Kyra

raredisease hashtag performance

#RareDisease: Inspiring stories, raising awareness, fostering community. Battling uncommon illnesses, showcasing resilience, seeking research, patient advocacy, providing support, sharing journeys, connecting families, fighting for cures.
Starting Dupixent has been a game changer for my contact dermatitis 🙌 For years, I’ve battled p
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Starting Dupixent has been a game changer for my contact dermatitis 🙌 For years, I’ve battled p
Addicted! #twins #twinmom #momlife #momtok #momsoftiktok #momanddaughter #mamasgirl #parentsoftiktok
#onthisday #curesanfilippo #raredisease #childhoodalzheimers
What is psoriatic arthritis? A detailed explanation  #psoriaticarthritis #rheumatology #psoriasis #r
What is ankylosing spondylitis and how do we diagnose it?  #ankylosingspondylitis #autoimmunedisease
we need help! please check my bio 🫶🏻 #trend #airball #fyp #curerbm #weneedacure #reducingbodym
I mean you’d think by all the horror stories from mommas that PCPS would listen…. #tbcd#curetbcd
Early interventions can make such a big difference. Oliver has been in physical therapy, occupationa
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Early interventions can make such a big difference. Oliver has been in physical therapy, occupationa
Shout out to my mother in law for being willing to do this with us 😂👏🏻 #twins #twinsisters
Sanfilippo syndrome is so much more than just facial features. We put this together because we often
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Sanfilippo syndrome is so much more than just facial features. We put this together because we often
I’m still in shock that over 600 strangers have helped raise $16,000 to keep me alive. I’m sicke
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I’m still in shock that over 600 strangers have helped raise $16,000 to keep me alive. I’m sicke
What The Lateral Ableism… 🤯 I am SO SORRY to all the people who have been affected by this!! �
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What The Lateral Ableism… 🤯 I am SO SORRY to all the people who have been affected by this!! �
Replying to @julius.kaltner_4 you never know what’s to come in your future. The challenges we face
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Replying to @julius.kaltner_4 you never know what’s to come in your future. The challenges we face
Replying to @irinaboothe I am not sure if he will ever be able to do anything significant by your st
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Replying to @irinaboothe I am not sure if he will ever be able to do anything significant by your st
traumatized to say the least 🤪 #medicalptsd #cptsd #painrehab #chronicillness #raredisease #ehler
Happy Memorial Weekend. We will likely be outside this entire weekend as always! #onthisday #fyp #ro
#onthisday #curesanfilippo #raredisease #childhoodalzheimers #weneedacure
Advocate like a mother #holyfkinairball #airball  #RareDiseaseDay #fundraiser #spata5l1 #spata5 #luc
we were so excited haha  #raredisease #disabled
we are so back #als #alsawareness #amyotrophiclateralsclerosis #mnd #lougehrigsdisease #raredisease
Its VEDS awareness day! Vascular Ehlers-Danlos Syndrome: a rare genetic disorder that makes the conn
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Its VEDS awareness day! Vascular Ehlers-Danlos Syndrome: a rare genetic disorder that makes the conn

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