Kyra

ehlersdanlos hashtag performance

#EhlersDanlos: Raising awareness, showcasing hypermobility, chronic pain, dislocations, skin fragility, fatigue, and daily struggles. Connecting community, sharing experiences, seeking support, and advocating for diagnosis.
Always welcome but never required to stay🫶 #chronicillness #chronicallyill #ci #tubefed #tubefeed
Growing pains are apparently not normal #growingpains #ehlersdanlos #ehlersdanlossyndrome
My husband, my nurse, my world, and my safe place @michaelsornatale❤️ Had a presyncope episode a
2.3m
My husband, my nurse, my world, and my safe place @michaelsornatale❤️ Had a presyncope episode a
Interesting experience to be analyzed and hear “yup, that’s no good” #greenscreen #fyp #fypシ
Throwback to one of the most awkward doctors appointments #ehlersdanlos #ehlersdanlossyndrome #edsaw
Replying to @ꨄ dramatic tummy over here #chronicillness #chronicallyill #ci #tubefed #tubefeeding
Very cute little vest they gave me #chronicillness #chronicallyill #ci #tubefed #tubefeeding #gjtube
program giveaway! Link to enter is in bio! I cannot keep up with the comments so please let others k
333.7k
program giveaway! Link to enter is in bio! I cannot keep up with the comments so please let others k
Do you have any of these issues? You may have EDS.I Have Classic Ehlers Danlos Syndrome with Marphan
299.2k
Do you have any of these issues? You may have EDS.I Have Classic Ehlers Danlos Syndrome with Marphan
disclaimer: just because you’re hypermobile, it does NOT mean you have EDS!! i am professionally d
229.0k
disclaimer: just because you’re hypermobile, it does NOT mean you have EDS!! i am professionally d
Replying to @Ryan Lauer omw to go get more😎 #chronicillness #chronicallyill #ci #tubefed #tubefee
At least I have stickers #chronicillness #chronicallyill #ci #tubefed #tubefeeding #gjtube #gp #gast
Replying to @falafelwaffle01 @Briana Williams SURPRISEEE #chronicillness #chronicallyill #ci #tubefe
“But we might still have to cath”🤩 #hospital #inpatient #er #icu #chronicillness #infections
I’ve got a titanium clip in there now😃 #chronicillness #chronicallyill #ci #tubefed #tubefeedin
@Briana Williams Ohio is not real #chronicillness #chronicallyill #ci #tubefed #tubefeeding #gjtube
Replying to @Mackenzie Cogger feel like a new woman #chronicillness #chronicallyill #ci #tubefed #tu
Replying to @maggie not sure why it’s green but yk #chronicillness #chronicallyill #ci #tubefed #t
Replying to @Lucas handy little tube #chronicillness #chronicallyill #ci #tubefed #tubefeeding #gjtu
Replying to @Stephanie🧿 yes I still sleep in a hammock 5 years later! #hammock #ehlersdanlos #ehl
@Briana Williams @maggie you’re welcome😎 #chronicillness #chronicallyill #ci #tubefed #tubefeed

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