Kyra

epidermolysisbullosa hashtag performance

#EpidermolysisBullosa: Rare, painful blistering skin condition. Compassion, awareness, strength, resilience, advocacy. Lives impacted, daily struggles, hope, community support, research needed. Facing EB.
Two tattoos. One for the way I always held her. One for the name I’ll never stop speaking. My firs
401.8k
Two tattoos. One for the way I always held her. One for the name I’ll never stop speaking. My firs
Sweet Ellie Sunday 🫶🏻 you are missed so much baby girl 🥹💔 #LivingForEllie #epidermolysis
381.1k
Sweet Ellie Sunday 🫶🏻 you are missed so much baby girl 🥹💔 #LivingForEllie #epidermolysis
I didn’t stop being her mom when she died. I just became the kind of mom who keeps going with a mi
363.8k
I didn’t stop being her mom when she died. I just became the kind of mom who keeps going with a mi
A butterfly in my hair, a whisper from Ellie. For Hallie Grace, for all the babies with EB. What a b
176.6k
A butterfly in my hair, a whisper from Ellie. For Hallie Grace, for all the babies with EB. What a b
What a gift it was to love you, even for a little while ♥️🦋Sweet Ellie Sunday #LivingForEllie
155.3k
What a gift it was to love you, even for a little while ♥️🦋Sweet Ellie Sunday #LivingForEllie
A little girl’s love for her daddy… forever tucked in his heart. Sweet Ellie Sunday, Father’s
145.4k
A little girl’s love for her daddy… forever tucked in his heart. Sweet Ellie Sunday, Father’s
For the ones we’ve lost, for the ones still here. Until every butterfly baby is known. #goglamforh
127.5k
For the ones we’ve lost, for the ones still here. Until every butterfly baby is known. #goglamforh
Butterflies for Elliana 🫶🏻🦋#LivingForEllie #fyp #epidermolysisbullosa #FindACureForEB #BUTT
120.9k
Butterflies for Elliana 🫶🏻🦋#LivingForEllie #fyp #epidermolysisbullosa #FindACureForEB #BUTT
Miss B was a fiesty girl today!!! She has the sweetest look on her face, even when she’s being spi
107.6k
Miss B was a fiesty girl today!!! She has the sweetest look on her face, even when she’s being spi
10 winners • $1 to enter 🦋💜 Bracelets in honor of Ellie. Live drawing May 31 @ 1PM EST on @E
105.1k
10 winners • $1 to enter 🦋💜 Bracelets in honor of Ellie. Live drawing May 31 @ 1PM EST on @E
We came to Georgia for Hallie Grace. We carried Ellie with us. But this night was for every family t
103.7k
We came to Georgia for Hallie Grace. We carried Ellie with us. But this night was for every family t
Feeling so loved 💛 Thank you to everyone who’s sent a little light our way, your kindness means
96.7k
Feeling so loved 💛 Thank you to everyone who’s sent a little light our way, your kindness means
Does anyone else get sick during stressful times? ? #LivingForEllie #fyp #epidermolysisbullosa #Find
87.9k
Does anyone else get sick during stressful times? ? #LivingForEllie #fyp #epidermolysisbullosa #Find
Sweet Ellie Sunday! Yesterday marked 2 whole months since you’ve left our arms. #epidermolysisbull
85.9k
Sweet Ellie Sunday! Yesterday marked 2 whole months since you’ve left our arms. #epidermolysisbull
Grief is heavy. I’m parenting, aching, and surviving all at once. I’m not okay, and I’m not su
80.9k
Grief is heavy. I’m parenting, aching, and surviving all at once. I’m not okay, and I’m not su
Simple days like this are good for the soul #grateful #LivingForEllie #epidermolysisbullosa #FindAC
77.4k
Simple days like this are good for the soul #grateful #LivingForEllie #epidermolysisbullosa #FindAC
He jumped for the girl who changed everything. Brave like Ellie. 🦋🫶🏻 #LivingForEllie #epi
28.1k
He jumped for the girl who changed everything. Brave like Ellie. 🦋🫶🏻 #LivingForEllie #epi
If you’re still here, THANK YOU 🥹🙏🏼 please be patient with me🤍 i miss yall soo much an
9.9k
If you’re still here, THANK YOU 🥹🙏🏼 please be patient with me🤍 i miss yall soo much an
In 2021 I became part of the constantly growing percentage of Latina women with a degree and also pa
8.3k
In 2021 I became part of the constantly growing percentage of Latina women with a degree and also pa
Video from the ‼️drafts‼️May, 2025. | Im clearing my drafts folder | #epidermolysisbullosa
7.7k
Video from the ‼️drafts‼️May, 2025. | Im clearing my drafts folder | #epidermolysisbullosa
A vulnerable video showing the impact of a deadly condition #epidermolysisbullosa 💔 #therealities
5.4k
A vulnerable video showing the impact of a deadly condition #epidermolysisbullosa 💔 #therealities

start an influencer campaign that drives genuine engagement

Company

HomeCase StudiesReportsBlogCareers

Technology

Fastest Growing