Kyra

leighsyndrome hashtag performance

#LeighSyndrome is a challenging hashtag reflecting a rare, inherited neurodegenerative disorder. It highlights research, support, awareness, and personal stories of those affected and their families. Hope and strength emerge.
we are going on a wish flight for asher’s disney world make-a-wish trip in almost one week!! we ar
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we are going on a wish flight for asher’s disney world make-a-wish trip in almost one week!! we ar
My girl 💕 #fashionshow #foundationforblindchildren #leighsyndrome #mitochondrialdisease #medicalm
honestly, nothing feels real anymore. we weren’t even home for a full 10 hours and are now admitte
9.5k
honestly, nothing feels real anymore. we weren’t even home for a full 10 hours and are now admitte
please don’t ever take my sunshine’s away. #emandasherstrong #medicalmom #terminaldisease #foryo
the experience we had on asher’s wish flight was so so special. this week is going to be so magica
8.6k
the experience we had on asher’s wish flight was so so special. this week is going to be so magica
#motherhood #medicalmama #mitochondrialdisease #leighsyndrome #trach #anticipatorygrief #siblings #i
we have the sweetest kitty in the world. she loves her babies. 🥹🤍 #emandasherstrong #family #k
Dad will be taught how to fix Quincy’s hair for the next daddy daughter day…🤣🤪💕 #mother
Long story….long 🤣🫠 #ventilator #trach #leighsyndrome #mitochondrialdisease #medicalmama #mo
Quincy rockstar Perna!!! 🥰 #sprinting #medicalmama #leighsyndrome #motherhood #ventilator #trach
I hate Leigh Sydnrome #medicalmama #leighsyndrome #motherhood #ventilator #trach #mitochondrialdisea
Leaving the house is an essential part of our day! 👊🏼 #trach #leighsyndrome #mitochondrialdise
They are way more fun to hang out with anyways 💁🏼‍♀️ #momlife #medicalmama #leighsyndrom
The Queen of SASS! No idea where she got that from… 😆😁 #brotherandsister #leighsyndrome #mit
i’m so exhausted after this last month. i can’t explain it any other way than literally nothing
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i’m so exhausted after this last month. i can’t explain it any other way than literally nothing

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