raredisease hashtag performance

#RareDisease: Awareness, support, community. Sharing stories of diagnosis, treatment, and daily life. Battling invisible illnesses, finding hope, advocating for research and connection. Strength, resilience, and visibility.

what’s crazy is that the speed isn’t even edited i’m just that slow #disabledtiktoker #braind

what’s crazy is that the speed isn’t even edited i’m just that slow #disabledtiktoker #braind

Honestly I’m a little unhinged right now. This one started hurting too soon to be normal. Went bac

Honestly I’m a little unhinged right now. This one started hurting too soon to be normal. Went bac

not sure how to feel but thank you for the support right now💖 #als #amyotrophiclateralsclerosis #

not sure how to feel but thank you for the support right now💖 #als #amyotrophiclateralsclerosis #

so, how did we get here? #als #amyotrophiclateralsclerosis #alsclinic #motorneuronedisease #mnd #lou

so, how did we get here? #als #amyotrophiclateralsclerosis #alsclinic #motorneuronedisease #mnd #lou

Time to spread the wisdom on how to support our kids with special needs. Medicaid icayt are already

Time to spread the wisdom on how to support our kids with special needs. Medicaid icayt are already

If you follow me on Instagram (@lauren_paley) you know that we’ve been having a very hard month as

If you follow me on Instagram (@lauren_paley) you know that we’ve been having a very hard month as

GRWL (Get Ready With Liv) 💜 #sanfilipposyndrome #specialneedsmom #specialneedsparenting #raredise

GRWL (Get Ready With Liv) 💜 #sanfilipposyndrome #specialneedsmom #specialneedsparenting #raredise

Cleaning a 2 week old site, wasn’t too bad thanks to the Dupixent. The black stuff def took me by

Cleaning a 2 week old site, wasn’t too bad thanks to the Dupixent. The black stuff def took me by

EMG test results #emg #emgtest #testresults #als #amyotrophiclateralsclerosis #alsclinic #motorneuro

EMG test results #emg #emgtest #testresults #als #amyotrophiclateralsclerosis #alsclinic #motorneuro

Replying to @lady_jardin what were my first symptoms? #als #amyotrophiclateralsclerosis #motorneuron

Replying to @lady_jardin what were my first symptoms? #als #amyotrophiclateralsclerosis #motorneuron

i couldn’t take myself seriously #raredisease #alsawareness #lougherigsdisease #disabledlife #ter

i couldn’t take myself seriously #raredisease #alsawareness #lougherigsdisease #disabledlife #ter

Update #emg #emgtest #testresults #als #amyotrophiclateralsclerosis #alsclinic #mnd #motorneurone #r

Update #emg #emgtest #testresults #als #amyotrophiclateralsclerosis #alsclinic #mnd #motorneurone #r

Replying to @anzbxhsjsf a life like this makes you appreciate each moment you are given. Diagnosis d

Replying to @anzbxhsjsf a life like this makes you appreciate each moment you are given. Diagnosis d

I needed a few days off there after my last post. But what I’ve learned in this journey is from ev

I needed a few days off there after my last post. But what I’ve learned in this journey is from ev

The best news we could have received. Baby girl does not have Smith Lemli Opitz Syndrome nor does sh

The best news we could have received. Baby girl does not have Smith Lemli Opitz Syndrome nor does sh

#rarediseaseday I missed it here by a few days but i can’t help but celebrate my miracle baby. Cam

#rarediseaseday I missed it here by a few days but i can’t help but celebrate my miracle baby. Cam

It’s officially been 2 years since my life has changed forever. #fyp #neardeathexperience #intussu

It’s officially been 2 years since my life has changed forever. #fyp #neardeathexperience #intussu

Replying to @hayhay🐷👑 the whole reason I started this tik tok account was to raise awareness o

Replying to @hayhay🐷👑 the whole reason I started this tik tok account was to raise awareness o

don’t worry i got a cheesecake to go #terminallyill #alsawareness #disabledtiktoker #raredisease

don’t worry i got a cheesecake to go #terminallyill #alsawareness #disabledtiktoker #raredisease

An emotional surprise for dad Terry, who created the world's first gene therapy to help save his son

An emotional surprise for dad Terry, who created the world's first gene therapy to help save his son

Replying to @LuckyMonkey74 EMG Results: To Be Continued.. #emg #emgtest #als #amyotrophiclateralscle

Replying to @LuckyMonkey74 EMG Results: To Be Continued.. #emg #emgtest #als #amyotrophiclateralscle

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