Anticipatory grief 10/10 don’t recommend. My response to the comments: 1. Because watching him die is supposed to be fun? 2. Or, maybe she needs support and some people have hearts. Feeling like a charity case is hardly fun 3. Live with ALS for 48 hours and then tell me what could be worse 4. You’ve had to change your 37 year old husbands diaper in the middle of the living room on a hospital bed with a toddler crawling on the bed, while your husband screamed because he was having extreme muscle spasms and he couldn’t speak to communicate what was wrong; all while running on 2-4 hours of broken sleep for more than 2 years? You were so consumed that your kids felt like they were losing both parents? 5. But when we are sad, we are also ridiculed 6. Because she has 3 children with futures she has to think about 7. No. Just no. They have been grieving him for 5+ years. This version of him is hard for them to see, and not how they want to remember him 8. I’d love to see anyone do it better
#als #lougehrigsdisease #frontotemporaldementia #grief #griefjourney #walkamileinmyshoes