raredisease hashtag performance
Empathy, awareness, advocacy, community, strength, resilience, personal stories, medical journeys, hope, support, challenges, research, rare conditions, invisible illnesses, education, solidarity, connection, fighting, understanding, validation.
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trying to be a hinge hottie but ending up with just bloopers everytime #als #alsawareness #amyotroph
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STORYTIME šššā¤ļø #fyp #foryou #omg #lmao #graduation #momlife #kids #diploidtriploidmosa
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every day is a struggle for me, but i try to always make the most of it, even if the only thing i do
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Thereās certain times where I mourn the life I had hoped for my son. I didnāt expect puberty to
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Tomorrow is a hope, never a promise. ā¤ļøš Lately I've been dealing with a new wound & that has
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On vacation I pulled my site and was able to do an excursion site and pump free. Honestly so worth i
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Saying goodbye to walker in this PT appointment! My fear of falling has gotten so much better and no
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tummy ache survivior #chronicillness #gastroparesis #raredisease #mals #pots #tummyache #fyp #chroni
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Still counting my blessings! Thank you Lord #izaiahsjourney #wwox #GodisinControl #raredisease #chti
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Hey bestiesā¦ I have something wild to share. Last night, I officially finished voice banking ā a
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not being able to eat or drink by mouth like normal is truly so hardā¦ #ivfluids #ivhydration #ivnu
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I like showing Bās seizure free, happy moments and was excited to make a post tonight as he finish
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Hi!!! Izaiah is getting ready for the day as he starts off with his breathing treatments and baby gi
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Yes please explain to me (a #geneticcounselor ) how my (suspicious) VUS youāve never seen āmeans
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Weāre ready for some freshwater lakes give us some recommendations in the comments! #izaiahsjourne
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Come unboxed some happy mail with Izaiah today! Z got blessed with a new wardrobe upgrade! Thank you
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Replying to @Amber Johnson @cariruns you are incredible!!! Cannot wait to see what you accomplish!!!
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