nuerologicalcondition hashtag performance
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😥I received a message this morning upon waking that my sons illness is disgusting and it casts a negative light" upon me by posting about it. That nobody wants to see it anymore and are frankly exhausted by it. Ironically, we're also in a space of not wanting to see it anymore because that would mean he was cured and able to live his life again. Let me ask, would any of you do anything different if it meant answers, funding, and awareness? If it meant love, kindness and prayer for him? If it was your son or daughter would you not scream for help if it meant a cure or subsiding symptoms? Max is the most humble, kind, loving and giving person I know. He always has been. To know him is to love his spirit and big heart. Currently Max continues to wake blind. He continues to have seizure activity. His body is racked with pain. He currently has lost is speech. All nuerological. He's on day 3 with a new nuerologist that's conducting treatment to alleviate, or lessen the severity of his condition. Chronic Regional Pain, nonepileptic seizures, functional nuerological disorder, dysautonomia. His memory is not good. These are stroke symptoms without the stroke. These treatments, medications and supplements are out of pocket. Max has a disability attorney but social security is behind 18 months. We filed 13 months ago. He was just denied medicaid last week. Yes I've appealed. Georgia is not on top of things! I'm his caretaker meaning I do not leave him alone ever. I will never teach again. I will continue to be his caregiver. We never expected any of this. It's left me in a position that is dire. Losing income has caused me to wake every morning in constant panic on how to provide for him, his needs and living. So yes, I will be open, honest and transparent always. I need help. I desperately need help. Max had a Amazon list. I've posted it on my Facebook page at the top. He also has apps such as cashapp, etc. I post those below. He has a gofundme as well. Any donation goes directly to him. In his name. His service dog also has needs if you'd like to donate to Roomba. She also has an Amazon wishlist I can provide to you. The most direct needs are his medications and treatment plan. Please message, text, write, or call me if you have any questions at all.#fyp #momlife #dogsoftiktok #miracles #FYP #MomsofTikTok #wereback #pleasehelp #please #pleasegoviral #nuerologicalcondition
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Currently raising funds for numerous treatments that Max will be able to get and bring him back from the current state of severe pain. Max had a very active life before getting sick. He had a social life. Dropped from planes. Consistently performing outstanding at his job. His heart is bigger than Texas. It always has been, even now. Max blames himself for where we are. The changes we've made to adjust to our new normal. But we won't be stagnant. Currently everything is late or behind. It's a struggle to make ends meet now. We currently aren't filming videos as Max's speech has drastically changed to stutters. We don't know why that symptom has returned. Max needs further treatments, physical and speech therapy. All the things insurance doesn't cover come out of pocket. The thing is my pockets are empty. I'm almost 60 years old and I fear daily how to keep our roof over out head. It's been hard for a long while but it's unprecedented difficulties these days. Maxwells apps listed above, his Amazon list is in bio #nuerologicalcondition #pleasegoviral #please #pleasehelp #wereback #MomsofTikTok #FYP #miracles #dogsoftiktok #momlife #fyp #werebackagain #werebackbaby
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