leighsyndrome hashtag performance
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i don’t think we’ve ever been happier. 🤍 #emandasherstrong #family #vacation #familyphotos #curemito #fyp #leighsyndrome #beach #foryoupage #beachphotoshoot #MomsofTikTok
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we celebrated her 6th birthday yesterday and now have the whole week to continue to celebrate her. this was just day one. 🤍 #emandasherstrong #disneyworld #fyp #makeawish #MomsofTikTok #gktw #leighsyndrome #foryoupage #raredisease #curemito #momlife
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our last morning and travel day back home from emmi’s wish trip. 🤍 #emandasherstrong #makeawish #foryoupage #MomsofTikTok #dayinthelife #curemito #leighsyndrome #gktw #fyp #wishtrip #raredisease
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today we saw emmi’s star which will be here at give kids the world forever and we can come back at any time to visit it. ❤️ #emandasherstrong #gktw #MomsofTikTok #leighsyndrome #makeawish #fyp #foryoupage #wishtrip #dayinthelife
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we spent the day at universal, emmi decorated her star for stellar the star fairy to place in the magical castle of miracles, and finished the night with a halloween party!! 🤍 #emandasherstrong #gktw #makeawish #foryoupage #MomsofTikTok #leighsyndrome #raredisease #disneyworld #fyp
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long live all the magic we’re making ❤️ #emandasherstrong #magickingdom #fyp #makeawish #disneyworld #gktw #MomsofTikTok #curemito #leighsyndrome #makeawishkid #foryoupage
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yesterday was our last day at disney and last full day until we go home this afternoon. 🤍 #emandasherstrong #gktw #MomsofTikTok #makeawish #dayinthelife #disney #fyp #hollywoodstudios #leighsyndrome #curemito #foryoupage #trip
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asher was so upset this night that i was getting him ready for bed before emmi was ready. she sat and reassured him she’d be going to bed super super soon to help him feel better. 🥺 #emandasherstrong #MomsofTikTok #Siblings #curemito #foryoupage #momlife #bedtime #fyp #leighsyndrome #family
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today we celebrated asher reaching 20 lbs!! 🤍 we have struggled with his weight since before knowing his diagnosis. i can’t tell you how emotional it was to hear he was 20.7 lbs when we saw his GI. he’s almost just one pound from where we need him. we’re almost there!!! this might be a small step to anyone else but this is HUGE for us. we are celebrating all the steps over here. 🥳 i’m so proud of you my sweet boy. you are so strong. you and your sister are the true definition of superheroes. keeping kicking leigh syndromes butt, my baby!! 🤍 #emandasherstrong #MomsofTikTok #curemito #foryoupage #raiseawareness #leighsyndrome #specialneedsmom #celebrate #weightgain
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we started our day meeting anna and elsa at epcot (emmi and asher’s favorites), and ended it at magic kingdom again. 🤍 #emandasherstrong #fyp #magickingdom #epcot #makeawish #gktw #curemito #disneyworld #leighsyndrome #foryoupage #MomsofTikTok
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keep my sweet girl in your thoughts and prayers. 🤍 #emandasherstrong #raredisease #anticipatorygrief #foryoupage #grief #curemito #leighsyndrome #MomsofTikTok #specialneedsmom
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i love you both so much. you bring so much happiness and love to our lives. 🤍 #emandasherstrong #MomsofTikTok #curemito #foryoupage #leighsyndrome #specialneedsmom #fyp #myfamily #raredisease #raiseawareness
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i forgot to post this yesterday, but here’s a little morning in our life 🫶🏻 #emandasherstrong #MomsofTikTok #curemito #morningroutine #foryoupage #Vlog #leighsyndrome #fyp #momvlog #schoolmorning
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