Kyra

nemalinemyopathy hashtag performance

#NemalineMyopathy explores a rare genetic muscle disorder. Users share lives, challenges, treatments, and raise awareness. Families connect, offering support, hope, and showcasing daily struggles. It's a space for advocacy.
Our hearts are FULL. The way Jackson says “Baby Will” 🥺❤️#nemalinemyopathy #gtube #brothe
Baby Will Boogers. #nemalinemyopathy #bigbrother #2yearsold #brother #gtube #family #disability #bir
Baby brother is here and we couldn’t be more in love. What a journey our life is💙 #nemalinemyop
Babirusa! #zoo #nemalinemyopathy #amc #arthrogryposis #toddler #fy #fyp #babirusa #toddlersoftiktok
LISTEN👂🏼 Jackson LOVES the rain and THHunder! #nemalinemyopathy #fy #tubefed #amc #arthrogrypo
We say “Gentle” too much. Still, it’s not enough😅👊 #bigbrother #nemalinemyopathy #brothe
Happy 2nd Birthday beautiful boy ❤️ Thankful today and everyday that I get to be your mama. #nem
Someone doesn’t like baby brother umbilical cord😂😂😂 #nemalinemyopathy #fy #gtube #fyp #fy
A fresh new tubie and some goldfish. What could be better? #gtube #goldfish #nemalinemyopathy #arthr
I still cannot believe he’s TWO! #nemalinemyopathy #fy #tubefed #toddler #amc #arthrogryposis #dis
Paper towel, yogi and grass. #nemalinemyopathy #fy #tubefed #gtube #amc #arthrogryposis #toddler #2y
Standing big and STRONG. #nemalinemyopathy #stand #fy #fyp #gtube #fypシ #bigandstrong #family #amc
Thank you all for your support! We pray one day doors will open and a treatment becomes available fo
346.5k
Thank you all for your support! We pray one day doors will open and a treatment becomes available fo
The ABC’s and “brella’s”. #nemalinemyopathy #arthrogryposis #gtube #abc #sing #fy #amc #todd
Keep Jackson awake with me while loving on Elmo ❤️ #elmo #nemalinemyopathy #amc #disability #tod
“I love you baby Will🥺” #bigbrother #nemalinemyopathy #fy #gtube #fyp #family #arthrogryposis
So thankful for how independent Jackson can still be. #nemalinemyopathy #bigbrother #doona #family #
A,B,C’s #nemalinemyopathy #abc #toddler #disability #arthrogryposis #fy #fyp #gtube #toddler #todd
My 2 year old does the laundry. #nemalinemyopathy #arthrogryposis #disability #fy #fyp #gtube #tubef
He just keeps amazing us. Sing the ABC’s with Jackson and Elmo! #elmo #nemalinemyopathy #family #a

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