Kyra

raredisease hashtag performance

#RareDisease: Awareness, empathy, advocacy, stories, community, hope, struggles, diagnosis, support, research, visibility, personal journeys, strength, resilience, challenges, living with, education, understanding, connection.
nobody is “gatekeeping” awareness.. #als #alsawareness #amyotrophiclateralsclerosis #icebucketch
girl, i couldn’t believe it. #als #alsawareness #amyotrophiclateralsclerosis #mnd #lougehrigsdisea
#onthisday #curesanfilippo #raredisease #childhoodalzheimers
It was pretty rude tbh  #chronicillness #hospital #raredisease #crps #gastroparesis #dysautonomia #i
Addicted! #twins #twinmom #momlife #momtok #momsoftiktok #momanddaughter #mamasgirl #parentsoftiktok
The hardest thing to clean is a site that’s so sore, it basically never settled down after Hell we
141.0k
The hardest thing to clean is a site that’s so sore, it basically never settled down after Hell we
Definitely my worst birthday ever, and it only got worse from there. But having dealt with this horr
125.7k
Definitely my worst birthday ever, and it only got worse from there. But having dealt with this horr
Replying to @cjtravis123 I’m all about bringing as much awareness to Dravet Syndrome I can, but I
105.4k
Replying to @cjtravis123 I’m all about bringing as much awareness to Dravet Syndrome I can, but I
Replying to @Amy McIntosh 🪿 I’m not exaggerating when I say that people are asking me these sor
90.5k
Replying to @Amy McIntosh 🪿 I’m not exaggerating when I say that people are asking me these sor
Replying to @A🌚 it was and never will be just a bucket of ice water. #als #alsawareness #amyotrop
Replying to @archer_sings yikes #als #alsawareness #amyotrophiclateralsclerosis #icebucketchallenge
Just an update for my friends over here. If you have MG, Check medication contraindications bc you c
62.3k
Just an update for my friends over here. If you have MG, Check medication contraindications bc you c
Morning Meds 💊 #als #alsawareness #amyotrophiclateralsclerosis #lougehrigsdisease #mnd #raredisea
if i’m lucky enough #als #alsawareness #amyotrophiclateralsclerosis #lougehrigsdisease #mnd #rared
I know I should be grateful for a safe week with no hospital, but I always want more for my B. As we
41.7k
I know I should be grateful for a safe week with no hospital, but I always want more for my B. As we
#onthisday #curesanfilippo #sanfilipposucks #raredisease #childhoodalzheimers #weneedacure
traumatized to say the least 🤪 #medicalptsd #cptsd #painrehab #chronicillness #raredisease #ehler
Our little 1 in 1,000,000 beautiful baby girl! She's going to have a great testimony! #christiantikt
update #als #alsawareness #amyotrophiclateralsclerosis #raredisease #rarediseaseawareness #mnd #loug
I’m still in shock that over 600 strangers have helped raise $16,000 to keep me alive. I’m sicke
32.1k
I’m still in shock that over 600 strangers have helped raise $16,000 to keep me alive. I’m sicke
Early interventions can make such a big difference. Oliver has been in physical therapy, occupationa
29.1k
Early interventions can make such a big difference. Oliver has been in physical therapy, occupationa

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