terminalillness hashtag performance
#TerminalIllness: Raw, vulnerable, and deeply personal. Facing mortality, sharing stories of struggle, resilience, and love. Finding community, seeking support, documenting journeys, and leaving legacies. Hope amidst suffering.
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Meet Anthony, he has a rare terminal genetic condition called Batten Disease. Spend the morning with
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Say hello to Anthony, he has Batten Disease, a rare, terminal, genetic condition. Batten Disease is
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Not me crashing out over the fact that my daughters doc may want to *try* weaning her off the vent�
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She’s the most resilient human and is fighting this disease with everything she has! 😩💪🏼
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Batten Disease affects 2-4 births per 100,000 in the US. Anthony has CLN7, one of the rarer forms of
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HAPPY RARE DISEASE AWARENESS DAY !! 🤍🦓 i cannot stress this enough, we need more of us in rese
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Batten Disease is a rare, terminal, genetic disease. My son Anthony was diagnosed at the age of four
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Zion watching this video back: “Haha that’s great” 🤣 The way these kids just have an unders
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Meet Anthony, he has a rare, terminal, genetic conditions called Batten Disease. He was born typical
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If anyone wants to talk about this or related concerns feel free to DM me— ILY!! (post inspired by
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Meet Anthony, he has a rare, terminal, genetic disease, called Batten Disease. He was diagnosed at t
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Diary of a medical mom. Dear Diary, when will things get better? Batten Disease is kicking our butts
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