Kyra

medicallycomplex hashtag performance

#MedicallyComplex highlights individuals with chronic illnesses and disabilities. It showcases resilience, shares experiences, and educates. It fosters community, dispels stigmas, and advocates for better healthcare.
Of course I got to follow a down on the dumps video with a happy one, because that’s how amazing m
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Of course I got to follow a down on the dumps video with a happy one, because that’s how amazing m
I’m so grateful for the quick recovery B makes from his seizures lately. He was in such a happy mo
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I’m so grateful for the quick recovery B makes from his seizures lately. He was in such a happy mo
Many new followers since I made this video last year and so many ask how we keep B’s ride on going
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Many new followers since I made this video last year and so many ask how we keep B’s ride on going
Amniotic Fluid Embolism — rare, deadly, and every OB team’s nightmare. Here’s what happens, ho
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Amniotic Fluid Embolism — rare, deadly, and every OB team’s nightmare. Here’s what happens, ho
Prayers for the sweetest, purest soul… no words can express the level of heartache.  I wish I had
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Prayers for the sweetest, purest soul… no words can express the level of heartache. I wish I had
Happy Friday!! A little throwback to start our weekend off in a happy place 😄 #onthisday #dravets
After a 10 minute seizure yesterday where he hurt his face again 😔 we make up for it today with a
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After a 10 minute seizure yesterday where he hurt his face again 😔 we make up for it today with a
Oh memories. 🥹 #onthisday #dravetsyndrome #fyp #family #memories #nottodaydravet #bseizurefree #�
Friday was a tough day. It sucks that Dravet not only affects B but it also has impacts on the entir
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Friday was a tough day. It sucks that Dravet not only affects B but it also has impacts on the entir
My husbands Emergency Surgery + my infection/turned into scheduled surgery … plus my daughter need
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My husbands Emergency Surgery + my infection/turned into scheduled surgery … plus my daughter need
So grateful for our son’s AAC device. B is non speaking due to Dravet Syndrome but understands eve
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So grateful for our son’s AAC device. B is non speaking due to Dravet Syndrome but understands eve
The beach has always been a huge seizure trigger for B. As he gets older however, he’s able to las
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The beach has always been a huge seizure trigger for B. As he gets older however, he’s able to las
B’s face is still healing from Saturday’s seizure 😔 but we got what sounded like a new word f
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B’s face is still healing from Saturday’s seizure 😔 but we got what sounded like a new word f
We had a horrible week of seizures and B didn’t get to do much of what I had hoped for him. Today
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We had a horrible week of seizures and B didn’t get to do much of what I had hoped for him. Today
Gait issues go along with Dravet Syndrome. Many people have issues walking due to it. B is fortunate
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Gait issues go along with Dravet Syndrome. Many people have issues walking due to it. B is fortunate
Addy’s first SB clinic day in the books 🥹🫶🏼 #spinabifida #ventriculomegaly #medicalmom #m
If you can relate to this, IT IS NOT YOUR FAULT & I do believe that everything happens for a reason
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If you can relate to this, IT IS NOT YOUR FAULT & I do believe that everything happens for a reason
A seasoned QUEEN 👸🏼 and KING 🤴.  Lolzzz.  #disabilityparenting #caregiver #medicalmom #doct
This did NOT age well & I went dark for WEEKS after posting this video the day of our anatomy scan #
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This did NOT age well & I went dark for WEEKS after posting this video the day of our anatomy scan #
Replying to @PurduesaBasketballschool before B had a nurse with him at school, he always had a 1:1.
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Replying to @PurduesaBasketballschool before B had a nurse with him at school, he always had a 1:1.
Please can you help us by watching the whole video 😢 My husband needs emergency surgery + I have
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Please can you help us by watching the whole video 😢 My husband needs emergency surgery + I have

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