dravetsyndrome hashtag performance

#DravetSyndrome on TikTok: Sharing life with a rare epilepsy. Families showcase challenges, triumphs, treatments, raising awareness, offering support, and building community.

Replying to @Connor when the battery dies, we call it a pit stop 😁 kachow. #dravetsyndrome #fyp #

Replying to @Connor when the battery dies, we call it a pit stop 😁 kachow. #dravetsyndrome #fyp #

You never know how the day after a seizure will go. Sometimes B can be tired or even grumpy. Thankfu

You never know how the day after a seizure will go. Sometimes B can be tired or even grumpy. Thankfu

Replying to @guroreitener3mendingenmi this comment always gets me. You may have meant well but many

Replying to @guroreitener3mendingenmi this comment always gets me. You may have meant well but many

Replying to @johnmillz00 thank you for seeing the happiness in the video ❤️ and spreading love n

Replying to @johnmillz00 thank you for seeing the happiness in the video ❤️ and spreading love n

Replying to @pixar I’m Mia, I’m Tia, we’re like, your biggest fans! Ka-chow! 😍 @Pixar #drav

Replying to @pixar I’m Mia, I’m Tia, we’re like, your biggest fans! Ka-chow! 😍 @Pixar #drav

Dravet Syndrome appears in 1 out of 15,700 infants and 10-20% of those do not survive past the age o

Dravet Syndrome appears in 1 out of 15,700 infants and 10-20% of those do not survive past the age o

Replying to @Amber Lashley B hadn’t been feeling well since his last seizure. This is the first ti

Replying to @Amber Lashley B hadn’t been feeling well since his last seizure. This is the first ti

Replying to @lds.jm this is just a small part of his day. These are some of the other things he like

Replying to @lds.jm this is just a small part of his day. These are some of the other things he like

I hate when we aren’t expecting the seizure. Even though we’ve been through this for years, your

I hate when we aren’t expecting the seizure. Even though we’ve been through this for years, your

Replying to @seba ii know riding Mater looks like fun but it has nothing to do with Dravet Syndrome.

Replying to @seba ii know riding Mater looks like fun but it has nothing to do with Dravet Syndrome.

#dravetsyndrome #dravetsyndromeawareness #dravet #epilepsy #epilepsyawareness @Blakeashleigh

#dravetsyndrome #dravetsyndromeawareness #dravet #epilepsy #epilepsyawareness @Blakeashleigh

I swear this is B’s theme song. 💜 We were hopeful that increasing the CBD would help but it see

I swear this is B’s theme song. 💜 We were hopeful that increasing the CBD would help but it see

I needed a few days off there after my last post. But what I’ve learned in this journey is from ev

I needed a few days off there after my last post. But what I’ve learned in this journey is from ev

It’s that time of the year! I’ve said it a million times, weather changes always create a mess f

It’s that time of the year! I’ve said it a million times, weather changes always create a mess f

Thankfully B landed on the dirt section of the track and with his hood on it gave him some cushion a

Thankfully B landed on the dirt section of the track and with his hood on it gave him some cushion a

Replying to @anzbxhsjsf a life like this makes you appreciate each moment you are given. Diagnosis d

Replying to @anzbxhsjsf a life like this makes you appreciate each moment you are given. Diagnosis d

Here I am a year later tearing up over this dang floor. Y’all the memories. Glad we kept the old t

Here I am a year later tearing up over this dang floor. Y’all the memories. Glad we kept the old t

Replying to @hayhay🐷👑 the whole reason I started this tik tok account was to raise awareness o

Replying to @hayhay🐷👑 the whole reason I started this tik tok account was to raise awareness o

Oh, baby B. We often are told just to buy him a real car. How I wish we could. With Dravet and B’

Oh, baby B. We often are told just to buy him a real car. How I wish we could. With Dravet and B’

Replying to @waddlexcheetah I pray every night for a cure for Dravet. It’s taken away so much from

Replying to @waddlexcheetah I pray every night for a cure for Dravet. It’s taken away so much from

Many parents of medically complex kids find it impossible to work due to the medical needs of their

Many parents of medically complex kids find it impossible to work due to the medical needs of their

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