Kyra

chronicillnesscommunity hashtag performance

The #chronicillnesscommunity hashtag connects individuals facing persistent health challenges, fosters support, promotes awareness, shares experiences, encourages solidarity, empowers voices, builds understanding, nurtures friendships, and highlights resilience in difficult journeys.
January 18th, 2pm-5pm, PDX - “Blooming Buds” RSVP link in bio 🔗 masks are highly encouraged to keep our friends safe! @emma    VD: clips of an outdoor picnic with 25-50 people in a park. The text reads, “live in the PNW, chronically ill, and looking for community? Come join our in person meet up. Meet new friends who understand what you’re going through. Who knows, you might find lifelong friendship. January 18, link in bio.”   #chronicillness #chronicallyill #chronicillnesscommunity #disabled #eds #endo #pots #dynamicdisability
Its giving get knocked down and slowly get back up again.  Its giving self compassion. Its giving showing up daily, even if that means showing up .25% one day and 50% the next.  No one said its easy, its hard either way. But, you do have a choice in the matter. So whatcha gonna pick today? #chronicallyill #chronicillnesslife #livingwithms #thisisms #lessonslearned #mswarrior🧡 #msstrong #theliftcollective #mslife #msawareness #mindsetmatters #mssymptoms #msrelapse #setbacksandcomebacks #sickdoesnthavetolooksick #chronicillnesssupport #chronicillnesscommunity #ms #patientleader #rrms #spms #ppms #multiplesclerosis
19 years…half my life…with MS My MS anniversary was Dec 5. I spent it at the neurologist. Ever since then I’ve been in a healthcare twilight zone that is #chronicallyill folks are realllll familiar with. I’m tired of advocating for myself. I’m tired of trying to ‘prove’ that these are very real issues in a 15 minute appt with a new provider so they can determine how sick I am. I’m tired of living with this illness for 19 years and being treated like I’M unsure of how I feel. I know doctors are in the middle just as much as patients are, in a horribly failing healthcare system AND I can be upset with my care and limitations of the system we are all trying to operate in.  The benefit of so much experience with MS is knowing that this is a passing blip of time. Its knowing that I can meet these challenges (even tho I hate having them). It’s knowing it will all pass, maybe a bit slower than hoped, but regardless it will pass.  Same for you if life is lame right now, just keep showing up and taking care of you. THAT’S what matters.  No LIVE this week or next. I gotta regroup and rebalance after this chaos. I am planning on sending email updates and sharing actual fun and informative things in my newsletters so sign up for those if you’re missing out on our weekly lives. 🧡 #chronicillnesslife #thisisms #livingwithms #msrelapse #mssymptoms #hopeisadiscipline #ms #rrms #spms #ppms #chronicillnesscommunity #chronicillnesssupport #mslife #sickdoesnthavetolooksick #msawareness #theliftcollective #msstrong #mswarrior🧡 #lessonslearned #19yranniversary #multiplesclerosis #patientleader #invisibleillnessclub
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19 years…half my life…with MS My MS anniversary was Dec 5. I spent it at the neurologist. Ever since then I’ve been in a healthcare twilight zone that is #chronicallyill folks are realllll familiar with. I’m tired of advocating for myself. I’m tired of trying to ‘prove’ that these are very real issues in a 15 minute appt with a new provider so they can determine how sick I am. I’m tired of living with this illness for 19 years and being treated like I’M unsure of how I feel. I know doctors are in the middle just as much as patients are, in a horribly failing healthcare system AND I can be upset with my care and limitations of the system we are all trying to operate in. The benefit of so much experience with MS is knowing that this is a passing blip of time. Its knowing that I can meet these challenges (even tho I hate having them). It’s knowing it will all pass, maybe a bit slower than hoped, but regardless it will pass. Same for you if life is lame right now, just keep showing up and taking care of you. THAT’S what matters. No LIVE this week or next. I gotta regroup and rebalance after this chaos. I am planning on sending email updates and sharing actual fun and informative things in my newsletters so sign up for those if you’re missing out on our weekly lives. 🧡 #chronicillnesslife #thisisms #livingwithms #msrelapse #mssymptoms #hopeisadiscipline #ms #rrms #spms #ppms #chronicillnesscommunity #chronicillnesssupport #mslife #sickdoesnthavetolooksick #msawareness #theliftcollective #msstrong #mswarrior🧡 #lessonslearned #19yranniversary #multiplesclerosis #patientleader #invisibleillnessclub
