Kyra

lennoxgastautsyndrome hashtag performance

#LennoxGastautSyndrome: Exploring a severe epilepsy. Raising awareness, sharing struggles, celebrating resilience. Educating on seizures, development challenges. Finding community, offering support, sparking hope.
Where Did You Get Your Degree #youredone #epilepsy #epilepsyawareness #seizure #seizures #lennoxgast
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Where Did You Get Your Degree #youredone #epilepsy #epilepsyawareness #seizure #seizures #lennoxgast
I got back to Creed man around 1am. Did his straight cath, button care, trach care, and talked to hi
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I got back to Creed man around 1am. Did his straight cath, button care, trach care, and talked to hi
Creed update ❤️ #tinywarriormamas #medicallyfragile #pediatrichospice #lennoxgastautsyndrome #go
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Creed update ❤️ #tinywarriormamas #medicallyfragile #pediatrichospice #lennoxgastautsyndrome #go
Creed update. #tinywarriormamas #medicallyfragile #pediatrichospice #exhausted #lennoxgastautsyndrom
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Creed update. #tinywarriormamas #medicallyfragile #pediatrichospice #exhausted #lennoxgastautsyndrom
It’s been a long day and it’s not over yet 😭 #medicallyfragile #tinywarriormamas #pediatricho
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It’s been a long day and it’s not over yet 😭 #medicallyfragile #tinywarriormamas #pediatricho
There’s the before me. The me who didn’t know what it was like to be told your child is terminal
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There’s the before me. The me who didn’t know what it was like to be told your child is terminal
Creed update. Tommy is with Creed at the hospital. The fluid retention is also causing pulmonary ede
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Creed update. Tommy is with Creed at the hospital. The fluid retention is also causing pulmonary ede
Creed update. The hits just keep coming and my heart is heavy. #tinywarriormamas #imtired #lennoxgas
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Creed update. The hits just keep coming and my heart is heavy. #tinywarriormamas #imtired #lennoxgas
Day 5! So, uh, meet Ry! He wanted to try the challenge too! Not bad for a kid with bad balance (than
51.0
Day 5! So, uh, meet Ry! He wanted to try the challenge too! Not bad for a kid with bad balance (than

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