raredisease hashtag performance
#RareDisease: Awareness, community, support. Sharing journeys, struggles, victories. Medical mysteries, diagnoses, research, advocacy, hope. Empowering patients, educating the public, fostering empathy, and celebrating resilience.
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trying to be a hinge hottie but ending up with just bloopers everytime #als #alsawareness #amyotroph
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every day is a struggle for me, but i try to always make the most of it, even if the only thing i do
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There’s certain times where I mourn the life I had hoped for my son. I didn’t expect puberty to
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On vacation I pulled my site and was able to do an excursion site and pump free. Honestly so worth i
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Tomorrow is a hope, never a promise. ❤️🙏 Lately I've been dealing with a new wound & that has
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Shout out to my mother in law for being willing to do this with us 😂👏🏻 #twins #twinsisters
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Saying goodbye to walker in this PT appointment! My fear of falling has gotten so much better and no
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tummy ache survivior #chronicillness #gastroparesis #raredisease #mals #pots #tummyache #fyp #chroni
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Still counting my blessings! Thank you Lord #izaiahsjourney #wwox #GodisinControl #raredisease #chti
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Hey besties… I have something wild to share. Last night, I officially finished voice banking — a
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I like showing B’s seizure free, happy moments and was excited to make a post tonight as he finish
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Hi!!! Izaiah is getting ready for the day as he starts off with his breathing treatments and baby gi
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Yes please explain to me (a #geneticcounselor ) how my (suspicious) VUS you’ve never seen “means
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We’re ready for some freshwater lakes give us some recommendations in the comments! #izaiahsjourne
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Come unboxed some happy mail with Izaiah today! Z got blessed with a new wardrobe upgrade! Thank you
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Replying to @Amber Johnson @cariruns you are incredible!!! Cannot wait to see what you accomplish!!!
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