Kyra

hypermobilespectrumdisorder hashtag performance

#hypermobilespectrumdisorder refers to an array of conditions linked to joint hypermobility. It encompasses symptoms such as pain, fatigue, and coordination issues, affecting individuals’ daily activities and overall quality of life.
If anything in this video resonates, message us the word “Bendy,” and we will send you no cost information about connective tissue hypermobility: what it is and how to test for it. Hypermobility often refers to genetic differences in a person’s connective tissue. It does not refer to flexibility, although increased flexibility can be a symptom of connective tissue hypermobility. There are some very flexible people on social media. Many have had to put in YEARS of work to achieve their flexibility. Meanwhile, there are some individuals who have always been able to drop into the splits or put their arms behind their heads without ever having to formally train those movements.  However, people who are naturally “flexible” often experience lots of joint pain. People with hypermobile connective tissue disorders will usually present with more than just musculoskeletal issues - like cardiovascular issues, immune response issues (MCAS), dysautonomia, POTS, skin issues, eye and teeth problems, and the list goes on.  Individuals with connective tissue disorders will benefit from lifestyle adjustments: exercise, eating a whole food diet, drinking plenty of water, improving sleep, reducing stress, and moving more throughout the day. This is true of pretty much everyone, actually. We teach people to do this through our Hypermobility program (link in bio).  Disclaimer: you can be super flexible in one joint because of an injury or sport. For instance, baseball pitchers can have a VERY flexible shoulder, and someone who has severely sprained their ankle in the past may have a VERY flexible ankle as a result of lengthened ligaments.  Both Katie and I have been diagnosed with Hypermobile Ehlers-Danlos Syndrome #hypermobility #hsd #heds #hypermobilespectrumdisorder #hypermobileehlersdanlossyndrome #hsd #hypermobile #zebrastrong #connectivetissue
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If anything in this video resonates, message us the word “Bendy,” and we will send you no cost information about connective tissue hypermobility: what it is and how to test for it. Hypermobility often refers to genetic differences in a person’s connective tissue. It does not refer to flexibility, although increased flexibility can be a symptom of connective tissue hypermobility. There are some very flexible people on social media. Many have had to put in YEARS of work to achieve their flexibility. Meanwhile, there are some individuals who have always been able to drop into the splits or put their arms behind their heads without ever having to formally train those movements.  However, people who are naturally “flexible” often experience lots of joint pain. People with hypermobile connective tissue disorders will usually present with more than just musculoskeletal issues - like cardiovascular issues, immune response issues (MCAS), dysautonomia, POTS, skin issues, eye and teeth problems, and the list goes on.  Individuals with connective tissue disorders will benefit from lifestyle adjustments: exercise, eating a whole food diet, drinking plenty of water, improving sleep, reducing stress, and moving more throughout the day. This is true of pretty much everyone, actually. We teach people to do this through our Hypermobility program (link in bio).  Disclaimer: you can be super flexible in one joint because of an injury or sport. For instance, baseball pitchers can have a VERY flexible shoulder, and someone who has severely sprained their ankle in the past may have a VERY flexible ankle as a result of lengthened ligaments.  Both Katie and I have been diagnosed with Hypermobile Ehlers-Danlos Syndrome #hypermobility #hsd #heds #hypermobilespectrumdisorder #hypermobileehlersdanlossyndrome #hsd #hypermobile #zebrastrong #connectivetissue
There are other videos on this page about my own diagnostic process including having a LOX gene mutation. I could make a whole separate video on barriers to care, why genetics would be important for family planning in my own case etc. #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #hypermobility #heds #hypermobilespectrumdisorder #connectivetissuedisorder
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There are other videos on this page about my own diagnostic process including having a LOX gene mutation. I could make a whole separate video on barriers to care, why genetics would be important for family planning in my own case etc. #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #hypermobility #heds #hypermobilespectrumdisorder #connectivetissuedisorder
Chances are if youve accessed a care network at some point in your life whether that be an organized network or just a casual one. Attitudes and treating conditions like they are just a silly little thing ABSOLUTELY impacts peoples ability to get care both within the healthcare system and outside of it. Pls note. This video is only about flippant attitudes of health conditions. It is NOT about all the other things that limit ppls access to care. #heds #hypermobileehlersdanlossyndrome #ehlersdanlos #ehlersdanlossyndrome #hypermobility #hypermobilespectrumdisorder #carenetworks #reciprocalcare
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Chances are if youve accessed a care network at some point in your life whether that be an organized network or just a casual one. Attitudes and treating conditions like they are just a silly little thing ABSOLUTELY impacts peoples ability to get care both within the healthcare system and outside of it. Pls note. This video is only about flippant attitudes of health conditions. It is NOT about all the other things that limit ppls access to care. #heds #hypermobileehlersdanlossyndrome #ehlersdanlos #ehlersdanlossyndrome #hypermobility #hypermobilespectrumdisorder #carenetworks #reciprocalcare
real time convincing myself to use a mobility device that is literally there to help me 🫠 #disabled #mobilityaid #cane #hsd #hypermobilespectrumdisorder #ableism #jaym0v
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real time convincing myself to use a mobility device that is literally there to help me 🫠 #disabled #mobilityaid #cane #hsd #hypermobilespectrumdisorder #ableism #jaym0v

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