chiarimalformationawareness hashtag performance

#ChiariMalformationAwareness: Education, support, community. Raising awareness, sharing stories. Understanding the brain, spinal cord issues. Symptoms, diagnosis, hope, advocacy. Finding answers, empowering patients.

Does this happen to anyone else? #chiari #chiarimalformation #chiarimalformationawareness #complexch

Does this happen to anyone else? #chiari #chiarimalformation #chiarimalformationawareness #complexch

This also goes to a lot of people on here who say disabled patients can’t be in pain or as sick as

This also goes to a lot of people on here who say disabled patients can’t be in pain or as sick as

EDIT: this was 6 months ago. I thought the ending and caption explained that enough, sorry y’all.

EDIT: this was 6 months ago. I thought the ending and caption explained that enough, sorry y’all.

I truly am so lucky. I had to do this trend. There’s so many parts I missed out on, but he’s inc

I truly am so lucky. I had to do this trend. There’s so many parts I missed out on, but he’s inc

You non sick humans love to get upset when we cancel for symptoms, but then pull this? #chiari #chia

You non sick humans love to get upset when we cancel for symptoms, but then pull this? #chiari #chia

I’ll forever share my story to show others why it’s so important to advocate for yourself. #chia

I’ll forever share my story to show others why it’s so important to advocate for yourself. #chia

Replying to @jaysuekay chronic pain patients love good nurses like you 💜 #chiarimalformationaware

Replying to @jaysuekay chronic pain patients love good nurses like you 💜 #chiarimalformationaware

Her 3rd birthday was the day I found out about my 6th brain surgery. She’s the reason I keep going

Her 3rd birthday was the day I found out about my 6th brain surgery. She’s the reason I keep going

Had to watermark my own diagnosis bc some of y’all are crazy #chiari #chiarimalformation #chiarima

Had to watermark my own diagnosis bc some of y’all are crazy #chiari #chiarimalformation #chiarima

Forever thankful for all of you, and my FB chiari friends. This also goes for my non chiari, but chr

Forever thankful for all of you, and my FB chiari friends. This also goes for my non chiari, but chr

Working on cleaning out my drafts this week 💜 #chiari #chiarimalformation #chiarimalformationawar

Working on cleaning out my drafts this week 💜 #chiari #chiarimalformation #chiarimalformationawar

To all the brain surgery baddies: #chiarimalformationawareness #chiari #chiarimalformation #complexc

To all the brain surgery baddies: #chiarimalformationawareness #chiari #chiarimalformation #complexc

This one hurts, but I’m learning to cope. #chiari #chiarimalformation #chiarimalformationawareness

This one hurts, but I’m learning to cope. #chiari #chiarimalformation #chiarimalformationawareness

Yes. I’m sure. Stop questioning disabled people. We don’t owe you anything. #chiarimalformationa

Yes. I’m sure. Stop questioning disabled people. We don’t owe you anything. #chiarimalformationa

I’ve debated sharing this for 6 months, but finally feel ready. I think the impact it has will be

I’ve debated sharing this for 6 months, but finally feel ready. I think the impact it has will be

Replying to @Cassidy Rae you guys are why I do it. You are all worthy of the best resources and supp

Replying to @Cassidy Rae you guys are why I do it. You are all worthy of the best resources and supp

This video hit me hard. Idea from @cometodaddi #chiarimalformationawareness #chiari #chiarimalformat

This video hit me hard. Idea from @cometodaddi #chiarimalformationawareness #chiari #chiarimalformat

Can’t remember who I got this video idea from. Tag yourself below 💜 This is why I spread awaren

Can’t remember who I got this video idea from. Tag yourself below 💜 This is why I spread awaren

Replying to @Carla Alexandra Anjo I just put the major details of each brain surgery. It’s hard to

Replying to @Carla Alexandra Anjo I just put the major details of each brain surgery. It’s hard to

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