nonambulatorywheelchairuser hashtag performance
#nonambulatorywheelchairuser highlights the experiences and challenges of individuals who cannot walk and rely on wheelchairs. It fosters awareness, community support, and advocacy for accessibility and inclusion in various environments.
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Replying to @cane.and.disabledyalk were so so close! it was specifically my ankles. when it the proper position it caused this whole chain reaction of pain up my back. my tendons were fine, the connective chain wasn't. after surgery my back handles flat feet better, but I've been noj weight bearing for so long on ankles that tug up like that that now we've gotta stretch the tendons back out. we're working on it! as usual, this is not the only sign of TCS nor is it only attributable to TCS. just one of my signs #chronicillness #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #jointinstability #ehlersdanlossyndrome #heds #hypermobility #malignanthypermobility #jointissues #jointpain #chronicpain #medicalsystem
1.4k
and if anyone has experience with an NJ that is both where it belongs in the jejunom and curved in the stomach, how long did it take to decompress? they're hoping when it relaxes they can uncurve the portion in my stomach and give me some more room to work with on the external portion. thanks, ly guys and I'm explicitly opening up my comments for any and all things that might be helpful. it's gonna be a bumpy ride but I'm on a hypoallergenic ✨infant formula✨ so fingers crossed. you're also so welcome to drop Spotify playlists in the comments and I will go listen #chronicillness #distraction #coping :) #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #gastroparesis #nj #tubefed #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #jointinstability #ehlersdanlossyndrome #heds #hypermobility #malignanthypermobility #jointissues #jointpain #chronicpain #medicalsystem
![never once have I thought "it's not that bad yet, I don't need [whatever intervention I'm trying to avoid] and not found myself critical. OOPS. taking this as a lesson, y'all we are hardwired to avoid medical intervention at all costs. it's how our society raises people. if you're worried you may need something, bother people until you can ask. I waited til 5 members of my care team told me I needed to start looking into this before bringing it to the proper doctor, don't do what I did. be kind to your meatsuit. it's trying its best, it needs help. it takes months to get in with specialists even when already established, pestering through portals and such is allowed if you are not stable. I know I'm not the only one who struggles with that. #chronicillness #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #collegestudent #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #ehlersdanlossyndrome #heds #chronicpain #medicalsystem #gastroparesis #gp #mcas #suspectedmcas](/_next/image?url=https%3A%2F%2Fdz59t6y8jvnrr.cloudfront.net%2Fvideo%2F7455361339075087659.jpg&w=1080&q=75)
1.3k
never once have I thought "it's not that bad yet, I don't need [whatever intervention I'm trying to avoid] and not found myself critical. OOPS. taking this as a lesson, y'all we are hardwired to avoid medical intervention at all costs. it's how our society raises people. if you're worried you may need something, bother people until you can ask. I waited til 5 members of my care team told me I needed to start looking into this before bringing it to the proper doctor, don't do what I did. be kind to your meatsuit. it's trying its best, it needs help. it takes months to get in with specialists even when already established, pestering through portals and such is allowed if you are not stable. I know I'm not the only one who struggles with that. #chronicillness #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #collegestudent #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #ehlersdanlossyndrome #heds #chronicpain #medicalsystem #gastroparesis #gp #mcas #suspectedmcas
1.2k
haaaa he meant no harm but I am not excited to follow back up with that doctor especially considering I've gotten worse. I'm not mad, it wasn't an unkind thing to say, I just. I know. I know, believe me 😅 #chronicillness #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #jointinstability #ehlersdanlossyndrome #heds #hypermobility #malignanthypermobility #jointissues #jointpain #chronicpain #medicalsystem
1.2k
y'know how sometimes it gets worse and never gets better again? I'm scared he's to being vulnerable in case anyone needs to see they aren't alone right now #chronicillness #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #jointinstability #ehlersdanlossyndrome #heds #hypermobility #malignanthypermobility #jointissues #jointpain #chronicpain #medicalsystem
1.1k
putting my boxing gloves on for this upcoming appt #chronicillness #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #jointinstability #ehlersdanlossyndrome #heds #hypermobility #malignanthypermobility #jointissues #jointpain #chronicpain #medicalsystem
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