tubefed hashtag performance
#TubeFed highlights stories of individuals who rely on feeding tubes for nutrition. It fosters community support, awareness, and advocacy, sharing experiences, challenges, and triumphs related to tube feeding and related conditions.
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This is whole routine is tiring but I’m trying to do trickle feeds after disconnecting from tpn #gastroparesis #tubefed #tubefeed #chronicillnessawareness #gjtube #foryoupage #fyp #pourtoi #fy #feedingtube #pots #tpn #totalparenteralnutrition #piccline
791.6k
My disabled 5 year old had a horrifying wheelchair accident and broke his nose. He will be getting surgery within the week. I know I’m not composed AT ALL but honestly… a lot of PTSD and trauma has surfaced throughout this experience. Thank you for loving him and being so invested in his experiences. Our hearts are broken but tomorrow we’ll receive more answers that we are hopeful will bring peace. 🫶🏻 #accident #brokennose #ER #toddleraccident #c#cerebralpalsyd#disabledd#disabilityd#disabledtoddlers#specialneedsd#disabilitytiktokc#cpmoms#specialneedsmomt#toddlertokc#cutetoddlern#nonverbalt#tubefedg#gtuben#nicun#nicumomn#nicubabyn#nicustrongp#preemiep#prematurep#prematurebabys#spasticcerebralpalsyd#dayinthelifev#Vlogf#familyvlogm#minivlogm#morningroutinee#emotionals#specialneedsmoms#specialneedssiblingb#brainbleedc#caraccidentt#traumat#traumaticbraininjuryt#traumaticexperiencet#traumaticbirth2#27weekerv#vloggerd#dailyvlogv#vlogsm#miraclebabyc#comewithme#g#grwmc#comewithusm#morningvlog#m#motherhoodsahm
786.8k
Being a parent makes you so vulnerable. My love for them is the most intense feeling I can imagine exists. I’m so grateful they’re mine 🤍 #cerebralpalsy #disabled #disability #disabledtoddler #specialneeds #disabilitytiktok #cpmom #specialneedsmom #toddlertok #cutetoddler #nonverbal #tubefed #gtube #nicu #nicumom #nicubaby #nicustrong #preemie #premature #prematurebaby #spasticcerebralpalsy #dayinthelife #Vlog #familyvlog #minivlog #morningroutine #emotional #specialneedsmom #specialneedssibling #brainbleed #caraccident #trauma #traumaticbraininjury #traumaticexperience #traumaticbirth #27weeker #vlogger #dailyvlog #vlogs #miraclebaby #comewithme #Lifestyle #getreadywithme #grwm #comewithus #morningvlog #satisfying #Lifestyle #motherhood #sahm
606.9k
Anyway Merry Christmas taking care of chronic illness stuff never rests even on holidays😃 #chronicillness #chronicallyill #ci #tubefed #feedingtubeawareness #tubefeeding #gjtube #gp #gastroparesis #tubie #mcas #mastcellactivationsyndrome #medical #stomachproblems #pots #potssyndrome #potsawareness #dysautonomia #ehlersdanlos #ehlersdanlossyndrome #heds #christmas #merrychristmas #christmaspresents
561.2k
@m <3 TY FOR TELLING ME AB THIS🫶 #chronicillness #chronicallyill #ci #tubefed #feedingtubeawareness #tubefeeding #gjtube #gp #gastroparesis #tubie #medical #hydrate #stayhydrated #mastcellactivationsyndrome #mcas #pots #potssyndrome #potsawareness #dysautonomia #ehlersdanlos #ehlersdanlossyndrome #heds
536.6k
Apparently my tube decided I need a little vacation in Chicago #greenscreen #chronicillness #chronicallyill #ci #tubefed #feedingtubeawareness #tubefeeding #gjtube #gp #gastroparesis #tubie #medical #hospital #er #emergencyroom #mcas #mastcellactivationsyndrome #pots #potssyndrome #potsawareness #dysautonomia #ehlersdanlos #ehlersdanlossyndrome #heds
381.9k
Don’t do this without permission‼️ (this was a couple weeks ago) #chronicillness #chronicallyill #ci #tubefed #feedingtubeawareness #tubefeeding #gjtube #gp #gastroparesis #tubie #medical #hospital #pots #potssyndrome #potsawareness #dysautonomia #ehlersdanlos #ehlersdanlossyndrome #heds #mcas #mastcellactivationsyndrome #sneakingout #escape
376.7k
Day 3 post accident and my heart is finally at peace with answers and information we got today. I will be updating you soon. ❤️ #accident #er #brokennose #injury #cerebralpalsy #disabled #disability #disabledtoddler #specialneeds #disabilitytiktok #cpmom #specialneedsmom #toddlertok #cutetoddler #nonverbal #tubefed #gtube #nicu #nicumom #nicubaby #nicustrong #preemie #premature #prematurebaby #spasticcerebralpalsy #dayinthelife #Vlog #familyvlog #minivlog #morningroutine #emotional #specialneedsmom #specialneedssibling #brainbleed #caraccident #trauma #traumaticbraininjury #traumaticexperience #traumaticbirth #27weeker #vlogger #dailyvlog #vlogs #miraclebaby #comewithme #Lifestyle #getreadywithme #grwm #comewithus #morningvlog #satisfying #Lifestyle #motherhood #sahm
