ushersyndrome hashtag performance
#UsherSyndrome highlights awareness for a genetic condition causing hearing loss and vision impairment. It fosters community, support, education, advocacy, and offers insights into living with this syndrome while promoting inclusivity.
399.0
I am so thankful for this app and all of you. I came on here when I was first diagnosed and made videos as a way to cope with my Usher syndrome diagnosis. Because of you all I’ve found peace and acceptance. Thank you. 🫶 #UsherSyndrome
356.0
In honor of the return of this app, enjoy an oldie but goodie! Just a friendly reminder than vision impairment looks different for many. I’m legally blind because I have less than 20 degrees peripheral vision. Living life with tunnel vision due to retinitis pigmentosa / usher syndrome. What questions do you have? VD: Monica using a wrapping paper roll to depict tunnel vision. #retinitispigmentosa #deafblind #ushersyndrome #blindtok
62.0
To my friends in the blindtok community, I will be on IG for th time being. #blindtok #legallyblind #lowvision #retinitispigmentosa #retinitispigmentossaawareness #usherstype2 #ushersyndrome
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