childhoodcancerawareness hashtag performance
#ChildhoodCancerAwareness promotes education and support for childhood cancer, encouraging advocacy, research funding, community involvement, emotional healing, family resources, survivor stories, fundraising, awareness campaigns, and fostering hope for affected children and families.
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Still one of my all time favorites. #oneyearago #childhoodcancer #childhoodcancerawareness #oneyearago
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Looking back I wish I knew. I wish I knew this was the very last day I would get with her, as truly herself. I wish I knew just how limited my time was, before it was too late. Childhood cancer is a thief. It robs you of their innocence, their future, and of all the could have beens. #childlossawareness #childhoodcancerawareness #childhoodcancer #braincancer #atrt #teamjocelyn #lifeafterloss
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*I took a few days off social media to give myself some time to grieve the loss of my sweet Shanell. It all happened so fast & I never really got to fully process what happened til the day after. Thank you to everyone who has commented or messaged us kind words of condolences. Losing a pet is like losing a member of your family. Losing Shanell was like losing one of my babies cause she was my first baby. š This clip was after Lola overheard hubby and I talking about what to do with Shanell the night before I was going to put her to sleep forever. We spoke in Hmong so she wouldnāt fully understand our conversation, but she picked up quick and asked us why Shanell was dying. š„ I knew Iād have to break the news to her, but I wasnāt ready at this time. I just had to be very honest with her that her friend was very sick and old, so her body was going to stop working. I was amazed at how much she grasped on and understood about deathā¦she did experience her great grandpaās funeral and knew that he passed. She was able to associate that with Shanellās passing. She wanted to bury Shanell like how we buried my grandpa. She requested I get flowers for her so she could throw it in the burial site like she did for my grandpa. I wanted her to have a sense of power in the decision making too because Shanell was also her bff. So I decided to follow through with Lolaās wish to bring Shanell home afterwards so we could bury her in the backyard and Lola would be able to see her and say goodbye one last time. #lolastrong #grievingourfurbaby #familypet #childhoodcancer #childhoodcancerawareness #familylife
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my baby is so strong š¤ getting through this one day at time.. gofundme link is in my bio any help is appreciated ā¤ļøāš©¹ #neuroblastoma #childhoodcancerawareness #cancerfighter #gofundme
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This is unfortunately our reality. Cancer always creeps into our lives in different ways at different times. Itās never ending. Our girls are inseparable and itās always tough when we know they have to be apart. We have to mentally prep ourselves for Lolaās meltdown. Lola always has a difficult time saying goodbye to her sissy. She never wants to be away from Klaira. Klaira brings comfort to Lola and makes her feel happy and safe. Sadly during times where we have to be in the hospital setting for procedures such as bone marrow biopsies, lumbar punctures, and blood and platelet transfusions, Klaira canāt join us. The hospital doesnāt allow siblings, especially babies, into the pediatric day unit. Itās for the safety of the babies and all the pediatric patients there. Lola had to say goodbye to her grandma, grandpa, and sissy on Christmas evening and it was so sad. Our Lola girl is such an amazing big sissy! She eventually got over it and enjoyed cuddling with mommy and daddy in bed all by herself. Lol. #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor #childhoodcancersucks #childhoodcancersupport
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Thank you. Thank you for loving Jocelyn endlessly. Thank you for bringing her so much joy during her time on this earth. Thank you for supporting our family through the worst moments of our lives. Thank you for continuing to keep her memory alive. I love you all. ā„ļø #tiktokban #childhoodcancer #childhoodcancerawareness #childloss #teamjocelyn
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#onthisday I wish so bad I could have taken the cancer away. Made it all better or at least traded places with you taken that pain for me so that you could have lived. I hate that you went through so much. Iām sorry my love. Iām so sorry mommy misses you so much. ##delilahlovestrong##heytheredelilah##cancer##sucks##childhoodcancer##childhoodcancerawareness##anotherlife##godwhy##missingher##missher##mybaby##Love##family##hurt##life##grief##losangeles##california
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@Penn State THONā¢ raises millions for childhood cancer and holds a 46 hour dance marathon every year #THON #childhoodcancerawareness #pennstate #psu #THONWeekend #marathon
