raredisease hashtag performance
#RareDisease: A poignant space for sharing struggles, raising awareness, fostering community, offering hope, and highlighting the challenges faced by those battling uncommon, often debilitating, conditions.
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The medical workup that lead to Liv’s diagnosis of Sanfilippo Syndrome, also known as childhood Al
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Watching your child slowly fade away is a pain like no other. Frustrating, depressing, and dishearte
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Lily's words are getting more and more clear everyday!! Naming all her family (besides mama and dada
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Spoiler alert, not everything is depression or anxiety #littlemissdiagnosed #chronicillness #raredis
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s/o to my Oura Ring for basically telling me I’m pregnant 3 days before I got a positive test #fir
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#rarediseaseday I missed it here by a few days but i can’t help but celebrate my miracle baby. Cam
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🧬 Medical Word Of The Day: "Lipodystrophy" 🔬 What does it mean? Watch Dr.Nykiel explain! 👨�
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"I praise you because I am fearfully and wonderfully made; your works are wonderful, I know
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Replying to @Kat Lovely #greenscreen P3 #nursetok #nursing #avmrupture #strokeawareness #ct #medical
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i truly do have hope that a cure or a real treatment will come one day, but even when that does happ
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I still remember the FaceTime call from Josh, 5 years ago today, at 9:44am. He told me they thought
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Replying to @hey auntie sheren! Explaining childhood Alzheimer’s, and saying thank you for all th
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My “Born Different” episode is out now! You can watch it by clicking the link in my bio! Thank y
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This is my son, Griffin. He’s eight years old and has Angelman Syndrome. One of his favorite thing
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Replying to @Gladiola I promise there are incredible doctors trying their best everyday, but it does
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Sharing about an attenuated version of Sanfilippo Syndrome - say hi to @ASHLEY, ALIVIA & FAM and @Ab
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