epidermolysisbullosa hashtag performance
#EpidermolysisBullosa: Painful, fragile skin. Rare, genetic blisters. Hope for treatment, advocacy, awareness. Strength, resilience. Living with EB. Challenge, community, education. Daily care struggles. Support needed.
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Prayers for the sweetest, purest soul… no words can express the level of heartache. I wish I had
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@ellianarose6 #ebawareness #epidermolysisbullosa
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eb doesn't just affect their skin on the outside, it also affects them internally. both of my boys c
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Replying to @Tay | SAHM Medical Mom💙 Please, if able, to show support to the Campbell family duri
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Her eyes are beyond beautiful. Say a prayer for her and her family tonight. #EBwarrior #ebawareness
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We will miss you so much Elliana 🥺🥺#epidermolysisbullosa @ellianarose6
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#duet Elliana Rose lost her battle last night. She passed peacefully, wrapped in love. No child sh
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@ellianarose6 your story has changed us all. We will all miss coming to TikTok for your updates and
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just a shout out to all you AMAZING PEOPLE!! this is what community is!! #eb #EPIDERMOLYSISBULLOSA #
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After going thru a super traumatic event. I took it upon myself and challenge that I can do anything
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my older son is autistic and considered non-verbal until people outside the household can understand
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im absolutely loving the amount of awareness thats happening!!! EB is hard to see/live with, but tha
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