Kyra

hearttransplant hashtag performance

The #hearttransplant hashtag on TikTok showcases powerful stories of hope, resilience, and medical journeys. It connects patients, families, and donors, fostering community support, awareness, and sharing experiences related to heart transplants.
Thank you for watching! @Lauren Romero love you Lu ♥️ #pleasehelp #watchtillend #watchuntiltheend #hearttransplant #heartdisease #openheartsurgery #medicalhelp #fy#greenscreen
I wondered if I’d ever reach this age, and here I am. I am absorbing my blessings, expressing my gratitude to everyone in my life and donor. #40club  #birthdaygirl #capricorn #hearttransplant
It’s like a reward.. 🥹 #HeartFailure #HeartDisease #Cardiomyopathy #PPCM #Pacemaker #BloodClot #AFib #aorticstenosis #rightheartcath #Tavr #hospitallife #icecream #vanderbilt #hospitallife #hearttransplant
I was going to talk about my journal and memory planning over the year, but I became very emotional. Just know that this journal has been an essential outlet for me in 2024. One day, when I'm emotionally ready, I'll read all the entries.  #2024recap #journaling #hearttransplant
Some things should be left unsaid..  Follow my IG: jamiesjourneyy_  #HeartFailure #HeartDisease #Cardiomyopathy #PPCM #Pacemaker #BloodClot #AFib #aorticstenosis #rightheartcath #Tavr #prayers #hearttransplant #vanderbilt #nashvilletn #whatanoddthingtosay
It’s the normalcy found in these little moments that means so much❤️ #lifeaftertransplant #gratefulheart #hearttransplant #toddlermom
Hey friends!  I just wanted to give you all the update I know you guys have been patiently waiting for and I don’t want to make you guys wait any longer because I know how much you all care for me and my family and you guys have been a big part of my heart journey.  Monday I met with the heart transplant team as well as my congenital heart doctor and they decided to admit me into the Cardiac ICU this Sunday. They need to run more tests and procedures on me due to everything that is still going on. I am holding on to a lot of fluid, my prosthetic aorta (TAVR) is severely leaking and is cutting through the wall of my aorta. My heart and lung pressures have been extremely high and once my lung pressure gets to a certain number I’m no longer a candidate for a heart transplant that number is 6 and I am at a 4.  The doctors would like to replace/repair the aorta completely but with my heart being so weak some are unsure if I’ll make it through the surgery and if they will be able to successfully remove me from bypass. The option of them going through my groin to do a TAVR in TAVR would be a safer option however with the prosthetic valve already cutting into the aortic wall they are nervous that any more movement on it can make it tear through that wall and then I would be rushed into emergent open heart surgery.  In the meantime my congenital cardiologist, heart transplant team and valve replacement specialist will be coming up with the safest option for me and while I wait in the hospital they are going to work on moving me to a higher priority status on the heart transplant list.  Thank you for your patience and giving me some personal time with my family to take this all in and spend quality time with those I love before I go back to the hospital. I’ve had an extremely hard 4 months physically, mentally and emotionally. I appreciate each and every one of you that have been there for me during this time and shown up for me. please follow my Instagram incase TikTok does go away  IG: jamiesjourneyy_ ##HeartFailure##HeartDisease##PPCM##AFib##hearttransplant
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Hey friends! I just wanted to give you all the update I know you guys have been patiently waiting for and I don’t want to make you guys wait any longer because I know how much you all care for me and my family and you guys have been a big part of my heart journey. Monday I met with the heart transplant team as well as my congenital heart doctor and they decided to admit me into the Cardiac ICU this Sunday. They need to run more tests and procedures on me due to everything that is still going on. I am holding on to a lot of fluid, my prosthetic aorta (TAVR) is severely leaking and is cutting through the wall of my aorta. My heart and lung pressures have been extremely high and once my lung pressure gets to a certain number I’m no longer a candidate for a heart transplant that number is 6 and I am at a 4. The doctors would like to replace/repair the aorta completely but with my heart being so weak some are unsure if I’ll make it through the surgery and if they will be able to successfully remove me from bypass. The option of them going through my groin to do a TAVR in TAVR would be a safer option however with the prosthetic valve already cutting into the aortic wall they are nervous that any more movement on it can make it tear through that wall and then I would be rushed into emergent open heart surgery. In the meantime my congenital cardiologist, heart transplant team and valve replacement specialist will be coming up with the safest option for me and while I wait in the hospital they are going to work on moving me to a higher priority status on the heart transplant list. Thank you for your patience and giving me some personal time with my family to take this all in and spend quality time with those I love before I go back to the hospital. I’ve had an extremely hard 4 months physically, mentally and emotionally. I appreciate each and every one of you that have been there for me during this time and shown up for me. please follow my Instagram incase TikTok does go away IG: jamiesjourneyy_ ##HeartFailure##HeartDisease##PPCM##AFib##hearttransplant
