specialneedsmom hashtag performance
#SpecialNeedsMom highlights resilience, love, advocacy, community, challenges, triumphs, support, awareness, education, empowerment, sharing experiences, unique journeys, strength, understanding, inclusion, connection, hope, inspiration, parenting, dedication, patience, acceptance, kindness, growth, resources, balance, empathy, storytelling, awareness, joy.
5.7m
Eight years since diagnosis, and Carter is showing us what resilience looks like. At 12 years old, he’s doing well for someone with Sanfilippo syndrome. And yes we did find out that he is type A which is considered to be the most common/severe. Every day is a reminder to cherish the moments that matter most. 💜 #pepememe #pepetheprawn #swipe #fyp #storytime #mco #diagnosis #diagnosisstorytime #sanfilipposyndrome #disney #disneyworld #tramatized #familytrip #medicallycomplex #carterschallenge #rarediseaseawareness #raredisease #momsofinstiktok #specialneedsmom #lifewithadisability #caregiverlife #advocatelikeamother #specialneedsfamily #sanfilippoawareness #sanfilippolife #parentingjourney
2.7m
Was NOT expecting to be transferred to deliver at 28 weeks… Full story time coming soon but for now, we have chosen to not deliver given current information 💛 #spinabifidawarrior #medicaltiktok #highriskpregnancy #medicalmom #fetalsurgery #hospitallife #spinabifida #myelomeningocele #specialneedsmom #foryou #MomsofTikTok #morningroutine #amnioticbandsyndrome
1.6m
To say this weekend was fun, is an understatement 🎄 #risewithraedyn #pfeiffersyndrome #christmascountdown #acceptance #inclusion #inclusionmatters #bekind #trachbaby #toddlersoftiktok #craniofacialdifference #specialneedsmom
1.4m
It took a lot of work to get to this peaceful point.🥹🙏🏽 Autism Friendly Haircuts for my boys🧩♾️💈✂️ ( Baby brother is napping, so he will get his done later :) All of these items shown in the video are linked in my bio - Amazon storefront under “Autism Sensory Tools” 🫶🏽 #autismhaircut #haircutathome #haircuts #barber #girlbarber #silentclippers #athomebarber #autismfriendly #autismedition #autismmom #nuerodivergent #loveneedsnowords #stimming #barberfinds #selftaught #kidshaircut #nonspeaking #hairtok #hair #hairtransformation #selftaughtbarber #sandiego #boymom #barbershop #specialneedsparenting #specialneedsmom #fade #combover #happyhands #latinamom #latinacontentcreators #autismacceptance #christmasdecor #liloandstitch
890.8k
One day it will all be worth it for our sweet Addy girl 🫶🏼 #spinabifidawarrior #spinabifida #myelomeningocele #highriskpregnancy #medicalmom #fetalsurgery #specialneedsmom #foryou #MomsofTikTok #amnioticbandsyndrome #pregnantmama #medicaltiktok #hospitallife #morningroutine
785.3k
“Next time im use a hammer” 😂😂 shay said all my life i had to fight💀 #nonverbalautism #autism #autismawareness #caregiversoftiktok #sisters#specialneedsfamily #specialneedsmom #fyppppppppppppppppppppppp #xyzcba #blowthisup #getthisviral #sisters
678.1k
Being a parent makes you so vulnerable. My love for them is the most intense feeling I can imagine exists. I’m so grateful they’re mine 🤍 #cerebralpalsy #disabled #disability #disabledtoddler #specialneeds #disabilitytiktok #cpmom #specialneedsmom #toddlertok #cutetoddler #nonverbal #tubefed #gtube #nicu #nicumom #nicubaby #nicustrong #preemie #premature #prematurebaby #spasticcerebralpalsy #dayinthelife #Vlog #familyvlog #minivlog #morningroutine #emotional #specialneedsmom #specialneedssibling #brainbleed #caraccident #trauma #traumaticbraininjury #traumaticexperience #traumaticbirth #27weeker #vlogger #dailyvlog #vlogs #miraclebaby #comewithme #Lifestyle #getreadywithme #grwm #comewithus #morningvlog #satisfying #Lifestyle #motherhood #sahm
669.1k
60 second recap of the last 10 weeks… God is in this story & Addy will be worth it 💗 #spinabifida #myelomeningocele #amnioticbandsyndrome #MomsofTikTok #pprom #specialneedsmom #highriskpregnancy #foryou #nicumom #medicalmom #spinabifidawarrior #fetalsurgery #medicaltiktok #pregnantmama #pregnant
663.0k
588.7k
My disabled 5 year old had a horrifying wheelchair accident and broke his nose. He will be getting surgery within the week. I know I’m not composed AT ALL but honestly… a lot of PTSD and trauma has surfaced throughout this experience. Thank you for loving him and being so invested in his experiences. Our hearts are broken but tomorrow we’ll receive more answers that we are hopeful will bring peace. 🫶🏻 #accident #brokennose #ER #toddleraccident #c#cerebralpalsyd#disabledd#disabilityd#disabledtoddlers#specialneedsd#disabilitytiktokc#cpmoms#specialneedsmomt#toddlertokc#cutetoddlern#nonverbalt#tubefedg#gtuben#nicun#nicumomn#nicubabyn#nicustrongp#preemiep#prematurep#prematurebabys#spasticcerebralpalsyd#dayinthelifev#Vlogf#familyvlogm#minivlogm#morningroutinee#emotionals#specialneedsmoms#specialneedssiblingb#brainbleedc#caraccidentt#traumat#traumaticbraininjuryt#traumaticexperiencet#traumaticbirth2#27weekerv#vloggerd#dailyvlogv#vlogsm#miraclebabyc#comewithme#g#grwmc#comewithusm#morningvlog#m#motherhoodsahm