341.4k
Replying to @Alex.pomeroy0914 YOUTUBE: sara.helenn draft🫶 #chronicillness #chronicallyill #ci #tubefed #feedingtubeawareness #tubefeeding #gjtube #gp #gastroparesis #tubie #medical #hospital #formula #hydrate #stayhydrated #pots #potsawareness #potssyndrome #dysautonomia #ehlersdanlos #ehlersdanlossyndrome #heds #mcas #mastcellactivationsyndrome
340.8k
New feeding tube coming soon trust #chronicillness #chronicallyill #ci #tubefed #feedingtubeawareness #tubefeeding #gjtube #gp #gastroparesis #tubie #medical #hospital #procedure #radiology #mcas #mastcellactivationsyndrome #pots #potssyndrome #potsawareness #dysautonomia #ehlersdanlos #ehlersdanlossyndrome #heds
337.3k
Hi 👋🏻 This is Beckham, my 5 year old son who eats through a g-tube ❤️ #cerebralpalsy #disabled #disability #disabledtoddler #specialneeds #disabilitytiktok #cpmom #specialneedsmom #toddlertok #cutetoddler #nonverbal #tubefed #gtube #nicu #nicumom #nicubaby #nicustrong #preemie #premature #prematurebaby #spasticcerebralpalsy #dayinthelife #Vlog #familyvlog #minivlog #morningroutine #emotional #specialneedsmom #specialneedssibling #brainbleed #caraccident #trauma #traumaticbraininjury #traumaticexperience #traumaticbirth #27weeker #vlogger #dailyvlog #vlogs #miraclebaby #comewithme #Lifestyle #getreadywithme #grwm #comewithus #morningvlog #satisfying #Lifestyle #motherhood #sahm
274.1k
The hair frizzies are cracking me up #chronicillness #chronicallyill #ci #tubefed #feedingtubeawareness #tubefeeding #gjtube #gp #gastroparesis #tubie #medical #hospital #procedure #grwm #getreadywithme #mastcellactivationsyndrome #mcas #pots #potssyndrome #potsawareness #dysautonomia #ehlersdanlos #ehlersdanlossyndrome #heds
203.0k
Even with a broken nose, he’s the most magical, beautiful human being on the planet. #accident #er #brokennose #hospital #wheelchair #cerebralpalsy #disabled #disability #disabledtoddler #specialneeds #disabilitytiktok #cpmom #specialneedsmom #toddlertok #cutetoddler #nonverbal #tubefed #gtube #nicu #nicumom #nicubaby #nicustrong #preemie #premature #prematurebaby #spasticcerebralpalsy #dayinthelife #Vlog #familyvlog #minivlog #morningroutine #emotional #specialneedsmom #specialneedssibling #brainbleed #caraccident #trauma #traumaticbraininjury #traumaticexperience #traumaticbirth #27weeker #vlogger #dailyvlog #vlogs #miraclebaby #comewithme #Lifestyle #getreadywithme #grwm #comewithus #morningvlog #satisfying #Lifestyle #motherhood #sahm
188.4k
Pretty much just existing waiting for a new tube #chronicillness #chronicallyill #ci #tubefed #feedingtubeawareness #tubefeeding #gjtube #gp #gastroparesis #tubie #medical #hospital #mastcellactivationsyndrome #mcas #ditl #dayinmylife #dayinthelife #diml #pots #potssyndrome #potsawareness #dysautonomia #ehlersdanlos #ehlersdanlossyndrome #heds
180.3k
Just happy to have a tube that isn’t folded backwards inside of me anymore #greenscreen #chronicillness #chronicallyill #ci #tubefed #feedingtubeawareness #tubefeeding #gjtube #gp #gastroparesis #tubie #medical #hospital #procedure #pots #potssyndrome #potsawareness #dysautonomia #ehlersdanlos #ehlersdanlossyndrome #heds #mcas #mastcellactivationsyndrome
137.4k
Somebody sedate me #chronicillness #chronicallyill #ci #tubefed #feedingtubeawareness #tubefeeding #gjtube #gp #gastroparesis #tubie #medical #hospital #procedure #radiology #mcas #mastcellactivationsyndrome #pots #potssyndrome #potsawareness #dysautonomia #ehlersdanlos #ehlersdanlossyndrome #heds #fitcheck #OOTD #oufitoftheday
122.6k
Replying to @Bob HI GUYS BACK FROM THE DEAD #chronicillness #chronicallyill #ci #tubefed #feedingtubeawareness #tubefeeding #gjtube #gp #gastroparesis #tubie #medical #meds #pots #potssyndrome #potsawareness #dysautonomia #ehlersdanlos #ehlersdanlossyndrome #heds #mcas #mastcellactivationsyndrome #hydrate #stayhydrated
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