be kind and gentle with your sick friends today❤️   VD: Tayler, a young white thin woman with medium length brown hair, giving herself iv medication and smelling an alcohol wipe. The text reads, “reminder that chronically illness folks are still sick during the holidays.”   #chronicillness #chronicallyill #chronicillnesscommunity #disabled #eds #endo #pots #dynamicdisability
#duet with @Steph 🧡 #chronicallybadass what a match made in heaven…the Chronically Badass Glass + Miralax (or your drink of choice 🤪)  Grab your own glass in The LIFT Collective shop - link in bio 🧡 #chronicallybadass #chronicallyill #chronicillnesslife #mswarrior🧡 #livingwithms #thisisms #theliftcollective #msstrong #mslife #msawareness #chronicillnesssupport #chronicillnesscommunity #patientleader #chronicillnesshumor
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#duet with @Steph 🧡 #chronicallybadass what a match made in heaven…the Chronically Badass Glass + Miralax (or your drink of choice 🤪) Grab your own glass in The LIFT Collective shop - link in bio 🧡 #chronicallybadass #chronicallyill #chronicillnesslife #mswarrior🧡 #livingwithms #thisisms #theliftcollective #msstrong #mslife #msawareness #chronicillnesssupport #chronicillnesscommunity #patientleader #chronicillnesshumor
#chronicillness #chronicillnessawareness #chronicillnesswarrior #chronicillnessfyp #wlw #wlwcouple #wlwtiktok #chronicallyill #chronicillnesslife #youarenotbroken #youarenotaburden #notalldisabilitiesarevisible #invisibleillness #raredisease #rarediseaseawareness #chronicillnesstiktok #sickofbeingsick #chronicillnessreality #chronicillnesscommunity #butyoudontlooksick #teamlil
mwah 🤍🤍 #chronicillnesscommunity #chronicllyill #chronicillness #didsystem #systok #didtok
Just a thought… I’m REALLY good at hyper focusing on things. However, I am a mere human and our brains are conditioned to look for problems, negativity and issues. These two things don’t mix. Now, add in living with a chronic illness and you’re basically pre-programmed to hyper focus on the issues that arise from your illness.  I’ve had #ms for 19 years and there have been lots of ups and downs during that time. When everything is seemingly going wrong it’s SO easy to focus on those things and on those things only. Take it from me - this is a slippery slope. Good news tho! I created The Living w Illness and F*cking Thriving Collective (aka The LIFT Collective or TLC) to demystify living with illness so you can spiral less and be at peace more. 🙌🏼 Watch the video for today’s #TLCtip anddddd if you’re looking for info and tips on navigating life with illness, physically, mentally and emotionally take a looksie at The LIFT Collective (free) resources: 🧡 Explore the playlists on my pg for dozensssss of videos on chronic illness life, mental health, advocating with doctors, fitness, nutrition and specifics about MS 🧡 Go to the link in bio for the TLC Blog to read articles on prepping for dr appts, tracking your symptoms and tons more 🧡 Sign up for my newsletter to get updates on new content and keep in touch   🧡 Have some fun in the TLC Shop - it’s full of apparel, accessories + home goods all designed to make you feel like the chronically ill badass that you are!  Look, living with chronic illness can really suck sometimes, I’m not saying it doesn’t. But I and The LIFT Collective are saying it doesn’t have to suck ALL THE TIME. So here’s to some less sucky moments in 2025!  #chronicallybadass #chronicallyill #chronicillnesslife #mswarrior🧡 #livingwithms #thisisms #chronicillnesscommunity #sickdoesnthavetolooksick #setbacksandcomebacks #msrelapse #mssymptoms #patientleader #mindsetmatters #msstrong #theliftcollective #mslife #msawareness #chronicillnesssupport #multiplesclerosis #invisibleillnesscheck
