Kyra

rarediseaseawareness hashtag performance

#RareDiseaseAwareness: Spreading empathy, education, and hope. Uplifting stories, research spotlights, patient voices unite. Raising visibility, building community, advocating for change, fighting stigma.
Starting Dupixent has been a game changer for my contact dermatitis 🙌 For years, I’ve battled p
4.0m
Starting Dupixent has been a game changer for my contact dermatitis 🙌 For years, I’ve battled p
Replying to @Tara Cassidy This weekend, Sam and I are running the Spring Lake 5 Mile Run in honor of
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Replying to @Tara Cassidy This weekend, Sam and I are running the Spring Lake 5 Mile Run in honor of
On vacation I pulled my site and was able to do an excursion site and pump free. Honestly so worth i
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On vacation I pulled my site and was able to do an excursion site and pump free. Honestly so worth i
every day is a struggle for me, but i try to always make the most of it, even if the only thing i do
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every day is a struggle for me, but i try to always make the most of it, even if the only thing i do
Hey besties… I have something wild to share. Last night, I officially finished voice banking — a
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Hey besties… I have something wild to share. Last night, I officially finished voice banking — a
Replying to @irinaboothe I am not sure if he will ever be able to do anything significant by your st
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Replying to @irinaboothe I am not sure if he will ever be able to do anything significant by your st
Replying to @Mary Kurtz Case Study 180: Neimann-Pick Disease Type C 🧠✨ Niemann-Pick Disease Typ
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Replying to @Mary Kurtz Case Study 180: Neimann-Pick Disease Type C 🧠✨ Niemann-Pick Disease Typ
we are so back #als #alsawareness #amyotrophiclateralsclerosis #mnd #lougehrigsdisease #raredisease
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we are so back #als #alsawareness #amyotrophiclateralsclerosis #mnd #lougehrigsdisease #raredisease
Part 1: I have 2 kids with a rare fetal disorder called NKH. Hear the full story—buckle up, becaus
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Part 1: I have 2 kids with a rare fetal disorder called NKH. Hear the full story—buckle up, becaus
Another trip around the sun. Another reminder that life isn’t about the years—it’s about the p
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Another trip around the sun. Another reminder that life isn’t about the years—it’s about the p
It’s something most people don’t think twice about—growing a family, dreaming of motherhood. B
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It’s something most people don’t think twice about—growing a family, dreaming of motherhood. B
there’s a story in all of us. #als #alsawareness #amyotrophiclateralsclerosis #mnd #lougehrigsdise
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there’s a story in all of us. #als #alsawareness #amyotrophiclateralsclerosis #mnd #lougehrigsdise
Replying to @poopministerr double wammy #als #alsawarenees #amyotrophiclateralsclerosis #mnd #lougeh
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Replying to @poopministerr double wammy #als #alsawarenees #amyotrophiclateralsclerosis #mnd #lougeh
my first time voice banking! Thank you to @ElevenLabs and Bridging Voice for making this possible. A
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my first time voice banking! Thank you to @ElevenLabs and Bridging Voice for making this possible. A
i had a seizure this morning so i decided to nap it off, (post seizure naps go hard, iykyk) but i en
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i had a seizure this morning so i decided to nap it off, (post seizure naps go hard, iykyk) but i en
all of you need to LOGOUT of your accounts. someone come take their phones away fr #als #alsawarenes
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all of you need to LOGOUT of your accounts. someone come take their phones away fr #als #alsawarenes
#AngelmanSyndrome #AngelmanSyndromeAwareness #AngelmanStrong #AngelmanWarrior #AngelmanSyndromeFamil
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#AngelmanSyndrome #AngelmanSyndromeAwareness #AngelmanStrong #AngelmanWarrior #AngelmanSyndromeFamil
As ALS Awareness Month comes to a close, I just want to say thank you. Thank you to my fellow advoca
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As ALS Awareness Month comes to a close, I just want to say thank you. Thank you to my fellow advoca
#AngelmanSyndrome #AngelmanAwareness #NonverbalCommunication #NonverbalButNotSilent #GlobalDevelopme
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#AngelmanSyndrome #AngelmanAwareness #NonverbalCommunication #NonverbalButNotSilent #GlobalDevelopme
Nothing has ever made me long to see Jesus face-to-face more than this. Having two kids with a rare
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Nothing has ever made me long to see Jesus face-to-face more than this. Having two kids with a rare
just because one doctor, ONE didn’t understand the conditions i have & the brief knowledge they di
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just because one doctor, ONE didn’t understand the conditions i have & the brief knowledge they di

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