medicallycomplex hashtag performance
#MedicallyComplex: Chronicles of chronic illness, intricate diagnoses, and navigating healthcare. Sharing struggles, triumphs, and daily life realities, fostering community and advocating for awareness. Resilience shines.
![She literally disconnected herself gtube [successfully😂] and had a drink🫠🫠😭😭😭##tra](https://dz59t6y8jvnrr.cloudfront.net/video/7470668471630564654.jpg)
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She literally disconnected herself gtube [successfully😂] and had a drink🫠🫠😭😭😭##tra
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Might as well be a prison #paralyzedstomach #gastroparesis #medicallycomplex #centralline #chronicil
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Replying to @Amber Lashley B hadn’t been feeling well since his last seizure. This is the first ti
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Replying to @seba ii know riding Mater looks like fun but it has nothing to do with Dravet Syndrome.
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I’m so upset about this, I can’t even put into words how this experience has negatively impacted
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Just the weekly trip to an appointment for Addy! Btw, I think I’m awful at these vlog styles but l
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what we have our night nurses do for our trach, vent, and gtube dependent son 🤍 we are so gratefu
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I swear this is B’s theme song. 💜 We were hopeful that increasing the CBD would help but it see
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I needed a few days off there after my last post. But what I’ve learned in this journey is from ev
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Our version of this… So lucky to have had him by my side 24/7 through everything with Addy girl #y
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Thankfully B landed on the dirt section of the track and with his hood on it gave him some cushion a
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Replying to @anzbxhsjsf a life like this makes you appreciate each moment you are given. Diagnosis d
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Replying to @hayhay🐷👑 the whole reason I started this tik tok account was to raise awareness o
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Oh, baby B. We often are told just to buy him a real car. How I wish we could. With Dravet and B’
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“At risk for impaired mobility” who? 😭 Big sister caught little sister trying to stand for th
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