Kyra

childhoodcancersurvivor hashtag performance

#ChildhoodCancerSurvivor celebrates resilience, hope, and strength. It highlights inspiring journeys, triumphs over adversity, community support, awareness, emotional healing, shared stories, advocacy, empowerment, and the enduring spirit of young warriors.
This is unfortunately our reality. Cancer always creeps into our lives in different ways at different times. It’s never ending.  Our girls are inseparable and it’s always tough when we know they have to be apart. We have to mentally prep ourselves for Lola’s meltdown. Lola always has a difficult time saying goodbye to her sissy. She never wants to be away from Klaira. Klaira brings comfort to Lola and makes her feel happy and safe. Sadly during times where we have to be in the hospital setting for procedures such as bone marrow biopsies, lumbar punctures, and blood and platelet transfusions, Klaira can’t join us. The hospital doesn’t allow siblings, especially babies, into the pediatric day unit. It’s for the safety of the babies and all the pediatric patients there.  Lola had to say goodbye to her grandma, grandpa, and sissy on Christmas evening and it was so sad. Our Lola girl is such an amazing big sissy! She eventually got over it and enjoyed cuddling with mommy and daddy in bed all by herself. Lol.  #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor  #childhoodcancersucks  #childhoodcancersupport
Dec 26th- Fighting cancer never stops and it never waits until after the holidays. We were scheduled for a chemotherapy session at the clinic and then procedure the day after Christmas.  Christmas magic was still in the air, but ours was mixed with sadness from the separation of Klaira and just the fact that we had to go fight cancer. But we tried to keep it as fun as possible for Lola. Lola asked to watch videos of Klaira and started crying because she said she missed her sister too much. It’s so hard seeing her yearning for her sister, her sense of comfort. On a good note, she was such a good sport when her nurse came in to access her port. She didn’t even cry, not a single tear!! We were so so proud of her!  Since we had to go to the hospital next for her procedure, she had to fast the night before at 12am and she was not happy this morning. She was constantly asking for a snack and asking for abit of apple juice. Our nurse gave her abit and told her she could have more once she woke up from her nap at the hospital. It’s sad saying no to your baby and telling them they can’t have anything to eat or drink. I hate all the big to little things cancer effects in our life! #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor  #childhoodcancersucks  #childhoodcancersupport
On this day last year we were told by the hospital pediatric oncologist that our baby girl was showing all the signs of Leukemia. What was supposed to be an ER visit just to ease our anxiety grew into the scariest moment of our lives as her mommy and daddy.  Lola was frightened. We were completely broken. We watched our baby girl lounge around in that orange hospital gown for days questioning how a perfect baby like her could be fighting such a horrible illness inside her body. All of these memories bring back so much trauma. Many of you have been on this journey with us since before day 1 (I count day 1 as the first day she started chemo) and we are forever grateful for your love and support. Your prayers and positive energy sent towards our family is all we could ever ask for! Tonight I watched my girl run, jump, and play like a normal toddler in the living room. Tonight she wears her favorite Bluey night gown instead of that uncomfortable orange patient hospital gown. These are the moments that I cherish and am so grateful for. We’ve got a long way to go still. This journey isn’t over, but we continue to fight strong and one day soon Lola will be FREE from cancer!!!  🫶🏼🫶🏼 To all the cancer families that are newly diagnosed…this journey will be the toughest one ever and it will test every single ounce of you and your family, but there’s a light at the end of the tunnel. Let our baby girl’s story be an example for you all that there is still life after cancer. Hugs!! 🥹♥️   #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor  #childhoodcancersucks  #childhoodcancersupport
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On this day last year we were told by the hospital pediatric oncologist that our baby girl was showing all the signs of Leukemia. What was supposed to be an ER visit just to ease our anxiety grew into the scariest moment of our lives as her mommy and daddy. Lola was frightened. We were completely broken. We watched our baby girl lounge around in that orange hospital gown for days questioning how a perfect baby like her could be fighting such a horrible illness inside her body. All of these memories bring back so much trauma. Many of you have been on this journey with us since before day 1 (I count day 1 as the first day she started chemo) and we are forever grateful for your love and support. Your prayers and positive energy sent towards our family is all we could ever ask for! Tonight I watched my girl run, jump, and play like a normal toddler in the living room. Tonight she wears her favorite Bluey night gown instead of that uncomfortable orange patient hospital gown. These are the moments that I cherish and am so grateful for. We’ve got a long way to go still. This journey isn’t over, but we continue to fight strong and one day soon Lola will be FREE from cancer!!! 