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rarediagnosis hashtag performance
#RareDiagnosis: Sharing uncommon medical journeys. Support, awareness, and community for those with rare illnesses. Navigating challenges, fostering understanding, and highlighting unique experiences.
1.4m
Sharing the very first signs of our daughters fatal genetic condition, that we didn’t know were si
1.3m
The amount of tears that day is impossible to explain
#poppysstory
#part7
#rarediagnosis
#tbcd
902.2k
What the MRI found
#part3
#poppy
#rarediagnosis
#poppysstory
#corpuscollosum
480.6k
A look inside our home
#poppysstory
#part8
#rarediagnosis
#tbcd
#marriage
#familylife
544.0
May is
#ehlersdanlos
#awareness
month! Use hashtag
#EDSbattlescars
This app & Educational videos/He
start an influencer campaign that drives genuine engagement
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