rarediseaseawareness hashtag performance
Spreading knowledge, empathy, and support. Sharing personal stories of rare disease journeys. Fostering community, advocating for research, and breaking down stigmas. Raising awareness, celebrating resilience.
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Sanfilippo Syndrome, aka Mucopolysaccharidosis type 3, childhood Alzheimer’s, is slowly taking awa
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Sanfilippo syndrome is a neurodegenerative fatal genetic disorder, caused by a missing enzyme. My hu
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Come with us for two appointments today. I share our journey with navigating the medical system as I
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Common questions I get about Liv and Sanfilippo Syndrome. #sanfilipposyndrome #rarediseaseawareness
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Surprise: it wasn’t anxiety, it was a rare, progressive disease that cause heart failure bc of mis
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Chronic illness is hard. Injections all the time still sucks even if you’re used to it. Just becau
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Please consider a small donation to SavingLiv.com (GoFundMe link in our bio) or curesff.org to help
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When the burnout is crushing, and you’re barely hanging on—raising two kids with a rare disorder
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This Father Is Spending $10 Million To Cure His Son’s Disease #raredisease #rarediseaseawareness #
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😌✨ the way it should always be but almost always isn't / in: @KT⋆˚✿˖° #womenshealthcare
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Uncle cracker was the sh/! in the day! #unclecracker #followme #hospitallife #rarediseaseawareness #
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