Kyra

thelonggoodbye hashtag performance

#TheLongGoodbye explores themes of nostalgia, reflection, and farewell. Users share poignant moments, bittersweet memories, and personal stories, creating a collective narrative about love, loss, and the passage of time.
One round of kids and grandsons here to visit Pat today! He seemed happy to see them all, sitting content and saying a few things!! This made Bradley especially happy! He's got great memories with his Papa! My hearts broken, especially knowing their hugs and I love you's could be their last. UGH! Much love all! #thelonggoodbye #staystrong #alzheimerssucks #thelonggoodbye #purpose #thelonggoodbye #TrueLove #iwillalwaysloveyou #heartbroken #FUAlzheimers #imissyou #awareness #youaremysunshine #missyousomuch #unconditionallove #loveismysuperpower #loveuforever
WOW! I suck today! But I'm gonna pull myself up out of it and stop whining and pitying myself. I'm gonna be appreciative for what I have, for where I've been, for where I may be going! I may not do it perfectly but I will do it! Things can always be worst. I thank God for YOU, and ask Him for peace, love, health, and prosperity in YOUR lives too!! Thank you for getting me through 2024 with some grace and a whole Lotta appreciation for so many good people! MUAHS to you all and see ya in the New Year! #loveismysuperpower #imissyou #loveuforever #unconditionallove #missyousomuch #FUAlzheimers #awareness #iwillalwaysloveyou #thelonggoodbye #heartbroken #TrueLove #alzheimerssucks #purpose #HappyNewYear #2025
this was Jan. 1st 2021... utterly unreal not knowing how much worst it would actually get! 3 years almost in Memory Care now and he can't speak and doesn't know me or our child! He can't say I love you,  or you're beautiful,  or playfully smack my butt or in public! lol He can't take or son to hockey and help coach him or tell everyone how very proud of him he is! I hate you EOAD, but I love you Pat! And I love US, the real us,  deep down in our hearts and souls! The is that still go on forever! Cheers to 21 married years at midnight tonight,  24 together! I still wouldn't change it for the world...#2025 #HappyNewYear #purpose #alzheimerssucks #TrueLove #heartbroken #thelonggoodbye #iwillalwaysloveyou #awareness #FUAlzheimers #missyousomuch #unconditionallove #loveuforever #imissyou #loveismysuperpower #staystrong #caregiverslife commitment
Seeing the ambulance at my husband's care home is a horrible feeling. It wasn't him. It's still a hard reality...I hope you all had a wonderful Christmas weekend and are looking forward to a great NYE tomorrow! Going live tonight, see you soon! Help me cheer up if you can!! Xoxo #purpose #alzheimerssucks #thelonggoodbye #TrueLove #heartbroken #iwillalwaysloveyou #awareness #FUAlzheimers #missyousomuch #unconditionallove #loveuforever #loveismysuperpower #imissyou
Merry Christmas everyone! we love you and thank you for your love and support!! And yes, Ayden k ew he was in the video! LOL Xox#thelonggoodbye #staystrong #iwillalwaysloveyou #awareness #FUAlzheimers #caregiverslife #loveismysuperpower #EndAlzheimersDisease #missingyou #lovehurts #youarenotalone #Dementia #spreadlove #griefisforever #alwaysinmyheart
I'm pretty good at compartmentalizing my emotions and getting done what I gotta do. 3 calls regarding Pat today, the 1st one no biggie. The other 2 made me cry. And of course I was working but sure glad I didn't have any customers when the calls came through. We'll talk about it on the livestream...Anyone have a magic wand or 3 wishes or can you call in a favor from God? No? Damn...Anyway, much love and I'll see ya soon. #anticipatorygrief #missyousomuch #unconditionallove #loveismysuperpower #CAREGIVERSLIFE #TrueLove #THELONGGOODBYE #ALZHEIMERSSUCKS #AWARENESS #FUALZHEIMERS #IMISSYOU #IWILLALWAYSLOVEYOU
#momsdementiajourney #dementia #alzheimers  #dementiaawareness #thelonggoodbye #fyp #DEMENTIA #alzheimers #crueljourney #mylife #tryingmybest #caregivers #wheresmycocktail #paranoia  #fkdementia #fkcancer #ductalcarcinoma
