Kyra

charcotmarietooth hashtag performance

#CharcotMarietooth: Discoveries, advocacy, and community for those living with this neuromuscular condition. Awareness, research updates, daily life, inspiring stories, supportive connections, and helpful tips.
#cmt #charcotmarietooth degenerative nerve disease means that I don't feel the burn as much as I see
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#cmt #charcotmarietooth degenerative nerve disease means that I don't feel the burn as much as I see
Replying to @just4fun And guess what friend ! Doing an EMG on 2 legs and 1 arm became an EMG on both
1.7k
Replying to @just4fun And guess what friend ! Doing an EMG on 2 legs and 1 arm became an EMG on both
Rare Gene and Genetic Disease Awareness Day and Reminder that you don’t know what people are going
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Rare Gene and Genetic Disease Awareness Day and Reminder that you don’t know what people are going
These things might not seem like a big deal… but when all of these things are added together it co
654.0
These things might not seem like a big deal… but when all of these things are added together it co
✨️Routine.✨️ Most people try to stick with a routine or schedule to get through their day. M
535.0
✨️Routine.✨️ Most people try to stick with a routine or schedule to get through their day. M
this life is HARD enough!!!! i get 1 illness somewhat at Bay, for the moment. then here we go! hop o
450.0
this life is HARD enough!!!! i get 1 illness somewhat at Bay, for the moment. then here we go! hop o
I have 3 rare neuromuscular illnesses and a ton of comorbidities. #nevergiveup on the way you feel.
239.0
I have 3 rare neuromuscular illnesses and a ton of comorbidities. #nevergiveup on the way you feel.

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