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chiari hashtag performance
#Chiari: Brain malformation awareness, advocacy, support, headaches, surgery, decompression, symptoms, pain, MRI, diagnosis, living with, education, community, rare condition, research, strength, resilience, hope.
97.1k
Forever holding space for this little girl 💜🧠🫶🏼
#chiarimalformation
#chiari
#chiarimalfo
24.7k
I have an entire list on my notes app 😭😂
#chiari
#chiarimalformation
#chiarimalformationawaren
15.7k
Pulmonary Appointment & the Questions I asked ❤️🩹 (Yes there will be another video with th
8.5k
I’ll do it with a smile too.
#chiarimalformation
#chiari
#complexchiari
#chiarimalformationawaren
5.8k
It’s been awhile since I’ve talked about my pregnancy/ birth story with Chiari.
#chiarimalformat
5.0k
Replying to @Ashleigh Till it’s kind of technical but you are welcome to download this white paper
4.7k
You know your body best. NEVER stop advocating.
#medicaltrauma
#chiarimalformation
#chiari
#complexc
4.0k
Back in February I went to the ER for a migraine because my doctor told me to go in to rule out any
2.4k
Forever why I educate 💜 Find the RIGHT surgeon and make sure you check for EVERYTHING comorbid fi
1.9k
i cannot wait to have them out though they’re awful
#chiarimalformation
#surgeryrecovery
#brainsur
1.8k
Things more neurosurgeons need to tell us. Shoutout to @Natalie because I got this video idea from h
1.3k
Replying to @housepartyfit ooh, so almost very sorta close!
#chiari
#brain
#malformation
#medicalc
1.1k
Replying to @freshfromthetoaster Pretty rough to talk about, but here’s why I’ll never receive
978.0
NASA plz let me volunteer as tribute
#chiari
#chiarimalformation
#chiarimalformationawareness
#compl
934.0
He was supposed to be watching me attempt the new Cupid shuffle 🤣 High kicks after brain surgery
849.0
This mindset is changing my life
#chiarimalformation
#chiari
#chiarimalformationawareness
#complexch
802.0
Bigfoot Open house and 4 week post op update
#monstertrucks
#chiari
#surgery
#chiarimalformation
#c
773.0
Forever thankful for this day before my 4th brain surgery in September 💜
#chiari
#chiarimalformat
732.0
Symptoms of Severe Chiari Got Me Like 😭
#symptom
#symptoms
#eds
#chiari
#chiarimalformation
#Arno
729.0
My head hurts.
#autonomicdysfunction
#centralnervoussystem
#autonomicneuropathy
#pots
#autoimmuneau
558.0
“Yeah, the only thing keeping these tracks on the train Knowin' I'm a little crazy, but the world'
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