pfeiffersyndrome hashtag performance

I remember the days where I was drowning, thinking I’m never going to make it out of this. And here we are! Doing it! Stay strong and lean on your circle of support, if you don’t have one.. you have me! 🫶🏼 #risewithraedyn #medicalmama #medicallycomplex #pfeiffersyndrome #craniosynostosis #trachbaby #craniofacialdifference #specialneedsmom

oh I be scrubbin!!!! 🫧🛁💆🏻‍♀️ #pfeiffersyndrome

He never quits. He doesn’t understand “can’t”. He finds a new way and pushes on. We could all learn a little something from his resilience 💜 #risewithraedyn #medicallycomplex #pfeiffersyndrome #craniosynostosis #trachbaby #medicalmama #specialneedsmom

Some days I get so sad that the world isn’t kinder to my son, but then i remember just how much he is loved by his family and how we all go above and beyond to make these special memories with him 💜 #risewithraedyn #toddlersoftiktok #pfeiffersyndrome #craniosynostosis #trachbaby #medicalmama #medicallycomplex #bekind #speechdelay #craniofacialdifference #acceptance #inclusion #inclusiveplay

Little dance party with my guy 🪩🕺🏼#risewithraedyn #boyswillbeboys #toddlersoftiktok #pfeiffersyndrome #craniosynostosis #trachbaby #medicalmama #specialneedsmom #bekind #specialneedsmom

Raedyn has to sleep with at least a handful of cars next to him every night 💜 #risewithraedyn #boyswillbeboys #toddlersoftiktok #pfeiffersyndrome #craniosynostosis #trachbaby #medicalmama #specialneedsmom #bekind

Learning colors in ASL 💜 Raedyn has recently started signing some colors independently while playing! #risewithraedyn #medicallycomplex #pfeiffersyndrome #craniosynostosis #speechdelay #americansignlanguage #asl #colorsinsignlanguage

I haven’t posted on here much honestly from pure disbelief that I made it this far- TO VEGAS BABY!! But I really am so proud of myself and who I’ve become over the last couple of years. Sharing my journey with #pfeiffersyndrome has been the best experience and truly life changing. I’m so grateful for the people I get the opportunity to connect with. Being an an accessible advocate nominee for @Cheer Choice Awards 2025 is something I will remember forever! ✨ thank you for being here 💛💛💛

So many people have the wrong idea about a Trach. They think it takes away the ability to speak, which is false. The trach makes it trickier, but it is possible with work. Raedyn is getting the hang of it, and is getting much louder. Listen to the babble I missed for 3.5 years 💜 #risewithraedyn #toddlersoftiktok #pfeiffersyndrome #craniosynostosis #trachbaby #trach #medicallycomplex #medicalmama #speechdelay #inclusion #craniofacialdifference #acceptance

Day 1! Travel day! ✈️ our first family vacation! So glad my mom, and nana could come with us! They helped sooo much! #risewithraedyn #christmas2024 #christmasinhawaii #honoluluhawaii #traveltiktok #travel #adayinmylife #medicallycomplex #familyvacation #travelingwithkids #pfeiffersyndrome #trachbaby #craniofacialdifference #bekind #christmasvacation

Day 2 in Hawaii 🌴 Visit through the Polynesian Center! Definitely a memorable experience! 💜 Raedyn embraced his inner island boy and ran around all day with no shoes! Played with rocks and tried coconut milk! #risewithraedyn #christmas2024 #christmasinhawaii #honoluluhawaii #polynesiancenter #traveltiktok #medicallycomplex #travelingwithkids #pfeiffersyndrome #trachbaby #craniofacialdifference #bekind #trachbaby #specialneedsmom

Day 3 In Hawaii 🏝️ Dad and big brother got up early and went deep sea fishing! Then we all went snorkeling together while Nana & Grandma watched Raedyn on the boat 💜 We seen turtles, squid and lots of fish! #risewithraedyn #christmasinhawaii #honoluluhawaii #traveltiktok #travelingwithkids #medicallycomplex #pfeiffersyndrome #trachbaby #craniofacialdifference #adayinmylife #bekind #pfeiffersyndrome #specialneedsmom #familyvacation #christmasvacation #honoluluhawaii #deepseafishing #snorkeling #hawaiiturtle

When it’s below Zero outside.. we stay inside with our Jammie’s on and find fun new activities ❤️ #risewithraedyn #pfeiffersyndrome #craniosynostosis #trachbaby #medicallycomplex #inclusion #speechdelay #boyswillbeboys #acceptance

Replying to @natasliahtsuj Different is NOT less than. ✌🏻 #facialdifferences #pfeiffersyndrome #equality #differentisbeautiful #medicalmom #craniosynostosis #ithankgodforyou