Lots to tell you about the meeting but I'll wait for the loce to so that. It's all good. It'll be fine. Pat was good today, looked good, seemed like he was feeling well, and was happy to eat the treats I brought! He made quick time of the ice cream cone and the blueberries.  Thank.you all so much for the outreach and concerns. I'll fill you in soon! Most important thing is the best care for Pat.  Love you all!  #anticipatorygrief #imissyou #awareness #iwillalwaysloveyou #heartbroken #thelonggoodbye #grief #FUAlzheimers #purpose #alzheimerssucks #caregiverslife
He totally tried giving high fives!! Granted there are times when the Alzheimer's brain is a big disconnect but there are plenty of times when it's working hard to do, see, say...all the things! I'm not sure if it's more heartbreaking for me or helpful for me! Everything with this disease is an oxymoron, opposing emotions every step of the way. Maybe Pat feels that way too?! I wish I knew!! I wish he could tell me! One things for sure, as hard as it is to be present with him in this journey, I wouldn't trade this time with him for anything. As bad as it is, as hard as it is...what else could be more important?! Much love all!! #alwaysinmyheart #griefisforever #spreadlove #Dementia #youarenotalone #lovehurts #missingyou #EndAlzheimersDisease #alwaysinmyheart #loveismysuperpower #caregiverslife #FUAlzheimers #awareness #iwillalwaysloveyou #staystrong #thelonggoodbye #happynewyear
Just in the knick of time! Then varestagg was just getting him up out of his seat for bedtime when I came around the corner, but they sat him back down for me to visit! He had his slippers on so I'm guessing his toe nail either came off or is feeling ok. And yes, he had gone to the bathroom! Whew! He did say Yeah when I asked him if he was happy I caught him.for a visit in time! I'll see you guys Live soon!!much love!! #purpose #alzheimerssucks #loveismysuperpower #missyousomuch #unconditionallove #caregiverslife #FUAlzheimers #grief #thelonggoodbye #heartbroken #iwillalwaysloveyou #awareness #imissyou #anticipatorygrief
I think the Memory Care homes Christmas party really buzzed everyone up!! lol A couple of them were in rare form, telling me all kinds of stories, following me around, giving hugs! One fella told me.his wife was probably cheating again, that she's done it before! lol Oh my!! Im sure the ones that can talk get real lonely and just want to share conversations! I sure wish Pat could talk too...I miss that so much!! If anyone has free time and would like to volunteer some a Memory Care home in your area needs you!! What a blessing it could be for so many!! Love you all and see you tomorrow night!! #happyholidays #merrychristmas #nevergiveup #alwaysinmyheart #griefisforever #lovehurts #spreadlove #Dementia #youarenotalone #lovehurts #missingyou #EndAlzheimersDisease #loveismysuperpower #caregiverslife #FUAlzheimers #awareness #iwillalwaysloveyou #staystrong ##thelonggoodbye
#caregiverslife #alzheimerssucks #purpose #FUAlzheimers #grief #thelonggoodbye #heartbroken #iwillalwaysloveyou #awareness #anticipatorygrief #imissyou #unconditionallove #missyousomuch #loveismysuperpower
SO MANY WORDS TODAY from my handsome guy!!! 😍 For some reason I was super emotional and almost left sooner than I planned...but I put on my big girl Packer pants and persevered! Thank God I did because my sweet man came through!! We have something rare, something special and no freaking disease, Early-onset Alzheimer's in our case, will ever change that! Go Pat, go us, and Go Packers!!! Love you all and have a great day!!! #imissyou #awareness #iwillalwaysloveyou #heartbroken #thelonggoodbye #grief #FUAlzheimers #caregiverslife #unconditionallove #missyousomuch #loveismysuperpower #alzheimerssucks #purpose #GoPackGo #GreenBayPackers
