Kyra

nf2 hashtag performance

The hashtag #nf2 relates to Neurofibromatosis type 2, a genetic disorder. Content often includes personal stories, awareness campaigns, support networks, health discussions, emotional experiences, fundraising efforts, and educational resources about living with NF2.
While Brain Surgery 🧠 is incredibly hard in itself, picking out your team is just so stressful. When you wheeled back into the OR (or like me walk and lay on the table as I wish my team good luck) you truly just have to let go and their life is in your hands. Having faith in your neurosurgeon is so important and I’ve been with one of mine for almost a decade and a half. People with NF2 always have to be prepared because there is no cure. My cup is just so full with starting this chemo, that getting these messages back to back is just hard to handle. #brain #nf2 #neurosurgeon #brainsurgery #surgeon #surgeonsoftiktok
7.9k
While Brain Surgery 🧠 is incredibly hard in itself, picking out your team is just so stressful. When you wheeled back into the OR (or like me walk and lay on the table as I wish my team good luck) you truly just have to let go and their life is in your hands. Having faith in your neurosurgeon is so important and I’ve been with one of mine for almost a decade and a half. People with NF2 always have to be prepared because there is no cure. My cup is just so full with starting this chemo, that getting these messages back to back is just hard to handle. #brain #nf2 #neurosurgeon #brainsurgery #surgeon #surgeonsoftiktok
SURVIVING CHEMO | NEW YouTube series 🚀 Launching next month | make sure to subscribe - link in bio (or just YouTube search my name) #chemotherapy #chemo #cancer #nf2 #braintumor
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SURVIVING CHEMO | NEW YouTube series 🚀 Launching next month | make sure to subscribe - link in bio (or just YouTube search my name) #chemotherapy #chemo #cancer #nf2 #braintumor
Today I start chemo. While I have brain tumors a lot of people think I have brain cancer but I don’t I have NF2. I actually have 13 tumors all over my body. NF2 is a disorder where my DNA doesn’t know when to shut off around my nerves. So it grows outwards pushing on things that it’s not supposed to (making tumors) or inwards shutting the nerves off. Because it’s with the nerves it is very painful and there is no cure. After chemo, experimental medicines, radiation and brain surgeries I am going on this to see what it’s going to do. I’m not going anywhere off of this and we will still have our regular programming of signs and deaf technology with a few updates throw in! #chemotherapy #chemotherapysideeffects #braincancer #braintumor #nf2
4.4k
Today I start chemo. While I have brain tumors a lot of people think I have brain cancer but I don’t I have NF2. I actually have 13 tumors all over my body. NF2 is a disorder where my DNA doesn’t know when to shut off around my nerves. So it grows outwards pushing on things that it’s not supposed to (making tumors) or inwards shutting the nerves off. Because it’s with the nerves it is very painful and there is no cure. After chemo, experimental medicines, radiation and brain surgeries I am going on this to see what it’s going to do. I’m not going anywhere off of this and we will still have our regular programming of signs and deaf technology with a few updates throw in! #chemotherapy #chemotherapysideeffects #braincancer #braintumor #nf2

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