2024 has been nothing short of miraculous 💫 Here’s to 2025—another year of hope, growth, and endless possibilities. We can’t wait to see what’s in store for our little warrior! 🙏🏽❤️‍🩹 #hearttransplantwarrior #hearttransplantwaitlist #dilatedcardiomyopathyawareness #transplantbaby #baby #hearttransplant #hearttransplantsurvivor #hearttransplantrecipient #heart #transplant #dcm #dilatedcardiomyopathy #pediatrics #pediatriccardiology #pediatriccardiologist #picu #cticu #icu #icunurse #miracle #miraclebaby #pediatrichearttransplant
End stage ❤️ failure on an LVAD at 31 with a rare genetic mutation.  I want to show you guys more of my daily life and what it actually looks like.  Road to transplant doesn’t mean the patient is listed, by the way!   #lvad #heartfailure #dailylife  #lifeupdate #lifechanges #morningvlog #morningwalk #worklife #hearthealth #womenshealth #dailyvlog #dayinmylifevlog #winterfashion #newengland #chronicillness #keepgoingdontgiveup #gratefulheart #organdonation #onedayatatime #listentoyourheart  #hearttransplant #sofiasheart #aheartforsofiahart #CapCut
Follow my IG friends 🥹❤️🫶🏼 My username is jamiesjourneyy_  Love you all so much!!  #HeartFailure #HeartDisease #Cardiomyopathy #PPCM #Pacemaker #BloodClot #AFib #aorticstenosis #rightheartcath #Tavr #hospitallife #prayers #hearttransplant #nashvilletn
get ready with me to go see my heart transplant team ❤️  Follow my IG: jamiesjourneyy_  ##HeartFailure##HeartDisease##Cardiomyopathy##PPCM##Pacemaker##BloodClot##AFib##aorticstenosis##rightheartcath##Tavr##prayers##hearttransplant##nashvilletn##vanderbilt##grwm
#CapCut  Forever putting my faith and trust in you Lord 🥹🤍🙌🏼 #HeartFailure #HeartDisease #Cardiomyopathy #PPCM #Pacemaker #BloodClot #AFib #aorticstenosis #rightheartcath #Tavr #hospitallife #prayers #hearttransplant #nashvilletn #vanderbilt
It’s been a hard month for us ok.. 😅 Follow my IG: jamiesjourneyy_  #HeartFailure #HeartDisease #Cardiomyopathy #PPCM #Pacemaker #BloodClot #AFib #aorticstenosis #rightheartcath #Tavr #prayers #hearttransplant #vanderbilt #nashvilletn #RH #restorationhardware #dinner #yum #yummyfood
How my days have been looking lately, I’m laying it all down at your feet lord.  I have a lot coming up, I’ve cherished every single one of you who have supported and followed my journey on here, with this ban I’m not sure if TikTok is going away for good but just in case please give me a follow on my instagram jamiesjourneyy_  I love you all!  #HeartFailure #HeartDisease #Cardiomyopathy #PPCM #Pacemaker #BloodClot #AFib #aorticstenosis #rightheartcath #Tavr #prayers #hearttransplant #vanderbilt #nashvilletn #godisgood
Home with my loves, I’m convinced there is no better feeling than this. I meet with the heart transplant doctors today to go over more options.. prayers that this appointment gives us clarity on what the right next step is. God is good always, he will see me through this.  Follow my IG for updates jamiesjourneyy_  #HeartFailure #HeartDisease #Cardiomyopathy #PPCM #Pacemaker #BloodClot #AFib #aorticstenosis #rightheartcath #Tavr #prayers #hearttransplant #nashvilletn #vanderbilt
I mean what else is there to say? 😅 Follow me on IG: jamiesjourneyy_  #HeartFailure #HeartDisease #Cardiomyopathy #PPCM #Pacemaker #BloodClot #AFib #aorticstenosis #rightheartcath #Tavr #prayers #hearttransplant #vanderbilt #nashvilletn
thank you donor family and doctors. we love you forever.  #birthday #fyp #up #hero #organdonor #Love #hearttransplant #awareness #organdonation
Such a weird experience today for a doctor to agree with me about… well everything I said… and take the time to listen to all of the details ❤️ #chronicillness #lifeaftertransplant #hearttransplant #kidneydisease
Let’s still have hope it stays but just incase follow me on IG jamiesjourneyy_  Love you all!  #HeartFailure #HeartDisease #PPCM #AFib #hearttransplant #Cardiomyopathy #Pacemaker #BloodClot #aorticstenosis #rightheartcath #Tavr #prayers
#hearttransplant #hearttransplantsurvivor #hearttransplantrecipient #heartandkidneytransplant #heartandkidneytransplantmiracles #methodisthospital #methodistmedicalcenter #houstonmethodisthospital #bronchitis #bronchioli#bronchiolite
I’m heartbroken goodbye is really coming… Thank you to everyone who has been here for me along the way ❤️ #lifeaftertransplant #hearttransplant #chronicillness #community

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