This is my sweet little husband, very sick with Early Onset Alzheimer's! It is called that (aka Younger Onset too) because it happened before the age of 65. In fact for him it was in his late 40s from 1st symptoms  and not.till 54 till diagnosis. It's dreadful, a nightmare, 💯life altering...stopping "us" as we knew it and planned it dead in its tracks...So we still do "date nights", and I wisit him almost daily, but Fri. nights I try and make a little more special. He'll always be my date, and I'll do my best until I can't to make him feel special. Pray for us and pur family, it just gets harder and harder. Have a good night all, much love! #missyousomuch #unconditionallove #caregiverslife #awareness #FUAlzheimers #fyp #grief #thelonggoodbye #heartbroken #iwillalwaysloveyou #awareness #imissyou
Family in town, one last Christmas celebration! My oldest son wasn't able to come but the rest of his family did! Visiting Pat, Papa to the grands! Bringing one of his favorite raspberry desserts! Cherish the moments when you can! Much love all, and GO PACK GO!! #loveismysuperpower #loveuforever #unconditionallove #missyousomuch #awareness #FUAlzheimers #heartbroken #iwillalwaysloveyou #TrueLove #thelonggoodbye #purpose #alzheimerssucks
Yay welcome back!! Here with Patrick to help answer everyone's questions about how Pat is!! He is having a good day. Not the strongest legs today so he's not walked much but he is safe and sound and seems content. LOVED the ice cream and even the oranges!! I lf you want to help.peiple like us/Pat donate, volunteer, ask what places like this need! They can use baby dolls, forget toys safe for toddler aged kids, blankets, stuffed animals, puzzles, time, and money. You can help families like us or whole care homes!! You won't regret it! Love you all and I'm so happy we can still be together!! MUCH LOVE ALL! #loveismysuperpower #IWILLALWAYSLOVEYOU #CAREGIVERSLIFE #TrueLove #THELONGGOODBYE #ALZHEIMERSSUCKS #STAYSTRONG #IWILLALWAYSLOVEYOU #AWARENESS #IMISSYOU #FUALZHEIMERS #VOLUNTEER
Chocolate Protein Mug Cake for us to indulge in!! This recipe is for 1, and use a decent sized/oversized mug! 1 scoop protein powder of your favorite flavor choice. 1/2 t. baking powder.  2 t. cocoa powder.  1 to 3 t. of your favorite sweetener (Truvia, maple syrup, monk etc). Mix in mug with whisk till combined and add:   1 LG. egg. 1 to 3 T. of water (or milk) till well mixed and smooth consistency (not thick).      Put in microwave 30 to 90 seconds depending on how it looks after each 30 sec. Should look fluffy and still moist but not wet! (it continues to cook after it's out!). Spray to top with cool whip spray or creamer or even a scoop of ice cream! Enjoy your high protein dessert in a mug! Love you all!! #healthysnacks #protein #FUALZHEIMERS #AWARENESS #ALZHEIMERSSUCKS #THELONGGOODBYE #TrueLove #CAREGIVERSLIFE #loveismysuperpower #unconditionallove #missyousomuch #anticipatorygrief
#momsdementiajourney  #dementia #alzheimers  #dementiaawareness  #thelonggoodbye #fyp  #DEMENTIA #alzheimers  #crueljourney #mylife  #tryingmybest #caregivers  #wheresmycocktail #paranoia #caregiver  #merrychristmas #fkdementia #fkcancer #ductalcarcinoma
#momsdementiajourney #merrychristmas  #dementia #alzheimers  #dementiaawareness #thelonggoodbye #fyp #DEMENTIA #alzheimers #crueljourney #mylife #tryingmybest #caregivers #wheresmycocktail #paranoia  #fkdementia #fkcancer #ductalcarcinoma
#momsdementiajourney  #dementia #alzheimers  #dementiaawareness  #thelonggoodbye #fyp  #DEMENTIA #alzheimers  #crueljourney #mylife  #tryingmybest #caregivers  #wheresmycocktail #paranoia  #fkdementia #fkcancer #ductalcarcinoma #happynewyear2025
#momsdementiajourney  #dementia #alzheimers  #dementiaawareness  #thelonggoodbye #fyp  #DEMENTIA #alzheimers  #crueljourney #mylife  #tryingmybest #caregivers  #wheresmycocktail #paranoia  #fkdementia #fkcancer #ductalcarcinoma #merrychristmas

start an influencer campaign that drives genuine engagement