Kyra

eds hashtag performance

The TikTok hashtag #eds typically features content centered around Eating Disorders, sharing personal stories, awareness, recovery journeys, supportive communities, educational resources, mental health discussions, body positivity, coping strategies, and advocacy efforts.
He is my hero. Part 2 will be posted soon.  #servicedog #pots #mcas #eds #ist #servicedogawareness #disabilityawarness #foryou #fyp
While I understand the holidays can be full of stress, lets not take it out on those who are just trying to survive their normal days. 🥹 I believe they felt like taking out their frustrations on me and my dog, even though they didnt know whsg exactly to say/argue. #foryou #fyp #karen #servicedog #servicedogawareness #pots #eds #mcas #ist
TikTok might be on its way out, but before it goes, I need to share this with you: Most content creators talking about their struggles with ADHD, anxiety, migraines, POTS, mold exposure, MS, or EDS also have something their doctors never caught—undiagnosed binocular vision dysfunction (BVD). Your doctors didn’t test for it, and that’s why the symptoms persist. Treating BVD with prism glasses and vision therapy could be the missing piece in your journey to feeling better. Let’s start the conversation that your doctors missed. 🌐 Learn more or schedule a consultation: www.vividvisionsoptometry.com/appointments 📍 Located in Valencia, CA. Offering virtual therapy and consultations to help you find the right care. #BinocularVisionDysfunction #BVD #ADHD #Migraines #Anxiety #POTS #MS #EDS #PrismGlasses #VisionTherapy #BehavioralOptometry #VividVisionsOptometry
It’s a love hate relationship with my sootcase 🤷‍♀️  #ilikemysootcáse #notreally #professionalpatient #teamtricia #terminallytricia #justlifesupport #ventilator #mito #mcas #eds #cvid #trach #intestinalfailure #respiratoryfailure
I love him🥹    VD: Tayler, a young white thin woman with medium length brown hair, using a walker and cane in a store with her grandpa and husband. The text reads, “when your current mobility aid isn’t cutting it so your grandpa gives you his (white heart)”   #chronicillness #eds #ehlersdanlossyndrome #disabled #disability #chronicpain #dynamicdisability #pots
Merry Christmas everybody! 🎄 This dance nearly did me in! I messed up a few parts but I’m pretty sure it’d kill me if I tried to do it again, so enjoy! 😆 #merrychristmas #happyholidays #teamtricia #terminallytricia #dancingthroughthepain #danceitout #danceon #justlifesupport #ventilator #mcas #mito #eds #cvid #trach #intestinalfailure #respiratoryfailure
Part 2 from my episode the other day. If you haven’t seen part 1 please feel free to go watch it before watching this one. ❤️❤️  Going through this multiple times a day is my reality. It sucks. It’s frustrating, and makes you feel so.. weak. I have to be so careful when it comes to just doing simple tasks. I used to be healthy, and now.. I can barely stand up and walk. This condition takes away so much. Bailey is my guardian, and my rock. I could not handle this without him. His love for me is what truly keeps me going. Waking up knowing he is there, helps me grasp that I’m okay. He grounds me in so many ways. Having a service dog has literally improved my quality of life, and I couldn’t imagine doing this alone.  - -#servicedog #pots #mcas #eds #ist #servicedogawareness #disabilityawarness #foryou #fyp
Replying to @Angie 💫  ••• #kendramatthies #storytime #mua #makeupartist #fyp #tiktok #chronicillness #pots #mcas #eds #heds #SmallBusiness
I go out of my way to choose embarrassing thumbnails just for you! #happynewyear #raredisease #chronicillness #chronicpain #port #powerport #eds #ehlersdanlos #autoimmunedisease
I am fighting it. I don’t want to get to that point. I’m taking soooo many vitamins #fyp #foryou #mobilityaid #chronicillness #chronicpain #pots #eds #mcas #elhersdanlossyndrome #wheelchair #cane
You know when doctors look at eachother with wide eyes silently? Yeah… #fyp #beatboxingpuppy #disability #disabled #eds #ehlersdanlos #ehlersdanlossyndrome #veds #vascularehlersdanlos #heartmonitor #heds #hypermobileehlersdanlossyndrome
How can you help service dogs? Share, Comment, and correct misinformation when you see it. Those who read the incorrect information and believe it’s true are those who are yelling at disabled individuals for proof of registration for their service dog. I had to pack a bunch of info in one video. So if you guys have further questions, please comment them below. ❤️ - #foryou #fyp #servicedog #servicedogawareness #pots #eds #mcas
Replying to @Morgan Elfstrom I swear this man needs to be sponsored by @Momcozy Official 😂 #momcozypillow #ehlersdanlos #eds #zebrastrong #pregnancypillow
when I look up how to crack your SI joint they tell you to lay and twist BUT THATS NOT THE RIGHT SPOT. it’s lower, like at the top of the 🍑crack   VD: Tayler, a young white thin woman with medium length brown hair, doing strange poses on the floor sped up and the text reads, “can someone please tell me how to crack my pelvis? the pain is right above my tailbone and I feel like I’m on the brink of popping it all the time. I’ll casually move and be frozen with pain. Sometimes I can balance on my tailbone just right or lay down and my tailbone just pops and I get relief. HOW DO I RECREATE THIS?!”   #eds #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #heds #hypermobility #hsd
Replying to @freefolkknits You guys asked for keychain options for the Tab Buddy XL, and now they’re here! All of our Tab Buddy XL Colors now come with a keyring hole, and if you plan to bring it on the go you can grab an optional easy-open keychain clasp separately in the shop! Keychain holes also will be added to all our XL designs soon, so keep watch for that drop as well! #tabbuddies #tabbuddyxl #accessibility #keychain #nails #arthritis #carpaltunnel #fibromialgia #eds #hypermobility #newyearnewaura