🫶🏼🫶🏼 To all the cancer families that are newly diagnosed…this journey will be the toughest one ever and it will test every single ounce of you and your family, but there’s a light at the end of the tunnel. Let our baby girl’s story be an example for you all that there is still life after cancer. Hugs!! 🥹♥️ #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor #childhoodcancersucks #childhoodcancersupport
Reflecting through this year with all the good times, the tough times, the scary times, and the sad times. We thought we’d never get through it, but here we are today. God is good and he’s walked with us through it all!🥹 I questioned many times, “God, why my baby?” But I never blamed him. I learned to accept that this obstacle in life is for our baby and our family to be a living testimony for His glory.  How on earth we managed to go through all this blows my mind and I’d never wish this upon anyone, but we’ve learned so much from all these obstacles and we see life much differently now. We cherish the simple outings when we have the chance to go. We love hanging out with our families. We know how important it is to tell each other we love each other daily. We want to live life to the fullest with our babies because tomorrow is never guaranteed!  2024 was a very unfortunate year for us and our family. Lola being diagnosed with cancer shattered us into a million pieces. Then within 2 weeks my mother in law became paralyzed from spiraling unfortunate events. We lost grandpa to kidney failure because he wanted eternal rest instead of suffering through treatments.  We place 2025 in God’s hands and know that it will come with more happiness, good health, & life adventures.♥️ 👊🏻Goodbye 2024!! We won’t be missin ya…We’re kicking you to the curb!!!!  #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor  #childhoodcancersucks  #childhoodcancersupport #happynewyear #goodbye2024
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Reflecting through this year with all the good times, the tough times, the scary times, and the sad times. We thought we’d never get through it, but here we are today. God is good and he’s walked with us through it all!🥹 I questioned many times, “God, why my baby?” But I never blamed him. I learned to accept that this obstacle in life is for our baby and our family to be a living testimony for His glory. How on earth we managed to go through all this blows my mind and I’d never wish this upon anyone, but we’ve learned so much from all these obstacles and we see life much differently now. We cherish the simple outings when we have the chance to go. We love hanging out with our families. We know how important it is to tell each other we love each other daily. We want to live life to the fullest with our babies because tomorrow is never guaranteed! 2024 was a very unfortunate year for us and our family. Lola being diagnosed with cancer shattered us into a million pieces. Then within 2 weeks my mother in law became paralyzed from spiraling unfortunate events. We lost grandpa to kidney failure because he wanted eternal rest instead of suffering through treatments. We place 2025 in God’s hands and know that it will come with more happiness, good health, & life adventures.♥️ 👊🏻Goodbye 2024!! We won’t be missin ya…We’re kicking you to the curb!!!! #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor #childhoodcancersucks #childhoodcancersupport #happynewyear #goodbye2024
This toy drive was initially started by the PTC (parent teacher club) at my dad’s school. They wanted to do it in honor of Lola and my dad and send all the toys to Lola’s children’s hospital. So sweet of them! My dad informed me that they didn’t have many toys donated & my heart felt so sad because I know just how much new toys and gifts mean to these kiddos during their stays at the hospital. Not only do toys mean the world to these kids, but it means the world to the parents to see their child happy during these scary unpredictable times. Seeing their child happy allows the parents to find a small sense of hope and joy while navigating through the darkness. We’ve been there too many times and feel so deeply for all the new families that will have to endure this new diagnosis & the veteran families who can’t seem to catch a break from the hospital setting. You all also helped us raise $1,630 in gift card donations to go towards the families for food!!! That’s a huge relief that will be lifted off their shoulders! It’s EXPENSIVE to live in the hospital! The child gets food, but the attending parent/parents don’t get any & they have to pull from their wallets to eat. And don’t even get me started because you have to consider daily hospital parking, door dash fees, gas to travel to and from home or food place. And if there’s only 1 parent at the hospital, they don’t want to leave their child unattended to even get food, so they starve til someone can relieve them or bring them food. Its ALOT! So just know that you guys are making an impact & your contributions don’t do unseen! This was a process unboxing, loading the toys, and cutting up all the boxes, but we did it! 😅 DREAM TIME! Come with us next to deliver the toys to our hospital team!#lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor #childhoodcancersucks #toydrive #hospitaltoydrive #childhoodcancersupport
