alobarholoprosencephaly hashtag performance
#alobarholoprosencephaly refers to a serious brain malformation where the brain does not properly separate into hemispheres. This hashtag raises awareness, shares experiences, and fosters community support for affected families.
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This was probably the hardest post I’ve ever made. Realizing just how much I’ve changed since Charlie’s pregnancy and birth is both painful and powerful. I look back at photos of myself prior to his pregnancy and that girl is almost unrecognizable from who I am today. I’ll be forever changed in every way but I know I will see my baby again and that keeps me going. Life knocked me down this last year but I refuse to let it win. Although I’m permanently changed from this, some changes have been for the better. I gained an understanding of my own strength and capabilities, I have a stronger relationship with God, I grew a deeper love and appreciation for my husband and my marriage, and I’m more conscious and grateful for all that I do have in my life. #grief #lossmom #lifeafterloss #griefjourney #infantloss #grievingmom #alobarholoprosencephaly #trisomy13 #MomsofTikTok
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Replying to @gingerlasvegas this questions is always hard to answer and it can be very awkward for some people, but I’ve learned as time has passed that I get to choose how I answer this and what feels best. Thank you for asking! #grief #lossmom #lifeafterloss #griefjourney #infantloss #grievingmom #alobarholoprosencephaly #trisomy13 #MomsofTikTok
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I get asked this question a lot and it’s always been so hard for me to answer because I know I can’t speak for everyone when I tell people what has helped me to hear while I grieve. Everyone has different needs and things aren’t always helpful for everyone to hear. So here’s my thoughts on how to help someone grieve. Hope it helps! #grief #lossmom #lifeafterloss #griefjourney #infantloss #grievingmom #alobarholoprosencephaly #trisomy13 #MomsofTikTok #postpartum #postpartumjouney #helpwithgrief
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Replying to @Mamabear3 this is obviously impossible to answer for everyone but these are in my opinion the most helpful things you could say to someone who is experiencing a loss. #grief #lossmom #lifeafterloss #griefjourney #infantloss #grievingmom #alobarholoprosencephaly #trisomy13 #MomsofTikTok
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This year was by far one of the hardest years I’ve ever experienced in my entire life, if not THE hardest. Burying my baby will haunt me for as long as I live. But I wanted to let all of you know just how grateful I am to you. If TikTok really gets banned, then I need to express my gratitude before we all part ways. Thank you for supporting me along my journey as I carried Charlie. Thank you for letting me share him and thank you for caring. Thank you for helping me share my baby and allowing me to let the world know he was here, I couldn’t have done that without all of you and your help. I am so proud to be Charlie’s mom. Seeing how many lives he touched in the brief time he was here is more than I could’ve ever hoped for. Thank you for your kindness, love, and support. It means everything to me. #postpartum #grief #griefjourney #alobarholoprosencephaly #trisomy13 #infantloss #pregnancyloss #childloss #lossmom #grievingmom #MomsofTikTok
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No pain compares to losing a child. #fyp #viral #infantloss #Aria #Ariastrong #holoprosencephalyawareness #alobarholoprosencephaly #infantlossawareness #childloss #firstbirthday #bluey #birthdayparty #cake #firstbirthdayinheaven
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