connectivetissuedisorder hashtag performance
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172.2k
Hyperflexible people please watch!!! #littlemissdiagnosed #ehlersdanlos #connectivetissuedisorder #chronicillness
39.1k
I’m so happy 🥰 he knows me so well 💕 #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder #plushiedreadfuls #ilovehim
28.5k
I’m so tired of being absolutely covered in marks 😭😅 #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
24.3k
CW: odd throat noises, burping, and a large belch at the end This is what it’s like for me as someone with hEDS who struggles often with an inability to burp 😅 having this trapped gas in my chest is super painful so I have to figure out a way to get it out, but so far my only methods are stretch and squeeze my stomach to move the gas around manually 😅 any advice would be greatly appreciated 🙌 #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
15.7k
Correction: the standing up and getting dizzy is primarily related to my POTS, not hEDS. While hEDS does play a role in making my veins too stretchy and prone to excessive blood pooling, it is not the only contributing factor 🙌 #onthisday #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disabled #disability #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
13.5k
Replying to @✨Mandy✨ 🇺🇸 #ehlersdanlos #hypermobility #neurodivergent #hearingvoices #auditoryprocessingdisorder #neurology #connectivetissuedisorder
5.6k
Fingers crossed this continues to go well 🤞 my old pain management specialist was so familiar with connective tissue disorders and EDS that she helped coordinate the majority of my health journey and got me started on a majority of my diagnoses, so losing her is scary 😅 #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
4.3k
Replying to @Mary I hope this helps! If you want to learn more about EDS or get access to resources, I started out with the Ehlers Danlos Society website when I was first getting diagnosed and it helped tremendously. It has resources, access to the diagnostic criteria, and a providers directory 🙌 #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
4.2k
Credit: @Allison Tennyson Now, I am diagnosed w/ POTS, hEDS, MCAS, PNES, chronic migraines, chronic pain, chronic fatigue, bursitis in both knees, orthostatic hypertension, and still testing for endo, gastroparesis, and many others. There is no age limit for pain. #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
3.0k
Hypermobile EDS is NOT the only type of Ehlers Danlos Syndrome that causes joint hypermobility- in fact, many of the 12 rare subtypes of EDS feature hypermobility! I lived 19 years of my life mis/undiagnosed, and now that I know my genetic makeup, I can confidently raise awareness for my ultra rare condition. #arthrochalasia #arthrochalasiaehlersdanlossyndrome #aehlersdanlos #ehlersdanlostype7 #edsvii #arthrochalasiaeds #raredisease #rarediseaseawareness #showyourstripes #ehlersdanlossyndrome #connectivetissuedisorder #wheelchairuser
1.8k
So… maybe this is goodbye for now? I’m not sure what’s going to happen after Jan 19th, 2025. Maybe my videos will stay up even if I can’t access them and people outside of the U.S. can still use them to get diagnosed? 🤞🏾 Anywho, this platform changed my life and the lives of many in so many ways. This is my story. 😊 #lipedema #lipedemalegs #lipedemafighter #lipedemadiagnosis #diagnosis #connectivetissuedisorder #connectivetissuedisease #ehlersdanlossyndrome #ehlersdanlos #lipedemaarms #lipedemasymptoms #lipedemasurgery #brenajean #thebrenajean #story #stories #fyp #fy #tiktokban #usa_tiktok #BlackTikTok #plussize #plussizeedition #plussizefashion #bodypositivity #obesi #obesitymedicine #medicaltiktok #disabled #disabledtiktok #lipedematok #mobilityissues #fatdisorders #doitfat #body #bodies #bodydiversity #difference #bodydifference #bodyshape
1.3k
I am seriously unserious most of the time and being serious pains me. Every single moment I get to unmask is the best moments of my life. It’s like I’ve stopped holding my breath. 😊 #lipedema #lipedemalegs #lipedemaarms #weightlifting #lipolymphedema #plussize #plussizeedition #plussizeworkouts #bodyrecomposition #recomp #bodyrecomp #doitfat #disabledtiktok #doitdisabled #doitbold #workfromhome #workoutroutine #arms #ehlersdanlossyndrome #ehlersdanlossyndromecheck #connectivetissuedisorder #fun #StressRelief #dojacat #chairdancing #neurodivergent #unmasking #unmaskingautism #BlackTikTok #blackandautistic #thetism #tismtok #nerdtok #fatblackwoman #wholesale #wholesomehumor #joy
1.2k
Where am I going to vent about all the medical trauma I endure now?! 🫠 #heds #hypermobileehlersdanlossyndrome #hypermobileeds #ehlersdanlossyndrome #chronicillnessawareness #chronicillnesstiktok #connectivetissuedisorder
1.0k
Replying to @🪻 Arlo 🪻 for context, the doctor who first suggested I may have hEDS was a cardiologist so he couldn’t diagnose it 😅 there is also no such thing as an “EDS specialist” I just had no clue what kind of doctor dealt with EDS at the time so that’s what I searched 😅 I ended up seeing a pain management specialist for my hEDS diagnosis 🙌 #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
757.0
#neruogenicbladder #gastroparesis #gerd #gastritis #IBS #hypermobilityspectrumdisorder #connectivetissuedisorder #chronicillnessawareness #menatlhealthawareness #seizures #fnd #epilepsy #myopathy #wheelchairbound #nonambulatorywheelchairuser #mildhearingloss #alotofotherdiaginoses #chronicillnessawareness #menatlhealthawareness #disabled #positivitycrew #fyp
747.0
#GradeUpWithGrammarly #fyp #foryoupage❤️❤️ #foryoupage❤️ #foryoupageofficiall #foryoupage #selfdiagnosedautistictiktok #asd #latediagnosedautistic #adhd #latediagnosedadhd #autistic #ehlersdanlossyndrome #heds #eds #hypermobileehlersdanlossyndrome #hypermobility #hypermobile #connectivetissuedisorder
519.0
#GradeUpWithGrammarly #fyp #foryoupage❤️❤️ #foryoupage❤️ #foryoupageofficiall #foryoupage #selfdiagnosedautistictiktok #asd #latediagnosedadhd #autistic #latediagnosedautistic #adhd #ehlersdanlossyndrome #heds #eds #hypermobility #hypermobile #hypermobileehlersdanlossyndrome #connectivetissuedisorder
488.0
Come back for a detailed explanation on why each one should be avoided. #GradeUpWithGrammarly #fyp #foryoupage❤️❤️ #foryoupage❤️ #foryoupageofficiall #foryoupage #selfdiagnosedautistictiktok #asd #latediagnosedautistic #adhd #latediagnosedadhd #autistic #ehlersdanlossyndrome #heds #eds #hypermobility #hypermobileehlersdanlossyndrome #hypermobile #connectivetissuedisorder #hsd #hypermobilityspectrumdisorder #hypermobileeds #asymptomatichypermobility
486.0
Find it and MORE by clicking on the link in bio #GradeUpWithGrammarly #fyp #foryoupage❤️❤️ #foryoupage❤️ #foryoupageofficiall #foryoupage #selfdiagnosedautistictiktok #asd #latediagnosedadhd #autistic #latediagnosedautistic #adhd #ehlersdanlossyndrome #heds #eds #hypermobility #hypermobile #hypermobileehlersdanlossyndrome #connectivetissuedisorder #pots #potssyndrome #potsie #potsawareness #dysautonomia #dysautonomiaawareness #dysautonomiapots
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