laryngomalacia hashtag performance

#laryngomalacia highlights a common infant condition where the soft laryngeal tissues collapse during inhalation, causing noisy breathing. It's vital for parents to understand signs, symptoms, and seek medical advice promptly.

The first six weeks of Devin’s life were some of the most challenging I’ve ever faced. Navigating the whirlwind of postpartum hormones, compounded by depression and anxiety, was already overwhelming. On top of that, her feeding struggles added so much stress to our sleep deprevation and navigating being a first time parent. We initially thought she had a cow’s milk allergy or that her feeding struggles were due to a tongue and lip tie, desperately searching for answers. She did have a tongue and lip tie but her struggles still continued after the release. I voiced my concerns to her pediatrician and lactation consultants, only to have them dismissed. It wasn’t until I stumbled upon a TikTok video of another mother sharing her child’s experience with laryngomalacia that everything suddenly clicked. Devin was later diagnosed with a mild case, and thankfully, she will continue to grow stronger and eventually outgrow it. We are incredibly lucky that she did not require surgery, but many children with more severe cases do. That’s not to say the journey has been easy. Laryngomalacia can cause significant reflux, which explained so many of the struggles we faced. The most helpful interventions have been feeding therapy with an occupational therapist and thickening her formula—both of which have made a world of difference. I share this because laryngomalacia is often overlooked, and awareness is so important. If a baby is having blue spells or struggling to gain weight, more extreme measures may be necessary, and early intervention can be critical. No parent should have their concerns dismissed when they know something isn’t right. Trust your instincts, advocate for your child, and push for the answers they deserve. #laryngomalacia #lm #gelmix #thickenedformula #sidelyingfeeding #lactationconsultant #feeding #newborn #newborntrenches #silentreflux #cmpa #stidor #newbornsounds #tonguetied #liptie #occupationaltherapy #feedingtherapy

The first six weeks of Devin’s life were some of the most challenging I’ve ever faced. Navigating the whirlwind of postpartum hormones, compounded by depression and anxiety, was already overwhelming. On top of that, her feeding struggles added so much stress to our sleep deprevation and navigating being a first time parent. We initially thought she had a cow’s milk allergy or that her feeding struggles were due to a tongue and lip tie, desperately searching for answers. She did have a tongue and lip tie but her struggles still continued after the release. I voiced my concerns to her pediatrician and lactation consultants, only to have them dismissed. It wasn’t until I stumbled upon a TikTok video of another mother sharing her child’s experience with laryngomalacia that everything suddenly clicked. Devin was later diagnosed with a mild case, and thankfully, she will continue to grow stronger and eventually outgrow it. We are incredibly lucky that she did not require surgery, but many children with more severe cases do. That’s not to say the journey has been easy. Laryngomalacia can cause significant reflux, which explained so many of the struggles we faced. The most helpful interventions have been feeding therapy with an occupational therapist and thickening her formula—both of which have made a world of difference. I share this because laryngomalacia is often overlooked, and awareness is so important. If a baby is having blue spells or struggling to gain weight, more extreme measures may be necessary, and early intervention can be critical. No parent should have their concerns dismissed when they know something isn’t right. Trust your instincts, advocate for your child, and push for the answers they deserve. #laryngomalacia #lm #gelmix #thickenedformula #sidelyingfeeding #lactationconsultant #feeding #newborn #newborntrenches #silentreflux #cmpa #stidor #newbornsounds #tonguetied #liptie #occupationaltherapy #feedingtherapy

It’s an interesting feeling to think back to 6 months ago, when Evie had her last airway surgery and directly after we unexpectedly attempted to decannulate her. I trusted my instincts and vocalized my concerns, especially around her safety with the upcoming flu season. As hopeful as I looked and felt on the outside, deep down I knew she wasn’t ready. She just simply needed more time for her airway to get stronger. While I always try to be her voice, her body does a beautiful job for her. Maybe not verbally, but in other ways in which we only see when we’re paying attention. Her body wasn’t ready, and her body made it clear. It was a blessing in disguise. Two weeks ago, we attempted to completely ween Evie from her ventilator. This was in an attempt to improve her rest periods, to minimize the stress on her trachea from constantly pulling her ventilator off. It was another trial and error. Her CO2 levels came back high from the previous baseline ones we drew at the time of this attempt. Before we had a chance to redraw them and double-check her levels, Evie tested positive for Influenza A. This week she’s been dependent on her ventilator and all of her airway support. Her body spoke to us and did what it needed to protect her. To keep her safe. While it’s not always the greatest feeling to be taking one step backwards in this journey, there’s a purpose to it. There’s opportunity within it. I hope our own story can be a reminder that just because something in your journey doesn’t go accordingly, doesn’t mean that there can’t be room for another purpose. One step at a time. 💛 - - - #airwaymalacia #medicalmom #laryngomalacia #tracheobronchomalacia #preemie #chroniclungdisease #trachbaby #gtube #medicallycomplexbaby #medicallyfragilechild #disability #trachmom

It’s an interesting feeling to think back to 6 months ago, when Evie had her last airway surgery and directly after we unexpectedly attempted to decannulate her. I trusted my instincts and vocalized my concerns, especially around her safety with the upcoming flu season. As hopeful as I looked and felt on the outside, deep down I knew she wasn’t ready. She just simply needed more time for her airway to get stronger. While I always try to be her voice, her body does a beautiful job for her. Maybe not verbally, but in other ways in which we only see when we’re paying attention. Her body wasn’t ready, and her body made it clear. It was a blessing in disguise. Two weeks ago, we attempted to completely ween Evie from her ventilator. This was in an attempt to improve her rest periods, to minimize the stress on her trachea from constantly pulling her ventilator off. It was another trial and error. Her CO2 levels came back high from the previous baseline ones we drew at the time of this attempt. Before we had a chance to redraw them and double-check her levels, Evie tested positive for Influenza A. This week she’s been dependent on her ventilator and all of her airway support. Her body spoke to us and did what it needed to protect her. To keep her safe. While it’s not always the greatest feeling to be taking one step backwards in this journey, there’s a purpose to it. There’s opportunity within it. I hope our own story can be a reminder that just because something in your journey doesn’t go accordingly, doesn’t mean that there can’t be room for another purpose. One step at a time. 💛 - - - #airwaymalacia #medicalmom #laryngomalacia #tracheobronchomalacia #preemie #chroniclungdisease #trachbaby #gtube #medicallycomplexbaby #medicallyfragilechild #disability #trachmom

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