dravetsyndrome hashtag performance

#DravetSyndrome on TikTok: Sharing life with a rare epilepsy. Families showcase challenges, triumphs, treatments, raising awareness, offering support, and building community.

Replying to @Connor when the battery dies, we call it a pit stop 😁 kachow. #dravetsyndrome #fyp #

Replying to @Connor when the battery dies, we call it a pit stop 😁 kachow. #dravetsyndrome #fyp #

You never know how the day after a seizure will go. Sometimes B can be tired or even grumpy. Thankfu

You never know how the day after a seizure will go. Sometimes B can be tired or even grumpy. Thankfu

Replying to @guroreitener3mendingenmi this comment always gets me. You may have meant well but many

Replying to @guroreitener3mendingenmi this comment always gets me. You may have meant well but many

Replying to @johnmillz00 thank you for seeing the happiness in the video ❤️ and spreading love n

Replying to @johnmillz00 thank you for seeing the happiness in the video ❤️ and spreading love n

Replying to @pixar I’m Mia, I’m Tia, we’re like, your biggest fans! Ka-chow! 😍 @Pixar #drav

Replying to @pixar I’m Mia, I’m Tia, we’re like, your biggest fans! Ka-chow! 😍 @Pixar #drav

Dravet Syndrome appears in 1 out of 15,700 infants and 10-20% of those do not survive past the age o

Dravet Syndrome appears in 1 out of 15,700 infants and 10-20% of those do not survive past the age o

Replying to @Amber Lashley B hadn’t been feeling well since his last seizure. This is the first ti

Replying to @Amber Lashley B hadn’t been feeling well since his last seizure. This is the first ti

Replying to @lds.jm this is just a small part of his day. These are some of the other things he like

Replying to @lds.jm this is just a small part of his day. These are some of the other things he like

Replying to @kyuda please Google the correct spelling next time. 💜 #dravetsyndrome #fyp #google #

Replying to @kyuda please Google the correct spelling next time. 💜 #dravetsyndrome #fyp #google #

I hate when we aren’t expecting the seizure. Even though we’ve been through this for years, your

I hate when we aren’t expecting the seizure. Even though we’ve been through this for years, your

Replying to @seba ii know riding Mater looks like fun but it has nothing to do with Dravet Syndrome.

Replying to @seba ii know riding Mater looks like fun but it has nothing to do with Dravet Syndrome.

#dravetsyndrome #dravetsyndromeawareness #dravet #epilepsy #epilepsyawareness @Blakeashleigh

#dravetsyndrome #dravetsyndromeawareness #dravet #epilepsy #epilepsyawareness @Blakeashleigh

I swear this is B’s theme song. 💜 We were hopeful that increasing the CBD would help but it see

I swear this is B’s theme song. 💜 We were hopeful that increasing the CBD would help but it see

I needed a few days off there after my last post. But what I’ve learned in this journey is from ev

I needed a few days off there after my last post. But what I’ve learned in this journey is from ev

Thankfully B landed on the dirt section of the track and with his hood on it gave him some cushion a

Thankfully B landed on the dirt section of the track and with his hood on it gave him some cushion a

Replying to @anzbxhsjsf a life like this makes you appreciate each moment you are given. Diagnosis d

Replying to @anzbxhsjsf a life like this makes you appreciate each moment you are given. Diagnosis d

It’s that time of the year! I’ve said it a million times, weather changes always create a mess f

It’s that time of the year! I’ve said it a million times, weather changes always create a mess f

Replying to @hayhay🐷👑 the whole reason I started this tik tok account was to raise awareness o

Replying to @hayhay🐷👑 the whole reason I started this tik tok account was to raise awareness o

Oh, baby B. We often are told just to buy him a real car. How I wish we could. With Dravet and B’

Oh, baby B. We often are told just to buy him a real car. How I wish we could. With Dravet and B’

Here I am a year later tearing up over this dang floor. Y’all the memories. Glad we kept the old t

Here I am a year later tearing up over this dang floor. Y’all the memories. Glad we kept the old t

Replying to @waddlexcheetah I pray every night for a cure for Dravet. It’s taken away so much from

Replying to @waddlexcheetah I pray every night for a cure for Dravet. It’s taken away so much from

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