tinywarriormamas hashtag performance
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6.2k
Happy boy this morning after all the dressing changes, tooth brushing, and face washing/lotion. He thought Nala, the cat, was pretty funny ❤️🥹 #tinywarriormamas #hydrocephalus #GouldSyndrome #COL4A1 #geneticmutation #terminallyill #hydranencephaly #CreedStrong #adrenalinsufficiency #pituitarydamage #pediatricstroke
2.3k
I prayed for the days I have now with my nicu babies, 4lbs11oz and 2lbs 15oz ! #allieraeshitshow #nicumama #tinywarriormamas
1.5k
Just know I absolutely cannot sing but Creed enjoys when I sing to him 😂🤣 #tinywarriormamas #hydrocephalus #GouldSyndrome #COL4A1 #geneticmutation #terminallyill #hydranencephaly #CreedStrong
495.0
Be gentle in this season. They’re human and they’re tired too. #tinywarriormamas #hydrocephalus #GouldSyndrome #COL4A1 #geneticmutation #terminallyill #hydranencephaly #CreedStrong #adrenalinsufficiency #pituitarydamage #pediatricstroke #nurses #ER
303.0
This bag has made my life so much easier. I only have to carry 1 bag for all his stuff and then his suction machine bag. We love our Tobiq Bag! #tobiq #tinywarriormamas #hydrocephalus #GouldSyndrome #COL4A1 #geneticmutation #terminallyill #hydranencephaly #CreedStrong @TOBIQ
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