ataxia hashtag performance

#Ataxia highlights awareness of coordination disorders, promoting education, support, and shared experiences among individuals affected. Users share personal stories, coping strategies, and resources to foster community and understanding of this condition.

He gone always get the job done no matter what! #ataxia #tbiawareness #foryoupageofficial #lynmal #lovesavedyou

He gone always get the job done no matter what! #ataxia #tbiawareness #foryoupageofficial #lynmal #lovesavedyou

In 2022, I was living in Colorado and working as a server at a taco restaurant. At first, everything seemed fine. I was busy but managing. About five months in, though, I started noticing small, strange changes. I became clumsier, tripping over rugs or sometimes nothing at all. I began dropping things—plates, drinks, and food—often during my shifts. It was embarrassing and frustrating. I assumed I was simply burnt out from working three to four 12-hour double shifts a week. My doctor agreed, saying it was likely just exhaustion, and I tried to push through. But as time passed, things didn’t get better—they got worse. The tightness I first felt in my feet spread to my legs, making them weaker and making it harder to keep my balance. My left arm started losing strength, and over time, the muscle itself began to thin. Twitching followed, starting in my left leg and gradually spreading to the rest of my body. Even the migraines I had dealt with for years intensified, becoming more severe and harder to manage. These symptoms made daily life increasingly challenging, but I still didn’t fully understand what was happening to me. For over a year and a half, I drove across the country, seeking answers. I went from one doctor to another, from specialist to specialist, desperate to figure out what was wrong. Finally, I ended up at the Mayo Clinic in Arizona, sitting in the office of a geneticist. After several rounds of extensive genetic testing—some of which took six months to process—I received a diagnosis: I have a rare mutation in my SLC1A2 gene. This mutation has documented links to epilepsy and neurodegenerative diseases like ALS and Alzheimer’s. It’s incredibly rare—fewer than a few hundred people worldwide are known to have this mutation, about 1 in 17.83 million. For a brief moment, I felt relief. I finally had answers. But those answers only brought more uncertainty. There’s still so much the medical community doesn’t know about this mutation. Unfortunately, this diagnosis also came with the confirmation of epilepsy and, more recently, a referral to an ALS clinic for further evaluation. The weight of these diagnoses has been overwhelming. Life has started to feel heavy, and I’ve found myself withdrawing, isolating more than ever. Some days, it’s hard to see a way forward. Still, I refuse to let this become my prison. I have a life to live, a purpose to fulfill, and a platform to raise awareness about rare diseases like mine. For anyone living with a rare disease or chronic illness, I see you. I understand how exhausting it is to face daily struggles, how frustrating it feels when once-simple tasks become challenges, and how vulnerable it feels to ask for help. But I want you to remember this: you are still you. You are not defined by your illness. Laugh until you cry. Cry because it’s overwhelming. Smile when you can. Feel everything—every bit of joy, sadness, and frustration. But no matter what, don’t give in. Don’t give up. You are stronger than you realize, and you don’t deserve to let this beat you. Keep fighting. Keep hoping. Keep living. You are not alone, and together, we are stronger than the challenges we face. #fyp #foryoupage #youresofunny #youresofunnytrend #rare #raredisease #rarediseaseawareness #chronic #chronicilless #chronicillnessawareness #awareness #advocacy #als #alsawareness #alzheimersawareness #alzheimers #epilepsy #epilepsyawareness #ataxia #spasticity #neuro #neuromuscular #neurology #neurologytiktok #neurologicaldisorder #change #positivity #Love #hope #disabled #disabledtiktok #disability #disabilitytiktok #disabilityawareness #disabledfriends #disabledcreator #supportdisabledcreators

