malnutrition hashtag performance

I hate the ‘I don’t do - bc it’s giving in’ comments. Even if they aren’t directed at me. Forcing your body to do things it’s YELLING at you not to do, should not be a point of pride. But for so many, it is. Using mobility aids, relying on medication, chosing not to drive due to brain fog, using a handicap placard, etc are not ‘giving in’. It’s not weak to find ways to make the world more accessible and to adapt and overcome the many challenges that come along with having a struggling body. Be kind to yourself. And overusing your body isn’t being kind to yourself. I honestly don’t find pride when ppl tell me that stuff, I find sadness. You don’t deserve to suffer just for the sake of being ‘normal’ whatever tf that means. #heds #hEDS #brainfog #chronicillnessawareness #cptsd #dissociation #vascularcompression #painmanagement #pots #chronicpain #malnutrition #disabled #MentalHealth #ehlersdanlos #mals #tubie #smas #mobilityaid

I’m not gonna let them waste my time and impact my mental health just for the sake of being ‘polite’. Respect is earned. #heds #hEDS #brainfog #chronicillnessawareness #cptsd #dissociation #vascularcompression #painmanagement #pots #chronicpain #malnutrition #disabled #MentalHealth #ehlersdanlos #mals #tubie #smas #mobilityaid

the medical neglect ive experienced this year alone, the hard truths ive had to come to about the system, and even my own body and future, have changed me as a person. im working on learning how to stand up for myself in the moment and thats what has kept me alive. i will say i also wouldnt be here without the doctors ive met in the last two years and their going above and beyond to help people like me. heres to hoping 2025 is a little easier on all of us🤍 #ehlersdanlossyndrome #smas #vascularcompressionsyndromes #chronicillness #tpn #gjtube #malnutrition #metabolicacidosis

The healthcare has officially kept failing me and I’m so over it! Constantly being pushed back to square one and I still get nowhere besides suffering and litterly dying on my own without help. But they will still blame you at the end of the day!! #tpn #chronicillness #gastroparesis #ehlersdanlossyndrome #intestinaldysmotility #disabled #justsurvivesomehow #malnutrition

A lot y’all don’t Be dusty Y’all be malnourished #fy #dusty #malnutrition #funnyvideos #nutrition #hemoglobin

Girl I have internal joker scars from chewing my mouth my whole life and I still don’t know how to not💀 I’ve managed to work through most of my other unhealthy coping skills but this one is so automatic #heds #hEDS #brainfog #chronicillnessawareness #cptsd #dissociation #vascularcompression #painmanagement #pots #chronicpain #malnutrition #disabled #MentalHealth

I know that eventually you can’t hold the hope for yourself because it just hurts. And that’s okay. But know that there is hope. It took years to be where I am and so so many doctors, tests, procedures, interventions, surgeries, medications, medical devices etc. but now I’m in a place where I can truly say I’m healthier or rather more managed than I’ve been in over a decade. You aren’t alone. I see you. And I hold hope for you. #heds #hEDS #brainfog #chronicillnessawareness #cptsd #dissociation #vascularcompression #painmanagement #pots #chronicpain #malnutrition #disabled #MentalHealth #fatigue #mals #ehlersdanlos #smas #tubie #feedingtubeawareness #ncs

Please be kind to yourselves🫂🫶🫂there are so many options out there for ways to make your life a little less difficult, use them if you need to. #onthisday #heds #hEDS #brainfog #chronicillnessawareness #cptsd #cptsd #dissociation #vascularcompression #painmanagement #pots #chronicpain #malnutrition #MentalHealth #ehlersdanlos #tubie #mobilityaid #fatigue

I enter flashbacks and then just get upset at seemingly nothing💀 I’m working on it but man is it hard #heds #hEDS #brainfog #chronicillnessawareness #cptsd #dissociation #vascularcompression #painmanagement #pots #chronicpain #malnutrition #MentalHealth #ehlersdanlos #fatigue #disabled

#chronicillness #malnutrition ❤️

I wish the doctors knew how it feels to litterly starve it’s no fun! #chronicillness #gastroparesis #ehlersdanlossyndrome #intestinaldysmotility #gaslight #malnutrition #theythem

Today is not my day (blacking out is gunna happen) #chronicillness #ehlersdanlossyndrome #gastroparesis #intestinaldysmotility #malnutrition #pots #lgbt🌈 #they/them

