Kyra

pfeiffersyndrome hashtag performance

#PfeifferSyndrome: A hashtag for awareness. Showcasing lives, sharing stories of individuals with this rare genetic condition, highlighting challenges, celebrating milestones, and fostering community support.
Raedyn was telling all of the nurses before surgery his name and age πŸ’œ he vocally tries to say Ra
358.1k
Raedyn was telling all of the nurses before surgery his name and age πŸ’œ he vocally tries to say Ra
Little Update πŸ’œ #risewithraedyn #pfeiffersyndrome #craniosynostosis #trachbabies #surgery #recove
88.5k
Little Update πŸ’œ #risewithraedyn #pfeiffersyndrome #craniosynostosis #trachbabies #surgery #recove
shewwww it’s warm here β˜€οΈπŸ₯΅ #grwm #pfeiffersyndrome ✨ @Haus Labs by Lady Gaga @Rare Beaut
74.6k
shewwww it’s warm here β˜€οΈπŸ₯΅ #grwm #pfeiffersyndrome ✨ @Haus Labs by Lady Gaga @Rare Beaut
Watch till the end for the cutest little helper πŸ’œ #risewithraedyn #pfeiffersyndrome #trachbabies
35.7k
Watch till the end for the cutest little helper πŸ’œ #risewithraedyn #pfeiffersyndrome #trachbabies
The best little helper around πŸ’œ #risewithraedyn #pfeiffersyndrome #craniosynostosis #trachbabies
32.8k
The best little helper around πŸ’œ #risewithraedyn #pfeiffersyndrome #craniosynostosis #trachbabies
We have been monitoring Raedyns blood sugar for some time now, he is getting so good with it πŸ’œ #r
25.0k
We have been monitoring Raedyns blood sugar for some time now, he is getting so good with it πŸ’œ #r
me??? a headband girly??? say it ain’t so lol #hearingaids #hardofhearing #pfeiffersyndrome
21.6k
me??? a headband girly??? say it ain’t so lol #hearingaids #hardofhearing #pfeiffersyndrome
I was so scared. My whole life would have to change. I would leave my job, my home, and the town I l
20.9k
I was so scared. My whole life would have to change. I would leave my job, my home, and the town I l
Day 1 Post Op Update πŸ’œ #risewithraedyn #pfeiffersyndrome #craniosynostosis #trachbabies #recovery
18.6k
Day 1 Post Op Update πŸ’œ #risewithraedyn #pfeiffersyndrome #craniosynostosis #trachbabies #recovery
This life has scarred me for life. I’m forever living in crisis mode and scared to miss the smarte
17.4k
This life has scarred me for life. I’m forever living in crisis mode and scared to miss the smarte
to keep or not to keep?! βœ¨πŸ’— #makeupreview #hauslabsfoundation #pfeiffersyndrome
14.9k
to keep or not to keep?! βœ¨πŸ’— #makeupreview #hauslabsfoundation #pfeiffersyndrome
waterproof mascara bc I will be sobbing tonight 😭 #grwm #pfeiffersyndrome βœ¨πŸ’› @ONE SIZE BEAU
14.7k
waterproof mascara bc I will be sobbing tonight 😭 #grwm #pfeiffersyndrome βœ¨πŸ’› @ONE SIZE BEAU
Literally πŸ™ŒπŸ½ #risewithraedyn #pfeiffersyndrome #craniosynostosis #trachbabies #morealikethandi
13.4k
Literally πŸ™ŒπŸ½ #risewithraedyn #pfeiffersyndrome #craniosynostosis #trachbabies #morealikethandi
no longer have the new job jitters πŸ’ƒπŸ”₯✨ #grwm #ootd #newjob #pfeiffersyndrome
12.4k
no longer have the new job jitters πŸ’ƒπŸ”₯✨ #grwm #ootd #newjob #pfeiffersyndrome
business casual is my fav uniform πŸ’ƒβœ¨ #businesscasual #outfitinspo #whatiweartowork #fittok #ne
11.1k
business casual is my fav uniform πŸ’ƒβœ¨ #businesscasual #outfitinspo #whatiweartowork #fittok #ne
happy monday βœ¨πŸ’ƒπŸ”₯ #businesscasual #outfitinspo #whatiweartowork #ootd #thrifted #pfeiffe
10.4k
happy monday βœ¨πŸ’ƒπŸ”₯ #businesscasual #outfitinspo #whatiweartowork #ootd #thrifted #pfeiffe
week 3 update πŸ˜Œβœ¨πŸ’› #newjob #grwm #pfeiffersyndrome πŸ’—πŸ’—πŸ’— @ONE SIZE BEAUTY @elfcosmet
8.0k
week 3 update πŸ˜Œβœ¨πŸ’› #newjob #grwm #pfeiffersyndrome πŸ’—πŸ’—πŸ’— @ONE SIZE BEAUTY @elfcosmet

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