@Stretch Pad Scrubs learn how to properly walk with a cane!   Using mobility aids can be intimidating, we already have to juggle the societal judgements, so using it in a way that will actually help and not hurt shouldn’t be an added stressor!   I love my fashionable canes that are functional but also allow some personalization and creativity with style💅   VD: Tayler, a young white thin woman with medium length brown hair, stitching a video of a man using a cane. She demonstrates how to use a cane as described in the video.    #mobilityaid #eds #ehlersdanlossyndrome #cane #hypermobility #chronicillness #chronicpain #pots
im traveling a lot this month and its always made me anxious, you never know how you’ll feel, what will happen, etc. here are some tips and tricks I’ve learned when traveling with chronic illness.    I also have a google doc in my bio that outlines the more technical aspects like TSA cares and even talks about traveling with your own mobility aids or wheelchairs and how to keep them safe and from being damaged.    Traveling would not be possible without all of my tools such as @MY OBI , @Somedays | Period Pain Relief , @fashionablecanes, sensory aids, and all of the accessible services available.    VD: Tayler, a young white thin woman with medium length brown hair, in multiple clips showcasing tools for traveling which include, “extra medical bags, you are allowed extra medical carry ons and checked bags for no extra charge. TSA cares, you can request TSA agent assistance through security if you have medical supplies, medical devices, communication differences, or other concerns that could make going through security more difficult. Allow for extra time. Layer clothing. Preboarding. Myobi. Mobility aids, wheelchair services,  you can request a wheelchair on your flight reservation and they’ll be waiting for you after you land. You can either be escorted or use the wheelchair on your own. Pain management and medication. Snacks. Sensory aids. and sometimes things just happen that you can’t avoid and don’t have control over, and that’s okay, you’ll get through it! Being prepared is all you can do.”   #chronicillness #eds #ehlersdanlossyndrome #disabled #disability #chronicpain #dynamicdisability #invisibledisability #endo #endometriosis #pots #mcas #ostomy
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im traveling a lot this month and its always made me anxious, you never know how you’ll feel, what will happen, etc. here are some tips and tricks I’ve learned when traveling with chronic illness. I also have a google doc in my bio that outlines the more technical aspects like TSA cares and even talks about traveling with your own mobility aids or wheelchairs and how to keep them safe and from being damaged. Traveling would not be possible without all of my tools such as @MY OBI , @Somedays | Period Pain Relief , @fashionablecanes, sensory aids, and all of the accessible services available. VD: Tayler, a young white thin woman with medium length brown hair, in multiple clips showcasing tools for traveling which include, “extra medical bags, you are allowed extra medical carry ons and checked bags for no extra charge. TSA cares, you can request TSA agent assistance through security if you have medical supplies, medical devices, communication differences, or other concerns that could make going through security more difficult. Allow for extra time. Layer clothing. Preboarding. Myobi. Mobility aids, wheelchair services, you can request a wheelchair on your flight reservation and they’ll be waiting for you after you land. You can either be escorted or use the wheelchair on your own. Pain management and medication. Snacks. Sensory aids. and sometimes things just happen that you can’t avoid and don’t have control over, and that’s okay, you’ll get through it! Being prepared is all you can do.” #chronicillness #eds #ehlersdanlossyndrome #disabled #disability #chronicpain #dynamicdisability #invisibledisability #endo #endometriosis #pots #mcas #ostomy
In all reality though, this disorder isn’t all about being bendy…it comes with a huge range of negative symptoms. However, we gotta make light of our struggles sometimes! I used to cheer, dance and do contortion with aerial silks. Hopefully one day I can get fully back into some of it. #fyp #fy #foryoupage #tiktok #chronicillness #chronicillnessawareness #chronicallyill #chronicillnesswarrior #ehlersdanlos #ehlersdanlossyndrome #eds #heds #hypermobility #hypermobileehlersdanlossyndrome #hypermobile #chronicpain #cheer #cheerleader #dance #dancer #contortion #silks #aerialsilks #bendy
January 18th, 2pm-5pm, PDX - “Blooming Buds” RSVP link in bio 🔗 masks are highly encouraged to keep our friends safe! @emma    VD: clips of an outdoor picnic with 25-50 people in a park. The text reads, “live in the PNW, chronically ill, and looking for community? Come join our in person meet up. Meet new friends who understand what you’re going through. Who knows, you might find lifelong friendship. January 18, link in bio.”   #chronicillness #chronicallyill #chronicillnesscommunity #disabled #eds #endo #pots #dynamicdisability
I’m a barista so I can’t help itttt #fyp #foryou #pots #coffee #barista #espresso #posturalorthostatictachycardiasyndrome #eds #elhersdanlossyndrome
Still fighting for answers. Yesterday was a really bad day. Please weigh in❤️ I love you all❤️ #mysteryillness#chronicillness#spoonie#ehlersdanlos#eds#ms#multiplesclerosis#pots#sick#flare#flareup#msattack#undiagnosed

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