In 2022, I was living in Colorado and working as a server at a taco restaurant. At first, everything seemed fine. I was busy but managing. About five months in, though, I started noticing small, strange changes. I became clumsier, tripping over rugs or sometimes nothing at all. I began dropping things—plates, drinks, and food—often during my shifts. It was embarrassing and frustrating. I assumed I was simply burnt out from working three to four 12-hour double shifts a week. My doctor agreed, saying it was likely just exhaustion, and I tried to push through. But as time passed, things didn’t get better—they got worse. The tightness I first felt in my feet spread to my legs, making them weaker and making it harder to keep my balance. My left arm started losing strength, and over time, the muscle itself began to thin. Twitching followed, starting in my left leg and gradually spreading to the rest of my body. Even the migraines I had dealt with for years intensified, becoming more severe and harder to manage. These symptoms made daily life increasingly challenging, but I still didn’t fully understand what was happening to me. For over a year and a half, I drove across the country, seeking answers. I went from one doctor to another, from specialist to specialist, desperate to figure out what was wrong. Finally, I ended up at the Mayo Clinic in Arizona, sitting in the office of a geneticist. After several rounds of extensive genetic testing—some of which took six months to process—I received a diagnosis: I have a rare mutation in my SLC1A2 gene. This mutation has documented links to epilepsy and neurodegenerative diseases like ALS and Alzheimer’s. It’s incredibly rare—fewer than a few hundred people worldwide are known to have this mutation, about 1 in 17.83 million. For a brief moment, I felt relief. I finally had answers. But those answers only brought more uncertainty. There’s still so much the medical community doesn’t know about this mutation. Unfortunately, this diagnosis also came with the confirmation of epilepsy and, more recently, a referral to an ALS clinic for further evaluation. The weight of these diagnoses has been overwhelming. Life has started to feel heavy, and I’ve found myself withdrawing, isolating more than ever. Some days, it’s hard to see a way forward. Still, I refuse to let this become my prison. I have a life to live, a purpose to fulfill, and a platform to raise awareness about rare diseases like mine. For anyone living with a rare disease or chronic illness, I see you. I understand how exhausting it is to face daily struggles, how frustrating it feels when once-simple tasks become challenges, and how vulnerable it feels to ask for help. But I want you to remember this: you are still you. You are not defined by your illness. Laugh until you cry. Cry because it’s overwhelming. Smile when you can. Feel everything—every bit of joy, sadness, and frustration. But no matter what, don’t give in. Don’t give up. You are stronger than you realize, and you don’t deserve to let this beat you. Keep fighting. Keep hoping. Keep living. You are not alone, and together, we are stronger than the challenges we face. #fyp #foryoupage #youresofunny #youresofunnytrend #rare #raredisease #rarediseaseawareness #chronic #chronicilless #chronicillnessawareness #awareness #advocacy #als #alsawareness #alzheimersawareness #alzheimers #epilepsy #epilepsyawareness #ataxia #spasticity #neuro #neuromuscular #neurology #neurologytiktok #neurologicaldisorder #change #positivity #Love #hope #disabled #disabledtiktok #disability #disabilitytiktok #disabilityawareness #disabledfriends #disabledcreator #supportdisabledcreators

Replying to @_beeny_weeny my symptoms #fyp #als #neuromuscular #slc1a2 #genetic #geneticmutation #rare #raredisease #rarediseaseawareness #spasticity #epilepsy #ataxia #neurologicaldisorder #disability

Replying to @_beeny_weeny my symptoms #fyp #als #neuromuscular #slc1a2 #genetic #geneticmutation #rare #raredisease #rarediseaseawareness #spasticity #epilepsy #ataxia #neurologicaldisorder #disability

Narcosynthesis and psychotherapy with added sound #childpsychology #psychology #psychotherapy #neurology #ataxia

Narcosynthesis and psychotherapy with added sound #childpsychology #psychology #psychotherapy #neurology #ataxia

chronic illness changes everything #chronicillness #chronicillnessawareness #raredisease #rarediseaseawareness #mikeysjourney #mikeystone #epilepsy #epilepsyawareness #spasticity #ataxia #slc1a2 #neurologicaldisorder #disabled #disability #disabilitytiktok #disabilityawareness #advocate #disabledfriends #disabledcreator #supportdisabledcreators #indigo #indigosong #indigotrend

i’m not different, am i? #fyp #foryoupage #mikeysjourney #imnotthatdifferent #rare #raredisease #rarediseaseawareness #epilepsy #chronicillness #als #spasticity #slc1a2 #ataxia #neuromuscular #genetics #geneticdisorser #mobilityaid

A letter to my besties 🫂 #fyp #besties #mikeysjourney #rare #raredisease #rarediseaseawareness #chronic #chronicillness #chronicillnessawareness #slc1a2 #epilepsy #epilepsyawareness #spasticity #spasticityawareness #ataxia #ataxiaawareness #neurology #neurologicaldisorder #disabled #disability #disabilityawareness #disabledfriends #disabledcreator #supportdisabledcreators #iloveyou #tiktok #tiktokban #myfinalmessage #Love #peace #hope

if tiktok is getting banned, thank you to everyone who has listened to my story and joined me on this journey. please follow me on my other social media accounts so we can stay in touch 💖🫂 #fyp #tiktok #tiktokban #rare #raredisease #rarediseaseawareness #chronic #chronicillness #chronicillnessawareness #epilepsy #epilepsyawareness #neuro #neurology #neurological #neurologicaldisorder #genetic #geneticdisorder #awareness #ataxia #spasticity #neuromuscular #disabled #disability #disabilityawareness #disabledfriends

Hi besties! Thank you again to everyone who made this possible. My heart is so filled with love at the moment. I am so thankful, and just want you to know that your support has made a huge difference in my life. 💖🫂 #fyp #foryoupage #mikeysjourney #rarewithmikey #youtube #unboxing #unboxingvideo #theraspecs #raredisease #rarediseaseawareness #chronicillness #chronicillnessawareness #epilepsy #epilepsyawareness #als #spasticity #slc1a2 #neuromuscular #ataxia #geneticdisorder #awareness #disabled #disabledtiktok #disability #disabilityawareness #disabledfriends #supportdisabledcreators #disabledcreator

