Kyra

sarcoidosisawareness hashtag performance

#SarcoidosisAwareness: Compassionate platform, illuminating this rare disease. Sharing patient stories, educating about symptoms, promoting research, offering support. Building community, fostering empathy, and amplifying voices for early diagnosis.
I was enrolled to start nursing school last March, but I got sick on February 20, 2024. Last week, I had an assignment that required me to give a presentation, and I chose The Power of Art Therapy. Ironically, it has been exactly a year since that experience. This is the video I used as part of my presentation. It reminded me of these weary days but more importantly it showed me how resilient I truly am! I am so grateful that getting sick didn’t stop me from going back to school. To be honest, I almost let it—because I was diagnosed with an autoimmune disease called Sarcoidosis, commonly known as the Bernie Mac disease. I was afraid that being around sick people would be bad for my health. But I chose to keep pushing forward and live my life because I refuse to let a “what if” control my destiny. I am currently in nursing school with just two terms left. I will be done in September. Every day, I think about the moment I called the school and said, “I am ready to re-enroll.” And I’m so glad I did! #nursingschool #oldernursingstudent #rnstudentlife #hesinursingexam #nursingstudent #sarcoidosisawareness #sarcoidosiswarrior #berniemac
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I was enrolled to start nursing school last March, but I got sick on February 20, 2024. Last week, I had an assignment that required me to give a presentation, and I chose The Power of Art Therapy. Ironically, it has been exactly a year since that experience. This is the video I used as part of my presentation. It reminded me of these weary days but more importantly it showed me how resilient I truly am! I am so grateful that getting sick didn’t stop me from going back to school. To be honest, I almost let it—because I was diagnosed with an autoimmune disease called Sarcoidosis, commonly known as the Bernie Mac disease. I was afraid that being around sick people would be bad for my health. But I chose to keep pushing forward and live my life because I refuse to let a “what if” control my destiny. I am currently in nursing school with just two terms left. I will be done in September. Every day, I think about the moment I called the school and said, “I am ready to re-enroll.” And I’m so glad I did! #nursingschool #oldernursingstudent #rnstudentlife #hesinursingexam #nursingstudent #sarcoidosisawareness #sarcoidosiswarrior #berniemac
For My Boys Lofgren Syndrome Did Not Win The stairs stood tall, a silent wall, but love refused to let me fall. My legs were weak, my body sore, yet my heart cried out—I need more. Above me, voices, soft and sweet, my babies waking, shuffling feet. Yet I lay trapped, a world apart, with aching arms but a mother’s heart. So up I rose, before first light, before the world could doubt my fight. With nothing but my hands and will, I pulled, I climbed, I pushed uphill. One step, then two, then gasping air, the burn, the strain, the whispered prayer. Not for myself, but for their need— to have their mom, to feel her lead. And when I reached their room at last, my pain, my fear—they fell, they passed. Their sleepy morning voices, their morning hugs, made every tear worth it all. For love I disobey what bodies say, it lifts, it fights, it finds a way. And when the world said, stay behind, I rose, I climbed, I did it. -Ashley McCombs Mizell Blindmomofboys #youcandohardthings #lofgrensyndrome #sarcoidosisawareness #poem
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For My Boys Lofgren Syndrome Did Not Win The stairs stood tall, a silent wall, but love refused to let me fall. My legs were weak, my body sore, yet my heart cried out—I need more. Above me, voices, soft and sweet, my babies waking, shuffling feet. Yet I lay trapped, a world apart, with aching arms but a mother’s heart. So up I rose, before first light, before the world could doubt my fight. With nothing but my hands and will, I pulled, I climbed, I pushed uphill. One step, then two, then gasping air, the burn, the strain, the whispered prayer. Not for myself, but for their need— to have their mom, to feel her lead. And when I reached their room at last, my pain, my fear—they fell, they passed. Their sleepy morning voices, their morning hugs, made every tear worth it all. For love I disobey what bodies say, it lifts, it fights, it finds a way. And when the world said, stay behind, I rose, I climbed, I did it. -Ashley McCombs Mizell Blindmomofboys #youcandohardthings #lofgrensyndrome #sarcoidosisawareness #poem
Story Time while letting my mama cut my hair 🙈🙉🙊 #sarcoidosisawareness 💜
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Story Time while letting my mama cut my hair 🙈🙉🙊 #sarcoidosisawareness 💜

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