osteogenesisimperfecta hashtag performance
#osteogenesisimperfecta highlights a genetic disorder causing brittle bones, frequent fractures, and varying severity. Community shares experiences, support, awareness, advocacy, education, resources, stories, hope, resilience, and promotes understanding of diverse challenges.
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Words cannot describe how proud I am of my little girl! š„¹š„¹š„¹š„¹ #fyp #foryoupage #crawling #toddlersoftiktok #toddlertok #goals #strong #kidsoftiktok #warrior #osteogenesisimperfecta #ourlittlemms #maryammia #specialneeds #proud #proudmom #babysteps #miraclebaby #oistrong
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When your girl asks for a chocolate snack (before vs. after) ššš
Check link in bio to follow us on Facebook, Instagram, and YouTube! ā¤ļøā¤ļø#fyp #funnyvideo #funnytoddler #toddlersoftiktok #twins #chocolate #snack #messytiktok #mess #kidsoftiktok #osteogenesisimperfecta #ourlittlemms #maryammia
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Out shopping for toys and snacks, give me a life like that š #fyp #foryoupage #dayinthelife #twins #shopping #snacks #toys #toddlerlife #cute #cutebaby #osteogenesisimperfecta #ourlittlemms #maryammia @Walmart
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A little princess treatment will always turn any frown upside down š„¹ā¤ļø #sweet #cute #cutebaby #princess #princesstreatment #dailyaffirmations #peptalk #babygirl #mommysgirl #toddlersoftiktok #toddlerlife #sahm #mamabear #happy #osteogenesisimperfecta #ourlittlemms #maryammia
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They have the cutest most innocent little reactions ever! š„¹ā¤ļø #fyp #foryourpage #canvas #painting #toddlersoftiktok #cute #cutebaby #twins #ourlittlemms #maryammia #osteogenesisimperfecta #kidsoftiktok #funnykids #cutetoddler #sweet
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So proud of my little girl for getting her core to be this strong!! š„¹ #cute #cutebaby #toddler #toddlersoftiktok #adorable #corestrength #situps #milestones #strong #babygirl #nevergiveup #proud #proudmom #sahm #osteogenesisimperfecta #ourlittlemms #maryammia #dance #shykids #funexercise
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2024 has come to an end, and my heart is overwhelmed with emotion. š„¹ This was the year God showed us miracles in the form of our little girlsā progressāthe year our hopes, dreams, and prayers became reality. š We witnessed the impossible unfold before our eyes, and for that, we are forever grateful. ā¤ļøThis year also brought us the gift of a family that extends beyond bloodāmillions of you who cheer for our girls, love them, and support us in ways we can never fully repay. š„¹ā¤ļø As we step into 2025, I pray for even more blessingsāfor my girls, our family, and every child and adult with special needs. I pray for strength and happiness for their families, who love so deeply and work so hard, even when no one sees their struggles. I hope this year brings more kindness, more progress, and more moments of joy for all of us.šā¤ļø To everyone reading this, thank you for being a part of our story. Hereās to more answered prayers, more victoriesābig and smallāand more love in 2025. #newyear #2024 #2025 #celebration #reflection #capcut #twins #ourlittlemms #maryammia #osteogenesisimperfecta #sweet #fypć· #foryoupage #viralvideo
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When your twin sister is your best friend, you canāt ask for anything else š„¹ #cute #cutebaby #toddlersoftiktok #toddlermom #girlmom #sahm #ballpit #fun #kidsoftiktok #playing #adorable #sweet #aww #twins #sisters #pt #physicaltherapy #therapy #milestone #proudmom #nevergiveup #osteogenesisimperfecta #ourlittlemms #maryammia
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š£ Life Update: Upcoming Surgeries and Facing Fears For most patients with a tracheostomy, regular trache changes are a routine outpatient procedure. But for me, itās a completely different story. Because my left lung no longer functions and the risk of coding is so high, I can only have my trache changed under anesthesia in the OR. Typically, I undergo this surgery every year or so, but itās been since July 2023 that my trache hasnāt been replaced. On top of that, Iām dealing with a protruding metal rod in my right arm thatās nearly breaking through my skin. Itās a painful reminder that I need orthopedic surgery as soon as possible, and Iām currently waiting on my referral to see a new orthopedic surgeon. Thankfully, my head and neck surgeon, Dr. Paul Kedeshian, has decided to combine the trache change with the orthopedic procedure, killing two birds with one stone. While itās reassuring to tackle both issues at once, Iād be lying if I said I wasnāt scared. This will be my first surgery without my mom, my ultimate source of strength and moral support. Not having her around feels like a huge void, and itās hard not to feel hesitant about whatās ahead. But I know she would want me to face these challenges head-on, just like she always taught me. Iām praying everything goes smoothly because I have so many projects in the works, and I want to keep pushing forwardānot just for myself, but for Mama Bonezz. Even after sheās gone, Iām determined to keep making her proud. Thank you to everyone who continues to support me on this journey. Your love and encouragement mean everything. š #MizterBonezz #LifeUpdate #SurgeryJourney #Tracheostomy #OrthopedicSurgery #HealthChallenges #Resilience #StayStrong #KeepFighting #DisabilityAwareness #ChronicIllnessWarrior #OsteogenesisImperfecta #RareDisease #MamaBonezz #MakingMamaProud #MentalStrength #PrayersUp #NeverGiveUp #MusicIsMedicine #OvercomingObstacles #LifeWithOI #Inspiration #FaithOverFear #CreativeJourney #StayPositive
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GRWM: Hot Disabled Edition (emotional) #disabled #disabilityawareness #osteogenesisimperfecta #bonestimulator #nobonesday #wheelchair #grwm #connectivetissuedisorder
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Replying to @Mr. Glass canāt be sad when I have makeup on. #disabled #makeup #grwm #osteogenesisimperfecta
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Itās just a āØnatural makeup lookāØ for me #creatorsearchinsights #blacklipstick #naturalmakeup #makeup #grwm #disabled #osteogenesisimperfecta #wheelchair
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I forget thatās not normal. #osteogenesisimperfecta #nobonesday
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Throwback to this gem. I saw this sound making a comeback. #adultswim #makeup #osteogenesisimperfecta #disabled
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