!  • as a reminder if your child is going through similar experiences or symptoms that my child is going through to seek medical advice via a professional. I am not certified in any way she performed to be offering medical advice to anyone. I’m only offering my biased opinion from my own personal experiences with my family.   As always, if you are concerned about your child safety and health, please seek professional help.  • the next few videos that I will be sharing with you guys will be from our brain MRI and our food study that we had done last month since I didn’t have a chance to share it with the holidays and everything going on. Please be patient with me as I release the information that we do know I do not like to release information in real time and I need a time to think and understand what is going on with my daughter.   • also please note that just because a common cold or catch catching a stomach virus may not seem like a big deal to the general public and maybe some children have an easier time getting over it. My daughter is a chronically sick child and she has been since birth feel free to follow our journey and watch the medical playlist that I have tagged below.     #aspiration #aspirating #brainmri #mri #chronicallyill #chronicillness #sickseason #rotavirus #norovirus #virus #flu #sickseason #advocatelikeamother #advocate #momvlog #Vlog #Vlog #ditlvlog #contagious #pediatrics #mirandahowell #ditl #swallowstudy #surgerytok #healthjourney
15.7k
FINALLY kicked the stomach virus out!!! • as a reminder if your child is going through similar experiences or symptoms that my child is going through to seek medical advice via a professional. I am not certified in any way she performed to be offering medical advice to anyone. I’m only offering my biased opinion from my own personal experiences with my family. As always, if you are concerned about your child safety and health, please seek professional help. • the next few videos that I will be sharing with you guys will be from our brain MRI and our food study that we had done last month since I didn’t have a chance to share it with the holidays and everything going on. Please be patient with me as I release the information that we do know I do not like to release information in real time and I need a time to think and understand what is going on with my daughter. • also please note that just because a common cold or catch catching a stomach virus may not seem like a big deal to the general public and maybe some children have an easier time getting over it. My daughter is a chronically sick child and she has been since birth feel free to follow our journey and watch the medical playlist that I have tagged below. #aspiration #aspirating #brainmri #mri #chronicallyill #chronicillness #sickseason #rotavirus #norovirus #virus #flu #sickseason #advocatelikeamother #advocate #momvlog #Vlog #Vlog #ditlvlog #contagious #pediatrics #mirandahowell #ditl #swallowstudy #surgerytok #healthjourney
Sickness after Brian MRI ❤️‍🩹 & strep throat?😩😭  EDIT: NOTHING is shared in real time!!  Plus with the holiday, editing and posting was going to be delayed more for respect to my time & privacy with family.  •I WILL be resuming our health journey posts in the next week! So many unanswered questions but I feel we are in a good direction now 🤞🏽 As for the sickness in my home, we are FINALLY OVER IT 🙌🏾 Happy holidays everyone!  #brainmri #mri #aspiration #strepthroat #sorethroat #medicalmom #medicaljourney #pediatrician #childrenshospital #chronicillness #chronicillnessawareness #Vlog #momvlog #ditlvlog #doctorvisit #mirandahowell #advocate #advocatelikeamother
Baby got sick with a stomach bug & pink eye 😭 BUT better days ahead… maybe? 🥺 •as a reminder, my experience does not mean two things cant be true at the same time! We go off of the CDC recommendation time if being out of daycare/work if shes having symptoms. It does not mean i discredit how long visues can stay on surfaces/how long it can last in the human body!  •it also was never fully diagnosed as any thing specific. I ASSUMED its Rotavirus because the symptoms were similar to what we had before but its possible it could be norovirus!  • if your baby is sick, please seek medical professional advice. I am not a medical professional. I am only sharing our experience with others as a form to help educate other parents going through a similar experience and to feel less alone and supported.  If you were concerned about your child’s health and safety, please reach out to somebody who is a professional.   •negative comments deleted.   #flu #rotavirus #norovirus #virus #sickseason #sickbaby #advocate #advocatelikeamother #momvlog #Vlog #ditlvlog #MirandaHowell #brainmri #mri #vomit #throwingup #pediatrician
