Kyra

raredisease hashtag performance

#RareDisease: A poignant space for sharing struggles, raising awareness, fostering community, offering hope, and highlighting the challenges faced by those battling uncommon, often debilitating, conditions.
The medical workup that lead to Liv’s diagnosis of Sanfilippo Syndrome, also known as childhood Al
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The medical workup that lead to Liv’s diagnosis of Sanfilippo Syndrome, also known as childhood Al
Watching your child slowly fade away is a pain like no other. Frustrating, depressing, and dishearte
535.1k
Watching your child slowly fade away is a pain like no other. Frustrating, depressing, and dishearte
Lily's words are getting more and more clear everyday!! Naming all her family (besides mama and dada
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Lily's words are getting more and more clear everyday!! Naming all her family (besides mama and dada
wait can i still decline the offer or is it too late?? #als #alsawareness #amyotrophiclateralscleros
Spoiler alert, not everything is depression or anxiety #littlemissdiagnosed #chronicillness #raredis
Why No One Knew @MrBeast Was Casting For Beast Games #beastgames #raredisease #rarediseaseawareness
s/o to my Oura Ring for basically telling me I’m pregnant 3 days before I got a positive test #fir
🧬 Medical Word Of The Day: "Lipodystrophy" 🔬 What does it mean? Watch Dr.Nykiel explain! 👨�
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🧬 Medical Word Of The Day: "Lipodystrophy" 🔬 What does it mean? Watch Dr.Nykiel explain! 👨�
"I praise you because I am fearfully and wonderfully made;     your works are wonderful,     I know
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"I praise you because I am fearfully and wonderfully made; your works are wonderful, I know
Replying to @Kat Lovely #greenscreen P3 #nursetok #nursing #avmrupture #strokeawareness #ct #medical
Look how TALL he is!! 🥲  #medicalmom #MomsofTikTok #disability #raredisease #hypotonia #milestone
#AngelmanSyndrome #RareDisease #ADHD #EscapeArtist #Houdini #10000Steps #SpecialNeeds #SpecialNeedsF
Make it make sense. 🙄 #medicalmom #disability #specialneeds #raredisease #struggleisreal #Vaique�
i truly do have hope that a cure or a real treatment will come one day, but even when that does happ
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i truly do have hope that a cure or a real treatment will come one day, but even when that does happ
in a span of just 2 months, our entire world was flipped upside down. #emandasherstrong #leighsyndro
I still remember the FaceTime call from Josh, 5 years ago today, at 9:44am. He told me they thought
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I still remember the FaceTime call from Josh, 5 years ago today, at 9:44am. He told me they thought
My “Born Different” episode is out now! You can watch it by clicking the link in my bio! Thank y
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My “Born Different” episode is out now! You can watch it by clicking the link in my bio! Thank y
Replying to @hey auntie sheren!  Explaining childhood Alzheimer’s, and saying thank you for all th
44.1k
Replying to @hey auntie sheren! Explaining childhood Alzheimer’s, and saying thank you for all th
PSA!!! 🗣️📢‼️ #PSA #raredisease #rarediseaseawareness #chronicillness #chronicillnessawar
Replying to @Gladiola I promise there are incredible doctors trying their best everyday, but it does
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Replying to @Gladiola I promise there are incredible doctors trying their best everyday, but it does
They brought him back- CPR was a 10/10 #cpr #medical #raredisease #hospital

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