starvingforacure hashtag performance
#StarvingForACure highlights the urgent need for research funding and awareness in the fight against rare diseases, uniting individuals and advocates seeking hope, support, and innovative solutions for better treatments.
509.0
Can we just talk about how doctors will litterly mess with you in your head and gaslight you! For those who know and the ones who don’t I’ve been having trouble getting nutrition since august with my blood infection when my Intestines stoped working correctly too. I was told tpn Isent a long term option and I went home on hospice. Within a month I was discharged for “getting better” as they said but told my mom that they can’t help me I need neuro and psychological help. I mean I’m litterly dying who Isent going to have feelings like that? I’ve been trying to start treatment back up since December and it is a struggle and the more worse I get the harder it is to keep going. Why is it always you and your parents or even just you the only ones fighting for life. It will never affect them when something happens because they refused to help. I’m tired and honestly is it even worth it anymore. Now I have another choice to make if it takes to long to get on tpn and I’m still going down like I am I will qualify for hospice again. No one ever talks about this in the chronic illness community how hard it is to just make choices. I mean at 21 I went in for heart surgery and signed a DNR and I believe that’s a lot of my problems now is they see me as a young person with that DNR but if we are honest I would rather be peaceful then get cpr and come back worse than I already am just to keep suffering and fighting for myself when the doctors won’t. What I have learned about myself since this has started is I stop talking to people it’s not like I want to but people pull away when they are scared of loosing you. And I get scared of getting close to people just to not know how long I’ll be here I don’t want to hurt anyone else. #chronicillness #gastroparesis #ehlersdanlossyndrome #starvingforacure #gaslight #intestinaldysmotility #disabled #malnutrition #theythem #lgbt
start an influencer campaign that drives genuine engagement
Technology
Fastest Growing