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This toy drive was initially started by the PTC (parent teacher club) at my dad’s school. They wanted to do it in honor of Lola and my dad and send all the toys to Lola’s children’s hospital. So sweet of them! My dad informed me that they didn’t have many toys donated & my heart felt so sad because I know just how much new toys and gifts mean to these kiddos during their stays at the hospital. Not only do toys mean the world to these kids, but it means the world to the parents to see their child happy during these scary unpredictable times. Seeing their child happy allows the parents to find a small sense of hope and joy while navigating through the darkness. We’ve been there too many times and feel so deeply for all the new families that will have to endure this new diagnosis & the veteran families who can’t seem to catch a break from the hospital setting. You all also helped us raise $1,630 in gift card donations to go towards the families for food!!! That’s a huge relief that will be lifted off their shoulders! It’s EXPENSIVE to live in the hospital! The child gets food, but the attending parent/parents don’t get any & they have to pull from their wallets to eat. And don’t even get me started because you have to consider daily hospital parking, door dash fees, gas to travel to and from home or food place. And if there’s only 1 parent at the hospital, they don’t want to leave their child unattended to even get food, so they starve til someone can relieve them or bring them food. Its ALOT! So just know that you guys are making an impact & your contributions don’t do unseen! This was a process unboxing, loading the toys, and cutting up all the boxes, but we did it! 😅 DREAM TIME! Come with us next to deliver the toys to our hospital team!#lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor #childhoodcancersucks #toydrive #hospitaltoydrive #childhoodcancersupport
Dec 20, 2023- I was sitting on the couch annoyed at Lola for being fussy all day. I was sleep deprived, probably hangry, frustrated, and going through postpartum. I thought Lola was just “going through it” since baby sissy made her debut. I thought Lola wanted attention and was acting out, but now when I look back…it makes me sick to my stomach because she was going through it, yes, going through the symptoms of cancer!! 😭😖 This video is for all the parents…if and when you sense that your child is “off,” go get them checked. And don’t just go once and call it a day. Advocate for them. Seek help til you get the answer. Luckily for us, it took just one ER trip to the children’s hospital. But for some others, their journey consists of constant visits and nagging the docs til they get the answers they need!  Our children deserve more! They deserve to THRIVE, not just survive.  #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor  #childhoodcancersucks  #childhoodcancersupport #morethan4 #ourchildrendeservemorethan4
Dec 26th- (part2) We drove to the hospital down the block and Lola made sure to direct daddy exactly where to go. Lol. She said the clinic was sooo close and a bitty far from the hospital. We are shocked at the things that come out of her mouth at times lol. (An old soul for sure.)  She was excited to get inside to see all her nurse friends and play with her kitchen, but she also kept telling me that she didn’t want the “white stuff,” the propofol anesthesia med that makes her sleepy, but gives her a bad taste in the mouth right before she falls asleep. We played and waited and tried to distract her as much as possible from actual snacking and eating. When she’d ask, I’d just tell her, “yes of course…when you wake up from your nap.” I wanted so badly for her to go to sleep before rolling her into the procedure room so that it’d lessen the trauma for her. We sang songs as I rubbed her head and she finally fell asleep. Thank God!  After they rolled her back, hubby and I went to grab some much needed coffee. Side note- hospital coffee is not the vibe, but when you’re desperate, it does the job lol. The waiting always comes with an overwhelming feeling of anxiety: what if something wrong happens doing the procedure, what if the results show cancer cells in the spinal fluid, what if she doesn’t wake up…😭🤦🏻‍♀️ I could never relax til the moment my baby girl opens up her eyes and talks to us.  First thing she said to her nurse when she woke up was, “do you have any apple juice?” Lol. Her wish was their command. She was her happy spunky self after she woke up and enjoyed her purple sticky rice from grandma during the car ride home. It wasn’t fair or fun to be doing this all the day after Christmas, but we are thankful for an uneventful day.  #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor  #childhoodcancersucks  #childhoodcancersupport
