eaglessyndrome hashtag performance

#chronicillness #ehlersdanlos #dysautonomia #POTS #intracranialhypertension #intracranialhypotension #csfleak #venousinsufficiency #lymedisease #parasites #moldillness #eaglessyndrome #jugularcompression

List the names, locations, and phone, if available, for your favorite medical providers that have diagnosed & treated your mold/biotoxin illness. #chronicillness #mold #moldillness #biotoxinillness #lymedisease #dysautonomia #POTS #ehlersdanlos #csfleak #doctors #functionalmedicine #medicaltiktok #venouscompression #intracranialhypertension #intracranialhypotension #eaglessyndrome

In a wild turn of events, the left side of my face enters the chat. #eaglessyndrome #?illness #whatiswrongwithme #MyastheniaGravis #crps #vasculitis #migraines #mascara

It has been quite the roller coaster over here. But it’s all good and moving forward! 🫶 #eaglessyndrome #MyastheniaGravis #vasculitis #musclecramps

35 days post Styloidectomy for Eagle’s Syndrome. Making progress!!! #eaglessyndrome #?illness #whatiswrongwithme #MyastheniaGravis #crps #vasculitis #migraines #mascara @Jess The Beauty Boss

Replying to @Rollerbabe14390 This explains everything. #prednisonecravings #eaglessyndrome #?illness #whatiswrongwithme #MyastheniaGravis #crps ###vasculitis #migraines #mascara

When I had to tell my doctor that all I had eaten that day was an uncrustable….. and I wanted to specify strawberry…… and I don’t have kids….. yea. #guavahealh #eaglessyndrome #?illness #whatiswrongwithme #MyastheniaGravis #crps #vasculitis #migraines #mascara #uncrustables @Guava Health @Smuckers @Uncrustables

Adding a new condition to my bank of medical knowledge: Myasthenia Gravis. @Bre B - you might have nailed it! #eaglessyndrome #MyastheniaGravis @Lady J by Design Boutique

44 days post styloidectomy Every lab is negative Responding positively to Prednisone #?illness #whatiswrongwithme #eaglessyndrome #MyastheniaGravis #crps #vasculitis #migraines #guavahealh

I don’t know what day it is but here’s the long version of the update. The goal is always fierce, not sassy. Stay tuned. @Guava Health #eaglessyndrome #questionmarkillness #fiercenotsassy #advocate

EDITED: Patrick is always #1 on the list. 1 month post Styloidectomy for Eagle’s Syndrome. I can’t believe it. There is so much that I have taken for granted over the last 47 years. This has forever changed me, in a good way I think. I still have a journey ahead of me but I’m ready for it. I often sign my emails “Always cheering you on”, because I truly am. Now I get to thank YOU for cheering me on. I appreciate every one of you. 🫶 Also- there are so many of you that I didn’t get to highlight by name in this video. You know who you are. I’ll forever appreciate you, your friendship and your support. 🫰@BohoPatrick @faith mccormick @Lady J by Design Boutique why can’t I find the rest of you to tag??? 😲 #?illness #whatiswrongwithme #eaglessyndrome #MyastheniaGravis #crps #vasculitis #

Breaking News!!! I’m so scared to say it out loud but I feel good at this moment!!! I think as someone with a ? illness or three, it’s so important to celebrate any and every win. I took a bath but didn’t have the energy to wash and dry my hair. But a win is a win! #?illness #whatiswrongwithme #eaglessyndrome #MyastheniaGravis #crps #vasculitis

? Illnesses are quite the adventure. Also- Break or Die? Terrible concept for a show. Illness reveal has to be coming soon. I don't want to say what I'm rooting for but....we shall see. What if I'm just allergic to "resting"? #eaglessyndrome #?illness #whatiswrongwithme #MyastheniaGravis #crps #vasculitis #migraines #anxiety #mascara #pressonnails

Current daily formula: Pickle juice + prednisone + breath work I think we are getting somewhere. 🤞 @Doug's Winter Party #mtolivepickles #?illness #whatiswrongwithme #eaglessyndrome #MyastheniaGravis #crps #vasculitis #migraines #mascara #guavahealh #breathwork #breathworkbestie #dougswinterparty@Chrystal Rose

Day ????? post styloidectomy for Eagle’s Syndrome, possible Myasthenia Gravis, wonky pupil, labored breathing and droopy face. 🤣 #eaglessyndrome #MyastheniaGravis #questionmarkillness #medicalmysteries

Who washed their hair, put on real clothes, added some jewelry and left house today????? I might have overdone it a little but I’m still happy about it! #jewelry from @Pressie Jewelry Refined #questionmarkillness #eaglessyndrome #MyastheniaGravis #CapCut