icelldisease hashtag performance
#icelldisease highlights awareness and education about a rare genetic disorder affecting cellular function. It fosters community, support, and shared experiences while promoting research, understanding, and advocacy for those affected.
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We started out 2024 feeling like Bryce was on the right track health wise and we managed to stay out of the hospital all of virus season. In home nursing was wonderful, she started new therapies, and was thriving. Fast forward to July and our worst nightmare happened. We lost Bryce after a hard battle with Covid. And the entire rest of the year seems like a blur… just trying to get out of bed each day and find the courage to move forward. Praying for a little hope and healing in 2025. #brycealmighty #mucolipidosis #icellawareness #icelldisease #grief #childloss #grievingmom #lifeafterloss #goodbye2024 #2024recap
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