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Dec 26th- (part2) We drove to the hospital down the block and Lola made sure to direct daddy exactly where to go. Lol. She said the clinic was sooo close and a bitty far from the hospital. We are shocked at the things that come out of her mouth at times lol. (An old soul for sure.) She was excited to get inside to see all her nurse friends and play with her kitchen, but she also kept telling me that she didn’t want the “white stuff,” the propofol anesthesia med that makes her sleepy, but gives her a bad taste in the mouth right before she falls asleep. We played and waited and tried to distract her as much as possible from actual snacking and eating. When she’d ask, I’d just tell her, “yes of course…when you wake up from your nap.” I wanted so badly for her to go to sleep before rolling her into the procedure room so that it’d lessen the trauma for her. We sang songs as I rubbed her head and she finally fell asleep. Thank God! After they rolled her back, hubby and I went to grab some much needed coffee. Side note- hospital coffee is not the vibe, but when you’re desperate, it does the job lol. The waiting always comes with an overwhelming feeling of anxiety: what if something wrong happens doing the procedure, what if the results show cancer cells in the spinal fluid, what if she doesn’t wake up…😭🤦🏻‍♀️ I could never relax til the moment my baby girl opens up her eyes and talks to us. First thing she said to her nurse when she woke up was, “do you have any apple juice?” Lol. Her wish was their command. She was her happy spunky self after she woke up and enjoyed her purple sticky rice from grandma during the car ride home. It wasn’t fair or fun to be doing this all the day after Christmas, but we are thankful for an uneventful day. #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor #childhoodcancersucks #childhoodcancersupport
So happy to be able to do this! Thank you all for your contributions towards this toy drive. It would not have been possible without you guys!  These toys and gift cards will bring so much joy to all the families who are stuck in the hospital during the holiday season.  Our hospital child life team is the best and we are grateful to be able to help stock up their supplies so they can continue to do all the amazing work they do! They bring comfort and smiles to all the kiddos and distract them from all the scary thoughts that the hospital setting brings.  To our Lola Support Squad, you guys are amazing! God bless you all and may you all have a joyous holiday season! #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor  #childhoodcancersucks  #childhoodcancersupport #toydrive #toydrive2024 #hospitaltoydrive
Loved our Christmas session with our sweet friend @peachylemonsphotography!! The girls were so excited and animated and she caught it all. This session represents pure joy and good health from now on for us! No more misery like what 2024 has been!!  Thank so much for this session Kylie. Means so much to us!! 🥰♥️ Only 7 more days til Christmas!! Are you all ready?! 🎄  #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor  #childhoodcancersucks  #childhoodcancersupport #christmasphotos #familychristmaspictures
“Tswv Yexus lub npe zoo kawg nkaus” (Jesus’s name is so good) in the Hmong language. We sang this song all the time for Lola as a baby. It came full circle when we watched her sing it with her family. It was so special. 🥹♥️ God is good all the time! Even when chaos, sadness, and sorrow seem to overwhelm me, He is still good. I’m so grateful for His love for our family, especially for Lola, through this journey so far. His love never fails!  One day we will be able to proclaim Lola cancer FREE!!! I cannot wait til that day!! 😭♥️🙌🏼 til then, we will continue to worship him and fight tooth and nail against all evil that may come our way.  #lolastrong #teamlola #lolasprayerwarriors #lolasarmy #childhoodcancerfamilies #childhoodcancer #childhoodcancerawareness #childhoodleukemia #childhoodcancerwarriors #childhoodcanceradvocate #childhoodcancersurvivor  #childhoodcancersucks  #childhoodcancersupport #praiseandworship #godisgood
You are baby, you are a SURVIVOR! #childhoodcancersurvivor #stage4cancer #t1d
Hes such a big boy from when this all first started. So proud of him🥹 #leukemiasurvivor #cancersurvivor #childhoodcancersurvivor #tcellall #leukemia #leukemiawarrior #fyp #fypシ #fypシ゚viral #foryou #foryoupage
My little survivor 💕🎗️I love this picture of us #childhoodcancersurvivor #stage4cancer #t1d #memories #minime #5 #2021
#donaldtrump #birthdaywish #childhoodcancersurvivor #trump2024

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