rarediseaseawareness hashtag performance
#RareDiseaseAwareness: Raising visibility, fostering understanding, and building community for individuals and families affected by uncommon illnesses. Sharing stories, advocating for research, and sparking crucial conversations.
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Honestly I’m a little unhinged right now. This one started hurting too soon to be normal. Went bac
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Baby shower weekend! Twins due 1 week from tomorrow! Thanks for the dresses @Ivy City Co 💕 #s
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🌟 Meet Lily! 🌟 Lily was born with Cutis Laxa (CL), a rare connective tissue disorder that caus
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Rare Disease Day is Friday February 28th. Help this disease feel less rare by sharing Liv’s story!
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Today is national rare disease day, which, unfortunately, it has been postponed due to unforeseen ci
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Whoops, posted the same video twice before of the site pull, my bad! This is the cleaning. To answer
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Thanks Ehlers Danlos Syndrome for being the cause of ALL of these 😭 #ehlersdanlossyndrome #ehler
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Replying to @JOELLE How is my genetic mutation associated with ALS? #als #amyotrophiclateralsclerosi
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February 28 Rare Disease Day *shirt is from Little Rebels with a Cause #raredisease #rarediseaseawa
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Liv has Mucopolysaccharidosis type 3, also known as Sanfilippo Syndrome. A fatal genetic disorder of
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Even with rare disease day being canceled, I will still Recognize all of the incredibly rare and spe
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I am so thankful for Noogs in supporting our family and an organization that is so close to our hear
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