medicallycomplex hashtag performance
#MedicallyComplex: A window into lives navigating chronic illness. Sharing struggles, triumphs, treatments, and support networks. Fostering community, advocating for understanding, and raising awareness. Connecting patients and caregivers.
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Of course I got to follow a down on the dumps video with a happy one, because that’s how amazing m
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I’m so grateful for the quick recovery B makes from his seizures lately. He was in such a happy mo
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Many new followers since I made this video last year and so many ask how we keep B’s ride on going
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My husbands Emergency Surgery + unfortunately diagnosis 💔 •YES my husband has consented to sha
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After a 10 minute seizure yesterday where he hurt his face again 😔 we make up for it today with a
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How I always love watching our older videos when they pop up. I thought after our article in People
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Happy Friday!! A little throwback to start our weekend off in a happy place 😄 #onthisday #dravets
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The beach has always been a huge seizure trigger for B. As he gets older however, he’s able to las
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We’ve made some changes to Addy’s cathing routine for the moment, mostly because her renal ultra
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My husbands Emergency Surgery + my infection/turned into scheduled surgery … plus my daughter need
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Replying to @cjtravis123 I’m all about bringing as much awareness to Dravet Syndrome I can, but I
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B’s face is still healing from Saturday’s seizure 😔 but we got what sounded like a new word f
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Yesterday B wasn’t ready to head back to the beach after his seizure on Saturday. This morning, he
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Replying to @Amy McIntosh 🪿 I’m not exaggerating when I say that people are asking me these sor
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So grateful for our son’s AAC device. B is non speaking due to Dravet Syndrome but understands eve
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When it rains it pours right? Thats what happened in our dining room last night so today was a bit h
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Gait issues go along with Dravet Syndrome. Many people have issues walking due to it. B is fortunate
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probably would be shorter if I didn’t stop for so many hug breaks 😅 #bedtimeroutine #routines #
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lmk if you’re local and want info on the walk I planned!! Hope to see a bunch of you there 🫶�
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