medicallycomplex hashtag performance
#medicallycomplex highlights the journeys of individuals facing intricate health challenges. It fosters community, provides support, shares experiences, raises awareness, educates, and promotes understanding about chronic illnesses and disabilities. Empathy thrives here.
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Day 2 of recovery, so far we were thinking “okay, this isn’t so bad. What was everyone talking about?” Only to be given a very big awakening come 5am the next morning. I’ll share that story in the day 3’s video❤️ #fyp #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #macroglossia #overgrowthdisorder #tonguereduction #surgery #picu
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Aiden knocked our 4 therapy sessions today, 3 of those being #DMI at @ClimbIntensive! #dynamicmovementintervention #dmitherapy #pediatricphysicaltherapy #pediatricpt #climbintensivepediatrictherapy #cmv #cmvawareness #microcephalyawarness #microcephaly #cerebralpalsy #cerebralpalsyawareness #developmentallydelayed #medicallycomplex #medicalmom #medicalmomsoftiktok
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Replying to @Keazma nope, he was just doing his job. The news would have been shitty regardless where we were and honestly I’m thankful to have a doctor like him on our team. #letmeexplain #raredisease #diagnosis #diagnosisstorytime #doctor #genetics #genes #metabolic #sanfilipposyndrome #sanfilippo #carterschallenge #resentment #medicallycomplex #parenting #momlife
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This love runs so deep because of the depth that has been created over the last year. When you have a medically complex child the bond is different. The trust your child builds in you makes you strive to protect them at levels you didn’t know were in you. When you get so close to loosing them, getting another day is never taken for granted, you see each moment as a precious gift. Having Luca home this last year has been such a gift. He fought so hard to get this point and it’s his happiest place. Luca, believing for another sweet year home with you, this is all my heart wants ✨ God is good. #downsyndrome #adoption #medicallycomplex
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Tongue reduction day 4. This is a longer video but I didn’t want to leave out any details ❤️ #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #macroglossia #overgrowthdisorder #tonguereduction #surgerytiktok #fyp
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Unstoppable 💪🏼 Watch for Aiden’s little victory smiles 😍 @ClimbIntensive #dmi #dmitherapy #dynamicmovementintervention #climbintensivepediatrictherapy #pediatricphysicaltherapy #climbintensive #cmv #cmvawareness #microcephaly #microcephalyawareness #cerebralpalsy #cerebralpalsyawareness #developmentallydelayed #medicallycomplex #medicalmomsoftiktok #medicalmom
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No lies were told #chronicillness #gastroparesis #vascularcompression #smas #tpn #paralyzedstomach #medicallycomplex
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Now gotta clean the rest of the house🫡 #medicallycomplex #trachbabies #restockwithme #cleaningmotivation #cleaningtiktok #gtubebaby #trachbabies #momlife #kleefstrasyndrome #sahmlife
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Just in time for 2025!!! C-Money is line free!!!! We cannot wait to do all of his favorite things and share all of them with you!!! From our family to yours, happy New Year! May your 2025 will be filled with a lot of love, joy, happiness, health, Carter, Vlogs, and memories, of course ❤️ we love you! #carterschallenge #raredisease #genetics #chronicpancreatitis #pancreatitis #piccline #tpn #lipids #liquidnutrition #educational #advocate #medicallycomplex #sanfilipposyndrome #sahm #caregiver #parenting #disabilityparenting #themoreyouknow #LearnOnTikTok
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Another session at @ClimbIntensive this week in the first week of his 3 week intensive! #climbintensivepediatrictherapy #dmi #dmitherapy #dmiintensive #dynamicmovementintervention #pediatricphysicaltherapy #cmv #cmvawareness #microcephaly #microcephalyawareness #cerebralpalsyawareness #developmentallydelayed #medicallycomplex
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Walker got approved for Palliative Care! We finally have a nurse ! #medicallycomplex #palliativecare #hospice #homehealth #homehealthnurse #tpn #broviac #gtube
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I remember the days where I was drowning, thinking I’m never going to make it out of this. And here we are! Doing it! Stay strong and lean on your circle of support, if you don’t have one.. you have me! 🫶🏼 #risewithraedyn #medicalmama #medicallycomplex #pfeiffersyndrome #craniosynostosis #trachbaby #craniofacialdifference #specialneedsmom
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Samuel Tongue Reduction surgery day 1 #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #overgrowthdisorder #macroglossia #baby #tonguereduction #babysoftiktok #surgerytiktok #fyp #foryoupage
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He never quits. He doesn’t understand “can’t”. He finds a new way and pushes on. We could all learn a little something from his resilience 💜 #risewithraedyn #medicallycomplex #pfeiffersyndrome #craniosynostosis #trachbaby #medicalmama #specialneedsmom
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Some days I get so sad that the world isn’t kinder to my son, but then i remember just how much he is loved by his family and how we all go above and beyond to make these special memories with him 💜 #risewithraedyn #toddlersoftiktok #pfeiffersyndrome #craniosynostosis #trachbaby #medicalmama #medicallycomplex #bekind #speechdelay #craniofacialdifference #acceptance #inclusion #inclusiveplay
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Replying to @⚠️TACI.LYNN⚠️ a clinical trial you say? Why didn’t I think of that?! 😂 ps 🤟 #Inverted #raredisease #sanfilippo #sanfilipposyndrome #genetics #clinicals #clinicaltrials #carterschallenge #medicallycomplex #hospital #gov #themoreyouknow #LearnOnTikTok #parenting #disabilityparenting #navigatingaterminaldisease #howclinicaltrialswork101 #didyouknow #howitworks #learnfromme #momonamission
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Being snowed in this past weekend, slowing down, and spending a bunch of family time together, gave me some additional time to process what has easily been the most difficult months of my life. I feel like what I have been experiencing is similar to the stages of grief. Over the weekend, I feel like I landed at acceptance for all that has happened. It still feels very raw and real but I’m able to think about it and already begin to see the ways I have grown both as a mom and just a human. I can see how I was faced with some of my darkest fears and I was able to fight. Fight for Luca, advocate for him, and show up with a strength I honestly didn’t know I had. I leveled up in what I thought my ceiling was and blew through it. My endurance is higher. My resilience has increased. I watched my baby fight and just when I would think it was all over, he was back in the race giving it his all. This taught me a lot. We were not giving up. Six months ago, if you would have presented me with what we would go through, I would have told you I wouldn’t survive it. But here we are. But God. We survived. We grew. God is good. #downsyndrome #trisomy21 #momlife #chd #nicu #medicallycomplex #adoption #foryoupage #fyp
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I could do these all day 🫠 weirdos #fyp #foryoupage #triplets #nicu #medicallycomplex #gtube #trach #nicumom
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