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Just a thought… I’m REALLY good at hyper focusing on things. However, I am a mere human and our brains are conditioned to look for problems, negativity and issues. These two things don’t mix. Now, add in living with a chronic illness and you’re basically pre-programmed to hyper focus on the issues that arise from your illness. I’ve had #ms for 19 years and there have been lots of ups and downs during that time. When everything is seemingly going wrong it’s SO easy to focus on those things and on those things only. Take it from me - this is a slippery slope. Good news tho! I created The Living w Illness and F*cking Thriving Collective (aka The LIFT Collective or TLC) to demystify living with illness so you can spiral less and be at peace more. 🙌🏼 Watch the video for today’s #TLCtip anddddd if you’re looking for info and tips on navigating life with illness, physically, mentally and emotionally take a looksie at The LIFT Collective (free) resources: 🧡 Explore the playlists on my pg for dozensssss of videos on chronic illness life, mental health, advocating with doctors, fitness, nutrition and specifics about MS 🧡 Go to the link in bio for the TLC Blog to read articles on prepping for dr appts, tracking your symptoms and tons more 🧡 Sign up for my newsletter to get updates on new content and keep in touch 🧡 Have some fun in the TLC Shop - it’s full of apparel, accessories + home goods all designed to make you feel like the chronically ill badass that you are! Look, living with chronic illness can really suck sometimes, I’m not saying it doesn’t. But I and The LIFT Collective are saying it doesn’t have to suck ALL THE TIME. So here’s to some less sucky moments in 2025! #chronicallybadass #chronicallyill #chronicillnesslife #mswarrior🧡 #livingwithms #thisisms #chronicillnesscommunity #sickdoesnthavetolooksick #setbacksandcomebacks #msrelapse #mssymptoms #patientleader #mindsetmatters #msstrong #theliftcollective #mslife #msawareness #chronicillnesssupport #multiplesclerosis #invisibleillnesscheck
There is another way to do business! You can build a business that honors your energy and capacity. For more support, join us in the free Low Energy Entrepreneur Community on Mighty Network! We also have a paid monthlt membership for folks looking for even more support. #lowenergyentrepreneur #chronicillnesscommunity #neurodivergentbusiness #multipassionateentrepreneur
Sometimes, the posts you think are just a rant end up being exactly what someone needs to hear. ❤️ A few days ago, I shared about the struggle with medical bills, and two people reached out to talk about chronic illness. So, here’s your reminder: Just post the content. It might not reach someone today, tomorrow, or even next month—but it WILL reach someone who needs it. 🌟 #ms #invisableillness #msawareness #chronicillness #postthecontent #fypシ #ChronicIllnessCommunity #ShareYourStory #YouNeverKnow #creatorsearchinsights
Replying to @Lĕona (pronounced  Lay-oh-nah) hello fellow AuDHD business owner!!! If any of this resonates with you, I highly encourage you to check out the free low energy entrepreneur community on Mighty Network or our membership. #lowenergyentrepreneur #chronicillnesscommunity #neurodivergentbusiness #neurodivergententrepreneur #creativeentrepreneur #chronicillnessentrepreneur #lowenergy
Today, I received the sweetest surprise— a package from Girls With Guts to celebrate my 90 days as their Social Media Lead Volunteer! It’s such a special moment to reflect on how rewarding it has been to work with an organization that means so much to me and to so many in the chronic illness community. Every post, every story, every campaign we create is aimed at building connection, spreading awareness, and supporting fellow warriors. Seeing the impact has been so fulfilling, and this thoughtful package is just the icing on the cake. To my Girls With Guts team: thank you for trusting me with this role and for celebrating the work we’re doing together. I’m so grateful to be a part of this mission. Here’s to many more months of making a difference! #GirlsWithGuts #ChronicIllnessCommunity #SocialMediaAdvocate #InvisibleDisabilities #GratitudeMoment  #InvisibleDisabilities #ostomypositivity #ostomybag #ostomyawareness #ostomy #ibs #ibstok #ibstiktok #ibd #ibdawareness #cipo #gastroparesis #shortbowelsyndrome #sbs #tubie #tubielife #tpn #spoonie #spoonielife #spooniesoftiktok #spoonietok #disability #disabled #disabilitytiktok #disabilityawareness #disabledtiktok #invisibleillness #zebrastrong #raredisease #chronicallyill #chronicillnesswarrior #chronicfatigue

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