Kyra

ehlersdanlossyndrome hashtag performance

#EhlersDanlosSyndrome: Painful, invisible illness. Hypermobility, dislocations, fragile skin. Chronic fatigue, often misunderstood. Seeking awareness, community, support, and advocacy. Difficult diagnosis, challenging daily life.
My husband, my nurse, my world, and my safe place @michaelsornatale❤️ Had a presyncope episode a
2.1m
My husband, my nurse, my world, and my safe place @michaelsornatale❤️ Had a presyncope episode a
Women deserve better from us #littlemissdiagnosed #ehlersdanlos #ehlersdanlossyndrome #pots #hashimo
It was pretty rude tbh  #chronicillness #hospital #raredisease #crps #gastroparesis #dysautonomia #i
My babyyyy #chronicillness #chronicallyill #ci #tubefed #tubefeeding #gjtube #gp #gastroparesis #tub
Nothin like a fresh clean tube #greenscreen #chronicillness #chronicallyill #ci #tubefed #tubefeedin
#tanamongeau #fyp #brookeschofield #ehlersdanlossyndrome  #cancelledpod #cancelledpodcast
Rip #chronicillness #chronicallyill #ci #tubefed #tubefeeding #gjtube #gp #gastroparesis #tubie #med
Anyone who leaves a hate comment, be prepared to be tagged in furry infl4tion videos tonight. 🫶�
136.9k
Anyone who leaves a hate comment, be prepared to be tagged in furry infl4tion videos tonight. 🫶�
Definitely my worst birthday ever, and it only got worse from there. But having dealt with this horr
134.1k
Definitely my worst birthday ever, and it only got worse from there. But having dealt with this horr
Replying to @Adeline maybe Suni tries to steal my bagels #chronicillness #chronicallyill #ci #tubefe
Next challenge is not eating anything that will flare up my mast cells😃 #chronicillness #chronica
I’m scared #chronicillness #chronicallyill #ci #tubefed #tubefeeding #gjtube #gp #gastroparesis #t
I feel like tummy access might trump any other aspect #chronicillness #chronicallyill #ci #tubefed #
Other things I wish people knew about hEDS/HSD:  While it can have broad impacts and can be frustrat
100.7k
Other things I wish people knew about hEDS/HSD: While it can have broad impacts and can be frustrat
Replying to @maggie not sure why it’s green but yk #chronicillness #chronicallyill #ci #tubefed #t
my face watching every video under #ehlersdanlossyndrome : 😀😀
Replying to @fish you guys make me giggle #chronicillness #chronicallyill #ci #tubefed #tubefeeding
Someone tell me it’s not a worm #greenscreenvideo #chronicillness #chronicallyill #ci #tubefed #tu
My doctor wanted me to do a barium follow through but I said absolutely not #chronicillness #chronic
Replying to @STEPHENIE LOPEZ mwah❤️ #chronicillness #chronicallyill #ci #tubefed #tubefeeding #g
@Becca MWAH THANK YOU I LOVE YOU #chronicillness #chronicallyill #ci #tubefed #tubefeeding #gjtube #

start an influencer campaign that drives genuine engagement