terminallyillchild hashtag performance

I want to scream from the rooftops that i am not strong. I am working incredibly hard to take care of my family when all i want to do is crawl in a hole and cry. #medicalmom #terminallyillchild #doingmybest #griefjourney #fyp #anticipatorygrief #icandohardthings

Replying to @Katie T137 what on earth am I going to do with out the ability to process the way. 😭😩 #medicalmom #doingmybest #fyp #icandohardthings #iep #seizure #terminallyillchild

I don’t ever want to be in the position where I have to move my vehicle before I can get my daughter safely inside. #medicalmom #accessiblevehicle #accessibility #terminallyillchild #fyp

Happy Monday 💜#medicalmom #doingmybest #fyp #icandohardthings #iep #snow #terminallyillchild

#duet with @Aimee Sieh its there for every moment. #drafts #terminallyillchild #griefjourney #anticipatorygrief #icandohardthings #fyp

Replying to @Skepticbychoice me too!!! Sorry for my long delayed response! #invictus #medicalmom #terminallyillchild #griefjourney #fyp #healingoutloud

I hate it here. #medicalmom #terminallyillchild #fyp #doingmybest

I could dwell on the really hard, scary, and devastating parts of this past year. But I’m determined not to. Choosing to sit with gratitude for our people and all they do for us. I truly have an incredible family and community who have stepped up in incredible ways to support us. The power of this online community has surpassed anything I could have imagined when I started crying on the internet. Thanks for seeing me and helping me sit with all the big feelings, for the advice, for the love and support. I don’t know how I would have made it through the year without you. Here’s to hoping I won’t lose it in 2025 💜 #terminallyillchild #griefjourney #fyp #grateful #medicalmom #icandohardthings

Is my best always enough? Yes. Does it ever feel like it? No. #drafts #doingmybest #medicalmom #terminallyillchild #fyp

Probably way too long. #medicalmom #terminallyillchild #doingmybest #griefjourney #loveyourself #fyp

Thanks for being here. It has meant the world to me. 💜#medicalmom #doingmybest #fyp #icandohardthings #terminallyillchild #griefjourney #anticipatorygrief

My 2024 on ⏰⏰. Thanks for being my outlet as i learn to coexist with joy and grief. Its been another year of working to find peace in the fire. Grateful for those standing in the flames beside me. #medicalmom #terminallyillchild #2024 #fyp #griefjourney #nye

#onthisday watching this video and realizing I’m in nearly an identical situation. Its currently 445am, I’ve been up with Izzy since 3, there is a beautiful blanket of snow on the ground, and I am still trying to enjoy the magic calm of the morning. The difference is she is sleeping. Restless a bit right now but sleeping. Over the last year, we’ve worked so hard to help Izzy sleep, we have a good medication plan and have gained access equipment to help her sleep and breath comfortably. Her disease has progressed quite a bit, but so has our ability to care for her. 💜 #medicalmom #doingmybest #terminallyillchild #fyp #icandohardthings #sleeplessnights