chiarimalformation hashtag performance

#ChiariMalformation: Brain herniation. Pain, headaches, and neurological symptoms. Awareness and support. Rare condition, often diagnosed later in life. Surgery possible. Seeking community, sharing stories.

I wonder if this doctor knows how much trauma he caused me that night. #chiarimalformation #chiari #

I wonder if this doctor knows how much trauma he caused me that night. #chiarimalformation #chiari #

First day was hard .. new backpack .. new seating arrangements .. friends we thought she had .. 2nd

First day was hard .. new backpack .. new seating arrangements .. friends we thought she had .. 2nd

DON’T STOP ADVOCATING FOR YOURSELF! This is why it’s important to seek a SPECIALIST the first ti

DON’T STOP ADVOCATING FOR YOURSELF! This is why it’s important to seek a SPECIALIST the first ti

Replying to @courtneyb0208 I feel like this about sums it up 😅 #dancingwithshannon #chiarimalform

Replying to @courtneyb0208 I feel like this about sums it up 😅 #dancingwithshannon #chiarimalform

Thanks Ehlers Danlos Syndrome for being the cause of ALL of these 😭 #ehlersdanlossyndrome #ehler

Thanks Ehlers Danlos Syndrome for being the cause of ALL of these 😭 #ehlersdanlossyndrome #ehler

#brain #chiarimalformation #bigbrain #fyp

#brain #chiarimalformation #bigbrain #fyp

Replying to @Serenity ya’ll are blowing my mind #chiarimalformation #chiari #chiarimalformationawa

Replying to @Serenity ya’ll are blowing my mind #chiarimalformation #chiari #chiarimalformationawa

#chiarimalformation #ehlersdanlos

#chiarimalformation #ehlersdanlos

Gotta uno reverse that ish so fast #chiarimalformation #chiari #chiarimalformationawareness #chronic

Gotta uno reverse that ish so fast #chiarimalformation #chiari #chiarimalformationawareness #chronic

99% sure I wouldn’t actually recognize stroke symptoms in myself but oh well #chiarimalformation #

99% sure I wouldn’t actually recognize stroke symptoms in myself but oh well #chiarimalformation #

This is me getting my 1st dosage of the Aimovig Injection Shot. That I will have to take once a mont

This is me getting my 1st dosage of the Aimovig Injection Shot. That I will have to take once a mont

Everyone is different, but most with disabilities don’t like being called strong. It’s exhaustin

Everyone is different, but most with disabilities don’t like being called strong. It’s exhaustin

Went to the er for a migraine, never expected this outcome. #chiarimalformation#chiarimalformationaw

Went to the er for a migraine, never expected this outcome. #chiarimalformation #chiarimalformationaw

Like have a discussion with me about what symptoms might be bc you aren’t helping just asking if I

Like have a discussion with me about what symptoms might be bc you aren’t helping just asking if I

Mystery illness, plus mysteries I’ve dealt with before with health 😳 #mysteryillness #chronicil

Mystery illness, plus mysteries I’ve dealt with before with health 😳 #mysteryillness #chronicil

#chiarimalformation #explore #nerves

#chiarimalformation #explore #nerves

🔎Dysautonomia patients often suffer from 'Coat Hanger' Pain. 🔹This pain is characterized by su

🔎Dysautonomia patients often suffer from 'Coat Hanger' Pain. 🔹This pain is characterized by su

It hits out of NOWHERE multiple times a day. I’m glad it’s working beautifully, but dang #chiari

It hits out of NOWHERE multiple times a day. I’m glad it’s working beautifully, but dang #chiari

Replying to @briannaugh of course if you’re genuinely concerned and have other symptoms, bring it

Replying to @briannaugh of course if you’re genuinely concerned and have other symptoms, bring it

Hoping my body is just producing extra csf today, but I’m keeping an eye on symptoms of shunt fail

Hoping my body is just producing extra csf today, but I’m keeping an eye on symptoms of shunt fail

Shoutout to health insurance & my parents over the years #chiarimalformation #chiari #chiarimalforma

Shoutout to health insurance & my parents over the years #chiarimalformation #chiari #chiarimalforma

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