402.4k
Such a good visit with Hudson AND we got to see Addy in 3D today 🥹🫶🏼 #highriskpregnancy #spinabifida #myelomeningocele #medicalmom #specialneedsmom #MomsofTikTok #foryou #medicaltiktok #fetalsurgery #spinabifidawarrior #28weekspregnant #hospitallife #pregnantmama #morningroutine #ditl
273.2k
Addy, girl, give your mom & dad a break please 🫡 Fetal surgery complications are hitting us left & right #spinabifida #myelomeningocele #amnioticbandsyndrome #highriskpregnancy #medicalmom #MomsofTikTok #foryou #spinabifidawarrior #fetalsurgery #medicaltiktok #specialneedsmom #pregnantmama #pprom #nicumom #nicubaby #preemie
252.5k
Special Needs Siblings > Their relationship is EVERYTHING. #cerebralpalsy #disabled #disability #disabledtoddler #specialneeds #disabilitytiktok #cpmom #specialneedsmom #toddlertok #cutetoddler #nonverbal #tubefed #gtube #nicu #nicumom #nicubaby #nicustrong #preemie #premature #prematurebaby #spasticcerebralpalsy #dayinthelife #Vlog #familyvlog #minivlog #morningroutine #emotional #specialneedsmom #specialneedssibling #brainbleed #caraccident #trauma #traumaticbraininjury #traumaticexperience #traumaticbirth #27weeker #vlogger #dailyvlog #vlogs #miraclebaby #comewithme #Lifestyle #getreadywithme #grwm #comewithus #morningvlog #satisfying #Lifestyle #motherhood #sahm #onthisday
252.4k
Replying to @Tara Crabtree what an odd thing to feel comfortable saying to a stranger on the internet who is clearly going through so much 🫡 #spinabifidawarrior #spinabifida #myelomeningocele #highriskpregnancy #medicalmom #fetalsurgery #specialneedsmom #foryou #MomsofTikTok #amnioticbandsyndrome #pregnantmama #medicaltiktok #prolife
244.3k
Safe, seen, and so very loved. I cant remember what video I saw this on but I cant stop thinking about it. 😭😭🥹🤟🏽 #autismawareness #audhd #autismmom #autismacceptance #latediagnosedautistic #inclusion #autisticmom #autisticcreator #supportneedsmom #actuallyautistic #autismfamily #specialneedsmom #audhd
207.1k
Addy is the bossiest boss ever so we just do what she says 🤭 I’m still praying for a v*ginal delivery, but I have also accepted that it will be most likely be a c-section #spinabifidawarrior #spinabifida #myelomeningocele #medicaltiktok #highriskpregnancy #medicalmom #fetalsurgery #specialneedsmom #foryou #MomsofTikTok #amnioticbandsyndrome #pregnantmama #20weekanatomyscan #birthplan
182.5k
10/10 would do it again & have already seen some of the benefits of the surgery 🙌🏼#spinabifida #myelomeningocele #amnioticbandsyndrome #highriskpregnancy #medicalmom #MomsofTikTok #foryou #bedrest #pregnantmama #spinabifidawarrior #fetalsurgery #medicaltiktok #specialneedsmom
160.7k
Day 3 post accident and my heart is finally at peace with answers and information we got today. I will be updating you soon. ❤️ #accident #er #brokennose #injury #cerebralpalsy #disabled #disability #disabledtoddler #specialneeds #disabilitytiktok #cpmom #specialneedsmom #toddlertok #cutetoddler #nonverbal #tubefed #gtube #nicu #nicumom #nicubaby #nicustrong #preemie #premature #prematurebaby #spasticcerebralpalsy #dayinthelife #Vlog #familyvlog #minivlog #morningroutine #emotional #specialneedsmom #specialneedssibling #brainbleed #caraccident #trauma #traumaticbraininjury #traumaticexperience #traumaticbirth #27weeker #vlogger #dailyvlog #vlogs #miraclebaby #comewithme #Lifestyle #getreadywithme #grwm #comewithus #morningvlog #satisfying #Lifestyle #motherhood #sahm
159.0k
Addy’s ultrasound was stable this morning, with no amniotic bands constricting any limbs or cord 🫶🏼 It’s hard explaining but I have grieved my entire pregnancy since finding out her diagnosis so seeing this video broke my heart #spinabifidawarrior #spinabifida #myelomeningocele #medicaltiktok #highriskpregnancy #medicalmom #fetalsurgery #specialneedsmom #foryou #MomsofTikTok #amnioticbandsyndrome #pregnantmama #20weekanatomyscan
146.3k
Replying to @Rosa💀🖤 thank you for brining this up bit it’s important to jote that just becuase a child might have predominant eyebrows and a low nasal bridge. It does not mean that they have Sanfilippo syndrome which mnay parents are now worried about. #sanfilipposyndrome #thelook #facialfeatures #genetic #phenotype #attenuated #sanfilippoawareness #raredisease #rarediseaseawareness #medicaladvocacy #caregiverlife #specialneedsmom #momlifeunfiltered #geneticdisorder #disabilityawareness #notjustalook #diagnosisjourney #rarediseasecommunity #specialneedsadvocate #undiagnosed #medicalmom #rarediseasewarrior #advocatelikeamother #specialneedsawareness #invisibleillness
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