Kyra

raredisease hashtag performance

Highlighting unseen struggles, sharing personal stories, raising awareness, fostering community, promoting research, offering support, fighting for resources, and advocating for acceptance for those living with rare diseases.
nobody is “gatekeeping” awareness.. #als #alsawareness #amyotrophiclateralsclerosis #icebucketch
just another post of me being raw and real. lately i’ve felt like i’ve had to hide my health str
682.2k
just another post of me being raw and real. lately i’ve felt like i’ve had to hide my health str
wait can i still decline the offer or is it too late?? #als #alsawareness #amyotrophiclateralscleros
girl, i couldn’t believe it. #als #alsawareness #amyotrophiclateralsclerosis #mnd #lougehrigsdisea
doctors tend to treat u like ur crazy until u get a diagnosis and it’s so sad that half the battle
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doctors tend to treat u like ur crazy until u get a diagnosis and it’s so sad that half the battle
s/o to my Oura Ring for basically telling me I’m pregnant 3 days before I got a positive test #fir
Replying to @Gfun How is ALS diagnosed? A few things I have learned. #als #alsawareness #amyotrophic
a short day in my life #als #alsawareness #amyotrophiclateralsclerosis #mnd #lougehrigsdisease #awar
🧬 Medical Word Of The Day: "Lipodystrophy" 🔬 What does it mean? Watch Dr.Nykiel explain! 👨�
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🧬 Medical Word Of The Day: "Lipodystrophy" 🔬 What does it mean? Watch Dr.Nykiel explain! 👨�
Look how TALL he is!! 🥲  #medicalmom #momsoftiktok #disability #raredisease #hypotonia #milestone
Replying to @A🌚 it was and never will be just a bucket of ice water. #als #alsawareness #amyotrop
shifting perspective is hard #als #alsawareness #amyotrophiclateralsclerosis #raredisease #neuromusc
the aftermath #als #alsawareness #amyotrophiclateralsclerosis #mnd #lougehrigsdisease #raredisease #
2022 vs 2025 #als #alsawareness #amyotrophiclateralsclerosis #mnd #lougehrigsdisease #raredisease #r
Replying to @✨✨✨ am i scared? #als #alsawareness #amyotrophiclateralsclerosis #lougehrigsdisea
ALS Clinic Simplified #als #alsawareness #amyotrophiclateralsclerosis #mnd #lougehrigsdisease #rared
My first time at the ALS clinic ✅ #als #alsawareness #amyotrophiclateralsclerosis #lougehrigsdisea
Morning Meds 💊 #als #alsawareness #amyotrophiclateralsclerosis #lougehrigsdisease #mnd #raredisea
12 surgeries later ‼️ God has the final say 🙏❤️ #triplets #sacralagenesis #spinabifida #r
Replying to @archer_sings yikes #als #alsawareness #amyotrophiclateralsclerosis #icebucketchallenge
Been hearing this feeling a lot from followers…I finally got diagnosed: now what?! I believe that
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Been hearing this feeling a lot from followers…I finally got diagnosed: now what?! I believe that

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