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Dec 26th- Fighting cancer never stops and it never waits until after the holidays. We were scheduled for a chemotherapy session at the clinic and then procedure the day after Christmas. Christmas magic was still in the air, but ours was mixed with sadness from the separation of Klaira and just the fact that we had to go fight cancer. But we tried to keep it as fun as possible for Lola. Lola asked to watch videos of Klaira and started crying because she said she missed her sister too much. Itās so hard seeing her yearning for her sister, her sense of comfort. On a good note, she was such a good sport when her nurse came in to access her port. She didnāt even cry, not a single tear!! We were so so proud of her! Since we had to go to the hospital next for her procedure, she had to fast the night before at 12am and she was not happy this morning. She was constantly asking for a snack and asking for abit of apple juice. Our nurse gave her abit and told her she could have more once she woke up from her nap at the hospital. Itās sad saying no to your baby and telling them they canāt have anything to eat or drink. I hate all the big to little things cancer effects in our life! #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor #childhoodcancersucks #childhoodcancersupport
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Replying to @šāā¬ kitty šāā¬ what wild assumptions you have. One of the best things you can do when your child is going through something like this is making your marriage a priority. For someone to try and judge people over that is wildly ignorant and immature. #childhoodcancer #childhoodcancerawareness #childloss #teamjocelyn
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Get ready with me skincare addition!! With @Bubble Skincare @Bubble Insiders #fyp #viral #xymclr #childhoodcancer #childhoodcancerawareness #lymphoma #nonhodgkinslymphoma #skincare #bubble #bubbleskincare #skincareroutine #bubbleambassador
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Over the next few days Iāll be sharing some of my favorite moments on this app. TikTok has done SO much good for the Childhood Cancer community. I was able to share Jocelynās story, educate millions of people on ATRT and the signs for childhood cancer, raise over $50,000 for cancer research, document so many moments I had with Jocelyn before she passed, and share how life is impacted after child loss. If this app goes away, just know I love you all and will forever be thankful of your support for Jocelyn and our family over the years ā„ļø #tiktokban #childhoodcancer #childhoodcancerawareness #childloss #teamjocelyn
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On this day last year we were told by the hospital pediatric oncologist that our baby girl was showing all the signs of Leukemia. What was supposed to be an ER visit just to ease our anxiety grew into the scariest moment of our lives as her mommy and daddy. Lola was frightened. We were completely broken. We watched our baby girl lounge around in that orange hospital gown for days questioning how a perfect baby like her could be fighting such a horrible illness inside her body. All of these memories bring back so much trauma. Many of you have been on this journey with us since before day 1 (I count day 1 as the first day she started chemo) and we are forever grateful for your love and support. Your prayers and positive energy sent towards our family is all we could ever ask for! Tonight I watched my girl run, jump, and play like a normal toddler in the living room. Tonight she wears her favorite Bluey night gown instead of that uncomfortable orange patient hospital gown. These are the moments that I cherish and am so grateful for. Weāve got a long way to go still. This journey isnāt over, but we continue to fight strong and one day soon Lola will be FREE from cancer!!! š«¶š¼š«¶š¼ To all the cancer families that are newly diagnosedā¦this journey will be the toughest one ever and it will test every single ounce of you and your family, but thereās a light at the end of the tunnel. Let our baby girlās story be an example for you all that there is still life after cancer. Hugs!! š„¹ā„ļø #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor #childhoodcancersucks #childhoodcancersupport
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@SigelArts was another amazing creator TikTok connected and blessed us with. The art he painted of Jocelyn will forever be two of my most prized possessions, within my home. We are forever thankful ā„ļø #tiktokban #childhoodcancer #childhoodcancerawareness #childloss #teamjocelyn #childlossawareness
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Meanwhile I get to sit here and this is how I see my child every day.. Make it make sense. TikTok has helped bring so much funding and awareness to so many childhood diseases, like childhood cancer. #tiktokban #childhoodcancer #childhoodcancerawareness
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Dec 26th- (part2) We drove to the hospital down the block and Lola made sure to direct daddy exactly where to go. Lol. She said the clinic was sooo close and a bitty far from the hospital. We are shocked at the things that come out of her mouth at times lol. (An old soul for sure.) She was excited to get inside to see all her nurse friends and play with her kitchen, but she also kept telling me that she didnāt want the āwhite stuff,ā the propofol anesthesia med that makes her sleepy, but gives her a bad taste in the mouth right before she falls asleep. We played and waited and tried to distract her as much as possible from actual snacking and eating. When sheād ask, Iād just tell her, āyes of courseā¦when you wake up from your nap.