Kyra

eds hashtag performance

#eds: Mysterious chronic illness, pain, fatigue, hypermobility, dislocations, diagnosis journey, zebra stripes, advocacy, community, support, awareness, living with it, struggles, challenges.
Forever holding space for this little girl 💜🧠🫶🏼 #chiarimalformation #chiari #chiarimalfo
Episode Diaries: Fainting Around Skydivers @Skydive Danielson #fypシ #trending #foryoupage #chronic
My first adult job purchase! I’ve been dying to get this chair for years now and with a new job, I
44.4k
My first adult job purchase! I’ve been dying to get this chair for years now and with a new job, I
If you have HSD (hypermobile spectrum disorder)  or hypermobile ehlers danlos syndrome (hEDS) stop l
44.0k
If you have HSD (hypermobile spectrum disorder) or hypermobile ehlers danlos syndrome (hEDS) stop l
✨God only gives his hardest battles to his strongest soldiers.✨  🙄 Ummm…I don’t even reca
40.4k
✨God only gives his hardest battles to his strongest soldiers.✨ 🙄 Ummm…I don’t even reca
Life can be so unfair, but his love helps me through it. #potsawareness #eds #mcas #servicedog #fory
Replying to @chronicmads   Dear your mom, your kid is in their 20s. This should be their decision. Y
33.6k
Replying to @chronicmads Dear your mom, your kid is in their 20s. This should be their decision. Y
We became friends in such an unconventional way but I wouldn’t change it for anything. We have the
29.0k
We became friends in such an unconventional way but I wouldn’t change it for anything. We have the
Last night’s turn of events 😒 #epilepsy #epilepsyawareness #eds #ehlersdanlos #ehlersdanlossynd
With all the past scar tissue and lack of access in my chest, the infected line wasn’t removed lik
25.9k
With all the past scar tissue and lack of access in my chest, the infected line wasn’t removed lik
Sometimes MyChart is unhinged NGL #connectivetissuedisorder #chronicillness #eds #piccline #centrall
Without him, I could’ve fainted and hit my head while I showered. I am able to sit in the shower b
21.9k
Without him, I could’ve fainted and hit my head while I showered. I am able to sit in the shower b
Chronic Illness accesories that just make sense 😌 #Tatcha #fypシ #fy #chronicillness #eds #chron
Honestly, my bad for thinking an old white man would be willing/able to help me in any way shape or
19.8k
Honestly, my bad for thinking an old white man would be willing/able to help me in any way shape or
Measuring my mouth! #Mouth #Tongue #Lips #Teeth #Measuring #LongTongue #TongueTricks #LongTongue #ED
if you’re #hypermobile you need one of these @Tab Buddies!  #eds #fyp #chronicillness #raredisease
“𝐍𝐨! 𝐈 𝐝𝐢𝐝𝐧’𝐭 𝐦𝐞𝐚𝐧 𝐥𝐢𝐭𝐞𝐫𝐚𝐥𝐥𝐲.”�
16.4k
“𝐍𝐨! 𝐈 𝐝𝐢𝐝𝐧’𝐭 𝐦𝐞𝐚𝐧 𝐥𝐢𝐭𝐞𝐫𝐚𝐥𝐥𝐲.”�
I'm not sure what other benefits people think we're getting 😂 Even though I technically CAN walk
14.7k
I'm not sure what other benefits people think we're getting 😂 Even though I technically CAN walk
i’ve had my feeding tube for a month today 🤯  #chronicillness #raredisease #fyp #gastroparesis
This is ONLY for those who have an official diagnosis. I often think of the women before me in my fa
13.9k
This is ONLY for those who have an official diagnosis. I often think of the women before me in my fa
I have a genetic condition called hypermobile Ehlers-Danlos Syndrome (hEDS), a complex connective ti
10.9k
I have a genetic condition called hypermobile Ehlers-Danlos Syndrome (hEDS), a complex connective ti

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