Kyra

chronicillnesslife hashtag performance

#ChronicIllnessLife captures the daily struggles, triumphs, and realities of living with chronic conditions. It fosters community, support, awareness, resilience, advocacy, education, isolation, empowerment, coping strategies, and shared experiences among individuals.
If you want to see part 1, check out this video!  @Kit ✨♿️  And if you want to see part 2, check out this video!  @Kit ✨♿️  MCAS stands for mast cell activation syndrome and can come with a WIDE variety of symptoms and presentations. Disclaimer, having these symptoms doesn’t automatically mean you have MCAS, there are other possible conditions that present similarly so it is worth getting checked out and speaking to an allergist or immunologist if you’re concerned 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
Disclaimer, this is my personal experience, MCAS does vary from person to person and there are a variety of severities, all the way up to anaphylactic reactions.  MCAS stands for mast cell activation syndrom, this is a condition where the mast cells responsible for protecting the body from pathogens are overactive and respond oftentimes without an obvious trigger, releasing histamine and other signals to activate your immune system. This can cause a wide array of symptoms, but the best way I can describe it as someone who has it, it feels like I can have an allergic reaction to anything at anytime, regardless of if I’m actually allergic and even if I’ve never had a reaction to that particular thing before. It can be a real whirlwind 😅 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
If you want to learn more about MCAS, what it is and how it works, check out this video!  @Kit ✨♿️  And if you want to learn more about how MCAS presents and the types of symptoms those with MCAS experience, check out this video!  @Kit ✨♿️  Having these symptoms doesn’t automatically mean you have MCAS, this is just my experience with this condition and the things I used to say before realizing I had it. There are other conditions that look similar to MCAS but with different underlying mechanisms so it’s important to speak to a doctor if you’re concerned 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
Spoon theory is a metaphor to show how those of us with chronic illness and disability have limited energy for daily tasks. Spoons are meant to show how much energy someone has and how much energy something takes comparatively. If you’re curious and want to learn more, check out this video!  @Kit ✨♿️  #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #spoontheory #spoonie #spooniesoftiktok #spoonielife
If you’re curious and want to see part 1, check out this video!  @Kit ✨♿️  Disclaimer, this is my own personal experience w/ MCAS, there is a wide variety of symptoms and each person experiences it differently. Having these symptoms doesn’t automatically mean you have MCAS, but these are possible symptoms of MCAS in my experience 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
If you’re curious and want to see part 1, check out this video!  @Kit ✨♿️  And disclaimer, just bc you have these problems doesn’t automatically mean you have hEDS, this is simply my experience looking back on my life in retrospect now that I have a diagnosis and realizing just how many little things were related to my conditions 😅 however, if you want to learn more information about EDS, I would highly recommend the Ehlers Danlos Society website 🙌 it has a ton of useful information, resources, the diagnostic criteria, and a providers directory ✨ #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
Replying to @👑Ruler of Raccoons 🦝  I hope this helps! Keep an eye out for part 2 where I’ll be discussing all the different symptoms that go along with MCAS as well as some of the different things that can cause these reactions 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
And I’m usually the type to want a deeper massage so I thought this was going to be perfect 😅🤣 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
If you want to learn more about MCAS, check out this video  @Kit ✨♿️  And if you want to learn more about the possible symptoms that go along with MCAS, check out this video!  @Kit ✨♿️  I will be making another video soon talking about how I got diagnosed and how the MCAS diagnostic process operates, so keep an eye out if you’re interested 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome #pots #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome
Replying to @minimosa251 I hope this makes sense, and sorry for using your comment for this 😅 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
Replying to @👑Ruler of Raccoons 🦝  I hope this helps! Sorry for using your comments twice 😅🙌 If you want to see part 1, check out this video  @Kit ✨♿️  MCAS stands for mast cell activation syndrome and is responsible for the overactivation of mast cells which can produce sporadic and often inconsistent allergic reactions. These symptoms can be caused by conditions other than MCAS so be sure to see an allergist or immunologist if you’re concerned.  #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
If you’re curious and want to see part 1, check out this video!  @Kit ✨♿️  And quick disclaimer, this is my personal experience and things I went through bc of my POTS. Having these symptoms doesn’t necessarily mean you have POTS. But, if you’re curious and want to learn more, I highly recommend checking out the Dysautonomia International website, it has a ton of useful information, resources, and a providers directory 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #pots #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #dysautonomia #dysautonomiaawareness #dysautonomiapots
Being chronically ill can be so physically, mentally, and emotionally exhausting 😖 #creatorsearchinsights #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride
My mom has always called me “friend of the friendless” and as a kid, I struggled with that concept a lot. I felt like I could only make friends if they had no other options, I could only be loved as a last resort. But now, I’m starting to see what she meant 💕 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #cptsd #cptsdawareness #cptsdrecovery #cptsdsurvivor #cptsdhealing
Replying to @Allergic to People  If you want to learn more about what MCAS is, check out this video  @Kit ✨♿️  And if you want to learn more about the possible symptoms and triggers that go along with MCAS, check out this video  @Kit ✨♿️  #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
Replying to @climbingtime Hypermobility vs Flexibility If you’re curious about strength training w/ EDS or hypermobility, check out @The Hypermobile Strength Coach she makes amazing content on this topic 🙌 #chronicillness #chronicillnessawareness #chronicallyill #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #hypermobility #hypermobile #flexibility
Replying to @🦇🧚🏻‍♀️CastellVeinya ✍️ the list discussed in the video this is attached to is the diagnostic criteria for hEDS, so all of those “random” questions and “random” positions my doctor was putting me through were all part of the list 🙌 if you’re curious and want to learn more, the Ehlers Danlos Society website is a great source of information and resources ✨ #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
Replying to @nusuk_arts spam this is definitley a nuanced topic but I really hope this helps give some ideas of how I manage meals and cooking while chronically ill 🙌 For me, fed is best, so I honestly don’t always eat the “healthiest” foods. I’m also low income, so frankly, I don’t often have access to fresh produce, quality healthy foods, etc. I try my best to supplement with vitamins and ensure nutritional drinks to make sure I’m still getting the nutrients I need, even when my food doesn’t have much variety.  #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #chronicallyill #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride
If you want to show support, check out @lina🍉 and you can also find her GFM in her profile 🙌 #greenscreen #tiktokban #tiktoker #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride
I feel so incredibly lucky to have people in my life who know me and who make this holiday season feel so magical 🥰 and this isn’t even including two gifts from my fiancé bc they haven’t arrived yet, the first was him bringing my mothers necklace that snapped to a jeweler and getting it fixed for me and the second is an Ehlers Danlos Syndrome Plushie Dreadful 😍😍 I’m so happy 🥰 to be loved is to be seen #christmas #christmashaul #christmastiktok #christmas2024 #christmaspresents #tobelovedistobeseen  #chronicillness #chronicillnessawareness #chronicallyill #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride
#onthisday I can’t believe this is already a year old 😭  If you want to learn more about MCAS (the thing responsible for this reaction) check out this video!  @Kit ✨♿️  If you want to learn more about MCAS symptoms and reactions, check out this video!  @Kit ✨♿️  #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibledisability #invisibleillnessawareness #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
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#onthisday I can’t believe this is already a year old 😭 If you want to learn more about MCAS (the thing responsible for this reaction) check out this video! @Kit ✨♿️ If you want to learn more about MCAS symptoms and reactions, check out this video! @Kit ✨♿️ #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibledisability #invisibleillnessawareness #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome

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