ā I wanted so badly for her to go to sleep before rolling her into the procedure room so that itād lessen the trauma for her. We sang songs as I rubbed her head and she finally fell asleep. Thank God! After they rolled her back, hubby and I went to grab some much needed coffee. Side note- hospital coffee is not the vibe, but when youāre desperate, it does the job lol. The waiting always comes with an overwhelming feeling of anxiety: what if something wrong happens doing the procedure, what if the results show cancer cells in the spinal fluid, what if she doesnāt wake upā¦šš¤¦š»āāļø I could never relax til the moment my baby girl opens up her eyes and talks to us. First thing she said to her nurse when she woke up was, ādo you have any apple juice?ā Lol. Her wish was their command. She was her happy spunky self after she woke up and enjoyed her purple sticky rice from grandma during the car ride home. It wasnāt fair or fun to be doing this all the day after Christmas, but we are thankful for an uneventful day. #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor #childhoodcancersucks #childhoodcancersupport
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Jan 9th- Today we went in for Lolaās birthday bi weekly clinic appointment to check her blood and ANC level. She was in such a good mood considering she didnāt want to get out of bed that morning lol. She walked right into the clinic and did her thing. Iāve noticed recently that her personality is showing more and more each time we come. Usually sheās not as happy and sassy as today. Iām taking it as, sheās finally feeling comfortable enough to be silly and open with all her clinic nurses and docs. She didnāt cry before, during, or after the port accessing. She would usually tell us she doesnāt like needles and to keep it away, but lately sheās been accepting of it and has found her own way to cope and be silly through the process. Her nurse let her help set up the supplies which in turn gave her a sense of control and probably helped with the anxiety. Her labs looked good. šš¼ Her hemoglobin, platelets, and red blood cell levels looked good. Her ANC went from 1700 down to 900, but that was the indicator that her chemo at 75% dosage was working to suppress all the white blood cells (including cancer cells) and slowly create new healthy WBCs. Her oncologist doesnāt predict it to decrease lower to the 500 and below range, so fingers crossed she will remain within those levels and we can stay at this sweet spot of 75% for the rest of her treatment phase. Weāve noticed such progress with our girl & we couldnāt be more proud of her!! All the medical trauma sheās been through hasnāt hindered her from being her best true self! I believe itās all in how we as a family unit approach the situation, the therapy & support from our child life specialist, the way we try to keep every moment positive and safe for her that really helps her to move forward in this journey & not feel overwhelmed anymore. It took a long while and at times it felt like we reverted back on many things, but her progress is proof that things work out in time. Sheās so strong & continues to show us just how resilient she is every single day as she fights! God is good and heās making a way for us through this dark tunnel! #lolastrong #childhoodcancer #childhoodcancerawareness #childhoodleukemia
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Reflecting through this year with all the good times, the tough times, the scary times, and the sad times. We thought weād never get through it, but here we are today. God is good and heās walked with us through it all!š„¹ I questioned many times, āGod, why my baby?ā But I never blamed him. I learned to accept that this obstacle in life is for our baby and our family to be a living testimony for His glory. How on earth we managed to go through all this blows my mind and Iād never wish this upon anyone, but weāve learned so much from all these obstacles and we see life much differently now. We cherish the simple outings when we have the chance to go. We love hanging out with our families. We know how important it is to tell each other we love each other daily. We want to live life to the fullest with our babies because tomorrow is never guaranteed! 2024 was a very unfortunate year for us and our family. Lola being diagnosed with cancer shattered us into a million pieces. Then within 2 weeks my mother in law became paralyzed from spiraling unfortunate events. We lost grandpa to kidney failure because he wanted eternal rest instead of suffering through treatments. We place 2025 in Godās hands and know that it will come with more happiness, good health, & life adventures.ā„ļø šš»Goodbye 2024!! We wonāt be missin yaā¦Weāre kicking you to the curb!!!! #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor #childhoodcancersucks #childhoodcancersupport #happynewyear #goodbye2024
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Just Incase It happensā¦.This page means so much to me because itās become Lunaās memorial, my grief diary, a place I documented some of the hardest & biggest moments of our lives. A place I could raise awareness to the cruel reality of what is pediatric cancer. Incase this goes dark thank you to all who have been with me before during and after Lunaās fight with brain cancer. Thank you for being here š I hope to see you all on IG, YT, or FB. Same as on here @coralfully and @Lunaseverglow So much love for you all! š #singlemom #grief #tiktokban #fyp #childhoodcancerawareness #pediatricbraincancer #loss #memories #luna #foreverandever
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