Kyra

ebawareness hashtag performance

#EBawareness: Raising awareness for Epidermolysis Bullosa, a genetic skin disorder. Sharing stories, educating the public, fundraising, offering support, and promoting understanding. Building community.
For the ones we’ve lost, for the ones still here. Until every butterfly baby is known. #goglamforh
150.7k
For the ones we’ve lost, for the ones still here. Until every butterfly baby is known. #goglamforh
Video from the ‼️drafts‼️May, 2025.  | Im clearing my drafts folder | #epidermolysisbullosa
7.9k
Video from the ‼️drafts‼️May, 2025. | Im clearing my drafts folder | #epidermolysisbullosa
Replying to @sober_since11717 yes, I’ve made it alive this long. But at what cost? People don’t
4.7k
Replying to @sober_since11717 yes, I’ve made it alive this long. But at what cost? People don’t
@ellianarose6 #ellianarose #epidermolysisbullosa #findacure #ebawareness #eb #ebawareness #ypppppppp
3.1k
@ellianarose6 #ellianarose #epidermolysisbullosa #findacure #ebawareness #eb #ebawareness #ypppppppp
"The butterfly disease can't change her strength, because love and hope are always by her side."🦋
2.2k
"The butterfly disease can't change her strength, because love and hope are always by her side."🦋
way more time than anyone should endure this type of pain 💔 I’m exhausted & drained 💔 — #d
1.3k
way more time than anyone should endure this type of pain 💔 I’m exhausted & drained 💔 — #d

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