Kyra

hospitaltok hashtag performance

#HospitalTok showcases real-life experiences from healthcare professionals, patients, and hospital staff. It highlights medical stories, humor, patient care insights, challenges, and the emotional aspects of working in a hospital environment.
Brian MRI for aspirating baby & potential Chairi Malformation part 3 Vlog ❤️‍🩹 •part 1 & Part 2 is UP!  •For those wondering why this is “dragged out”- please look at it this way: I am sharing to encourage and empower other parents to use my content as a resource to help them advocate in the children getting answers if they are in a situation I’m in.  I’m a first time medical momma and this whole appointment process is overwhelming & scary. Me sharing this experience step by step is for those who need it as a resource.  I want to make it extremely clear that me sharing my daughters test results from her MRI or ANY Other medical test at that, is not owed to the general public. I share when I am ready because again, If I can help anyone out going through the same things we are, I want to help advocate.  But I won’t be sharing until I’m ready and I’m not going to share heavy news we get from doctors in 20 second rushed clips at the end of my videos. BFFR.  •negative comments deleted.  #brainmri #mri #chairimalformation #medicaljourney #aspirating #aspiration #brainsurgery #surgerytok #chronicillness #chronicallysick #advocate #advocatelikeamother #mirandahowell #momvlog #Vlog #ditlvlog #hospitalvlog #hospitaltok #childrenshospital
Brain MRI pt 2 Vlog ❤️‍🩹 •YES we have results back, I will share them part 3! (Sorry I’m not making a 4 minute long video, no one wants that! 😅) •I will address the person who decided to take my private scans of my daughters MRI & start to share those personal details all over my tiktok to make me look bad in a separate video 👿  •negative comments deleted/blocked.  I UNDERSTAND this is controversial topics bc it involves my family, but I am not documenting to do anything other than spread awareness and help other parents going through the same thing.  As a parent, before I had any experience in hospital appointments & what to expect, I was nervous & full of anxiety. I make these videos for parents who felt what I did & to prepare for what to expect.  •to follow along my daughters journey, watch the medical journey playlist.  Also in light of the B A N, please follow me on IG (mirandaxhow2.0 ) (for now) I will be using that also as a way to connect further!  #medicaljourney #brainmri #mri #chairimalformation #aspirating #aspiration #surgerytok #brainsurgery #chronicillness #chronicallysick #advocate #advocatelikeamother #mirandahowell #momvlog #Vlog #ditlvlog #hospitalvlog #hospitaltok #childrenshospital #pulmonary #pulmonologist
Replying to @Samantha Kathleen to the Chairi Malformation community, those affected any chronic illness or medical issue, and the parents fighting and advocating for your babies…. ❤️‍🩹 As for the person who left the comment… enjoy this minute long video of me playing with my daughter .  I’m truly sorry you have hurt in the past and you feel the need to take it out on someone just trying to spread awareness, empower other parents and encourage them to advocate for their babies. My page is a resource for those going through similar experiences I am going through & a safe space for those who need to see this. For everyone one person like you who might not understand, there is a whole community that does & appreciated it ♥️ #brainmri #mri #chairimalformation #medicaljourney #aspirating #surgerytok #brainsurgery #chronicillness #chronicallysick #advocate #advocate #advocatelikeamother #mirandahowell #momvlog #Vlog #hospitalvlog #hospitaltok #childrenshospital #medicalparent #medicalcommunity
When we weren’t able to log in Matt had really realized how much everyone’s comments & support got him through the last couple years of uncertainty & all of the nights he spent in the hospital & he had thanked me for always being his voice on here but of course he had faith we’d get our community back in no time. I wish I had faith like him because I was stressed but we’re thankful to be back & thankful to be able to connect with people who understand this challenging life we’re living 🤍  #campbelllchaos #chronicillness #caregiver #invisableillness #hospitaltok #mogad #autoimmunedisease
Enjoying time “off” with an autoimmune disease = pay for it later. 😭🫶🏻 Matt kidneys aren’t happy. he truly had hope he could just skip one infusion to have a fun family day but he was in pain & now we’re in the ER 😔#campbelllchaos #chronicillness #caregiver #invisableillness #hospitaltok
This one was Matt’s idea 🙁 #campbelllchaos #chronicillness #caregiver #invisableillness #mogad #autoimmunedisease #hospitaltok
She Okk yall😭 Been here all dayyyy #hospitaltok #freemyman #relatable #bhodgyalcecee
This man is the definition of will power. They told him he would recover and live a healthy life after what they believed was an “ADEM” attack only to find out he has a rare autoimmune disease called MOGAD & to make it even less treatable he has an abnormal case with reoccurring flare ups, chronic kidney failure & he doesn’t respond well to any treatment & his kidneys are starting to no longer respond to his weekly infusions that were helping them function & keeping him alive & out of the hospital.  But through it all this man has never gave up & I will forever be grateful for that. Watching the videos of him squatting in the ER & having his first immuno suppressant therapy I remember how hard those times were on him mentally & even though the constant pain & fatigue weighs him down every day I am still so proud of how far he’s come 🥹🙏🏻😭 #campbelllchaos #chronicillness #mogad #raredisease #rarediseaseawareness #caregiver #hospitaltok #mattystrong #campbellstrong
Incase no one’s told you today, your pain is valid. Even when you are pushing through it with a smile on your face & if you can’t fake a smile through it, that’s okay. 🫂 #campbelllchaos #chronicillness #caregiver #invisableillness #mogad #autoimmunedisease #hospitaltok

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