I could make a 10 minute video in this 😤😤😤😤😤 Utility office messed up my account 😭😱 charged me twice and tried to turn off my power, DURING the middle of the month, WEEKS after the due date?!  Our window also got fixed, i guess 😅 Also please dont judge around the window. Im short and i cant see up that high- we use that window sill for the plants to give them extra humidity & watering so thats dirt 😅  Also, YES my car is dirty, YES, i live in choas. I only have so much energy to do so much & between my 7 year old, the one year old, and the winter, its a losing battle for my car. If you only KNEW how much stuff i have to get in and out of my car daily and there will be messes left behind, no matter how much i clean 😭😩  #ditlvlog #Vlog #momvlog #advocate #advocatelikeamother #renterfriendly #ditl #momlife #mirandahowell #momproblems #renter #chaos
DITL Vlog 😱 *also, please no negative comments! My landlord is a nice, attentive person! I LOVE living where we do. We cant afford to move or buy a new home & have been saving the last year for our own home hopefully next year! 💞 #ditlvlog #Vlog #momvlog #advocate #advocatelikeamother #mirandahowell #renterfriendly #renters #homeowner #houseproject #virus #ditl #rotavirus #aspiration #aspirating #chronicallyill #rentalproperty #momlife
Stomach Virus after Brain MRI ❤️‍🩹 On the road to recovery?  • as mentioned in the video, I don’t think that there’s any connection to my daughter’s brain, MRI and her getting sick with a stomach virus however, when people ask the questions and I see it a few times in the comments I have to address it.  • I do plan on sharing our experience with getting her brain MRI and also the testing that we had done for her aspirating. I haven’t forgotten about it. We have just been so consumed with the holiday and with her being sick the last two weeks it’s been really hard to sit down and make content regarding something that is so huge to us while we’re still trying to navigate this season we’re in.  • I also didn’t want to give out any information on what we’ve learned from the brain MRI until I’ve spoken with the full team of doctors and we are still at the moment waiting on some answers. Unfortunately.  • negative comments will be deleted.  • if you feel like your baby is sick, please go to a medical professional. I am not a medical professional. I am just simply sharing my daughter’s experience with being sick.   ##brainmri##mri##aspirating##apsiration##flu##rotavirus##norovirus##virus##sickseason##advocate##advocatelikeamother##childrenshospital##momvlog##Vlog##ditlvlog##workingmom##pediatrician##MirandaHowell
🤞 we are home before #newyears 🤍 #advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters
😌💅🏻#CapCut #advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #lymphaticmalformation #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters
Day 1146 💛💜 #advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #tracheomalacia #gtube #medicallycomplex #trachbaby #smos #smo #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters
Holding men accountable.  •I want to say for the record, my husband is NONE of these things. He would never say his job or interests are more important and vice versa. We have a mutual level of respect for one another.  ALSO to add- my husband does go to our kids doctors appointments but they need to be home, I usually stay because he does make more a day at work than I do, plus I’m not salary so I can work from home. I have three incomes & he only has one.  It’s called BALANCE 🤗 •negative comments deleted.  #marriageadvice #misogynistic #accountability #menvswomen #marriageproblems #husbandwife #wifeproblems #advocate #advocatelikeamother #marriage #misogony #mirandahowell #dramatok #therapy #therapytok #marriagecounseling #couplestherapy #couplescounseling
Do you all like these raw chaotic long type of vlogs? 🤔😂🎄🧩♾️ Location : Poway Ca - CANDY CANE LANE🎄 One of our favorite family traditions turned out to be such a GREAT night🥹 So proud of how far our baby boys have come! 🧩♾️🎄❤️ #Vlog #comewithus #autismmom #autismacceptance #autismawareness #autismfun #christmaslights #christmasdecor #christmastraditions #sandiego #sandiegohiddengems #sandiegofun #poway #free #freefamilyfun #supporter #youtube #latinacontentcreator #latinamami #advocatelikeamother #sandiegocounty #familyactivities #datenight #chaotic #unhinged #stimming #nonspeaking #happyhands #Vlogmas
#advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #lymphaticmalformation #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters
#motherhood #medicalmotherhood #advocatelikeamother #medicalmom #micropreemie #iugr #iugrbaby #25weeker #bronchopulmonarydysplasia #chroniclungdisease #vascularanomoly #congenitallymphaticmalformation #trach #gtube #tubie #medicallycomplex #trachbaby #ventbaby #medicalmama #trach #hepatoblastoma #cancer #cptsd #ptsd #birthtrauma #medicaltrauma
🎄 #advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters
Deafening #advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #lymphaticmalformation #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters
Replying to @lechepied92i The only monster I see is you. Hope this helps 😘 #dobetter #advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters

start an influencer campaign that drives genuine engagement