Can we just talk about how doctors will litterly mess with you in your head and gaslight you! For those who know and the ones who don’t I’ve been having trouble getting nutrition since august with my blood infection when my Intestines stoped working correctly too. I was told tpn Isent a long term option and I went home on hospice. Within a month I was discharged for “getting better” as they said but told my mom that they can’t help me I need neuro and psychological help. I mean I’m litterly dying who Isent going to have feelings like that? I’ve been trying to start treatment back up since December and it is a struggle and the more worse I get the harder it is to keep going. Why is it always you and your parents or even just you the only ones fighting for life. It will never affect them when something happens because they refused to help. I’m tired and honestly is it even worth it anymore. Now I have another choice to make if it takes to long to get on tpn and I’m still going down like I am I will qualify for hospice again. No one ever talks about this in the chronic illness community how hard it is to just make choices. I mean at 21 I went in for heart surgery and signed a DNR and I believe that’s a lot of my problems now is they see me as a young person with that DNR but if we are honest I would rather be peaceful then get cpr and come back worse than I already am just to keep suffering and fighting for myself when the doctors won’t. What I have learned about myself since this has started is I stop talking to people it’s not like I want to but people pull away when they are scared of loosing you. And I get scared of getting close to people just to not know how long I’ll be here I don’t want to hurt anyone else. #chronicillness #gastroparesis #ehlersdanlossyndrome #starvingforacure #gaslight #intestinaldysmotility #disabled #malnutrition #theythem #lgbt

claiming my throne as the medically expensive child yet again 🤌 #fyp #minnesota #sodak #creator #creatorinsights #influencer #microinfluencer #trend #2024 #2024stats #stats #recap #endoftheyearrecap #medicallycomplex #chronicillness #chronicpain #chronicillnessawareness #chronicillnesswarrior #chronicillnesstiktok #er #trauma #iv #outpatient #inpatient #MentalHealth #mentalhealthmatters #surgery #emergencyroom #emergencysurgery #tumor #notcancer #feedingtube #jtube #njtube #tubefed #expensive #chronicmigraine #endometriosis #pots #heartproblems #hypotension #gastroparesis #paralyzedstomach #malnutrition #malnurished #problemchild #medicalmystery #prettyimpressive #

#onthisday it’s crazy that I’ve had my tube 2 years now. I’m so grateful for it for saving my life and giving me the chance to get the surgery that changed my baseline for the better. My tube continues to save my life and keep me out of the hospital. My initial placement was so painful and they told me it wouldn’t have been. I’m still shocked at the response I got when I needed pain management after they STABBED an organ. If your gj placement SUCKS, j know that a lot of us experienced that. It’s painful. But it does get better. My tube is comfortable now. I almost forget I have it. If you need pain management, push. Advocate for yourself. You aren’t weak. You’re not crazy bc it hurts. It HURTS for some ppl. For most of who’ve I’ve seen. #heds #hEDS #brainfog #chronicillnessawareness #cptsd #dissociation #vascularcompression #painmanagement #pots #chronicpain #malnutrition #disabled #MentalHealth #fatigue #mals #tubie #feedingtubeawareness #smas

I’m so greatful and thankful for the whole community I have made across Tik tok in these past couple of years. Don’t forget to follow me on all my other socials!!!! PSA to everyone: if you didn’t read further into this and believed it your a dummy! Much love I love you guys #chronicillness #jokesonyou #darkhumourandjokes #ehlersdanlossyndrome #gastroparesis #intestinaldysmotility #malnutrition #pots #lgbt🌈 #they #stud

I smell medical neglect!!! This shiz is for the birds#healthcaresucks #fyp #shadowbanned #advocate #chronicillness #ehlersdanlossyndrome #gastroparesis #disabled #intestinaldysmotility #malnutrition #pots #fnd

Guys thank you for being a part of me and letting me be a part of you guys. It’s sad to see you guys go on this app but hopefully we can keep the community and inspirations continuing on my other platforms!! #tiktokbanned #goodbye #chronicillness #ehlersdanlossyndrome #gastroparesis #intestinaldysmotility #malnutrition #pots #lgbt🌈 #they #missyouguys

Maybe if I dress how I wanna feel I’ll feel better 🤪 #chronicillness #ehlersdanlossyndrome #gastroparesis #intestinaldysmotility #malnutrition #pots #lgbt🌈 #they #stud

Follow me on my other socials to keep up with my journey and just to talk. I love the community I have made here on tik tok it’s wonderful. If you want my number just message me🙂! I’m thinking about starting back up my YouTube channel so stay tuned#chronicillness #gastroparesis #ehlersdanlossyndrome #intestinaldysmotility #malnutrition #theythem #lgbt #follow