Is your pet feeling wobbly? Today, Dr. Sanil answers a common question from pet parents: ‘What is ataxia?’ She breaks down the three types—proprioceptive, vestibular, and cerebellar—to help you better understand what might be causing your pet’s unsteady movements. 🐾 #ataxia #veterinaryneurology #neurology #vetmed

Is your pet feeling wobbly? Today, Dr. Sanil answers a common question from pet parents: ‘What is ataxia?’ She breaks down the three types—proprioceptive, vestibular, and cerebellar—to help you better understand what might be causing your pet’s unsteady movements. 🐾 #ataxia #veterinaryneurology #neurology #vetmed

People stare anyways so may as well give them something to look at🤗 #pimpmyride #Love #cute #disney #disneyland #inclusion #disability #allofthelights #disabilityawareness #specialneeds #specialneedsmom #blind #cvi #corticalvisualimpairment #opticnerveatrophy #nonmobile #nonverbal #ataxia #apraxia #dyspraxia #hypotonia #globaldevelopmentaldelay #raredisease #neurodegenerative #genetic #disease #kif1a #epilepsy

Hi everyone! I am so excited to share the D71 Folding Mobility Scooter from VOCIC-Medical with you because I absolutely love this scooter! Living with Cerebral Palsy, my muscles have to work harder than others without similar disabilities. So, I get tired quickly, especially when a lot of walking is involved. My body also struggles with daily aches and pain. This mobility scooter can benefit me in helping me save more energy and make it easier to move around on days my pain is high. What makes this scooter even more wonderful? It's lightweight and folds up so tiny, making it easy to transport anywhere! I truly love this scooter so much! #vocic #vocicd71 #mobilityscooter #cerebralpalsy #disability #lowtone #ataxia #disabledinfluencer #publicspeaker

Hi everyone! I am so excited to share the D71 Folding Mobility Scooter from VOCIC-Medical with you because I absolutely love this scooter! Living with Cerebral Palsy, my muscles have to work harder than others without similar disabilities. So, I get tired quickly, especially when a lot of walking is involved. My body also struggles with daily aches and pain. This mobility scooter can benefit me in helping me save more energy and make it easier to move around on days my pain is high. What makes this scooter even more wonderful? It's lightweight and folds up so tiny, making it easy to transport anywhere! I truly love this scooter so much! #vocic #vocicd71 #mobilityscooter #cerebralpalsy #disability #lowtone #ataxia #disabledinfluencer #publicspeaker

We will never let her disability hold her back from living her best life🤗 #disability #inclusion #disney #disneyland #cute #Love #sweet #wholesome #specialneeds #disabilityawareness #blind #cvi #opticnerveatrophy #corticalvisionimpairement #nonmobile #nonverbal #ataxia #apraxia #dyspraxia #hypotonia #globaldevelopmentaldelay #raredisease #neurodegenerative #genetic #disease #kif1a

I have been keeping busy preparing for now two birthday celebrations in February! Little Prince's birthday is February 18th and Little Princess's birthday is February 20th. This year Little Prince has requested a Pac-Man themed birthday party, I have taken on the challenge of creating my own decorations. It may take me some extra time because of my poor fine motor skills but I know my son is going to love it 💛 #BeBeautifullyDifferent #cerebralpalsy #lowtone #Ataxia #cerebralpalsyawareness #DIY #disabledmom #mommywithcerebralpalsy #mommywithadisability

I have been keeping busy preparing for now two birthday celebrations in February! Little Prince's birthday is February 18th and Little Princess's birthday is February 20th. This year Little Prince has requested a Pac-Man themed birthday party, I have taken on the challenge of creating my own decorations. It may take me some extra time because of my poor fine motor skills but I know my son is going to love it 💛 #BeBeautifullyDifferent #cerebralpalsy #lowtone #Ataxia #cerebralpalsyawareness #DIY #disabledmom #mommywithcerebralpalsy #mommywithadisability

During my birthday week, my brother and sister-in-law brought me to Sunrise Bread Company where I got to enjoy an iced coffee and a dairy free pumpkin muffin, yummy! It was so easy and enjoyable getting around downtown Titusville, FL with the help of my D71 Folding Mobility Scooter from VOCIC-Medical! It drives so smoothly over parking lots, sidewalks, cross paths, grass, and more. I love how small it is which doesn't just make it easy to transport places but makes it easier to drive in between chairs and tables when inside too. I was able to drive it right up to our table! #D71 #VOCIC #foldingmobilityscooter #mobilityscooter #cerebralpalsy #Ataxia #lowtone

During my birthday week, my brother and sister-in-law brought me to Sunrise Bread Company where I got to enjoy an iced coffee and a dairy free pumpkin muffin, yummy! It was so easy and enjoyable getting around downtown Titusville, FL with the help of my D71 Folding Mobility Scooter from VOCIC-Medical! It drives so smoothly over parking lots, sidewalks, cross paths, grass, and more. I love how small it is which doesn't just make it easy to transport places but makes it easier to drive in between chairs and tables when inside too. I was able to drive it right up to our table! #D71 #VOCIC #foldingmobilityscooter #mobilityscooter #cerebralpalsy #Ataxia #lowtone

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