Kyra

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Irie will forever be safe with me, that’s for sure❤️💛💚 ✨ #IriePiilani #specialneeds #specialneedsmom #irie #chromosomalabnormalities #hydrocephalus #gjfeedingtube #trach #tracheostomy #VPshunt #ventdependent #CHDwarrior #heartbaby #clubfoot #mybadass7yearold💪🏼👧🏻❤️💛💚
Afternoons with the babies … #spinalcordinjury #scoliosis #backbracesquad #mygirl #kenydii #spinabifida #vpshunt
Ignore how uneven it is. I plan on buzz cutting the rest when I get home. This was the only option in the hospital #chiarimalformation #chiari #chiarimalformationawareness #intracranialhypertension #shunt #vpshunt #chronicpain #chronicillness #brainsurgeries
#greenscreen so littleeeeee🥺🥺🥺🥺 @Colten Holland #micropreemie #prematurebaby #premie #vpshunt #hydrocephalus #MomsofTikTok #momtok
#spinalcordinjury #scoliosis #backbracesquad #mygirl #kenydii #spinabifida #vpshunt
#creatorsearchinsights can’t believe she’s getting so big!🥺 #MomsofTikTok #vpshunt #fyp #premie @Colten Holland
1.2k
#creatorsearchinsights can’t believe she’s getting so big!🥺 #MomsofTikTok #vpshunt #fyp #premie @Colten Holland
I looked for a video like this while waiting for my shunt, and couldn’t find one, so I figured I’d make one! #vpshunt #vpshuntsurgery #intracranialhypertension #intracranialpressure #chiarimalformation #chiarimalformationawareness #chiari #complexchiari
A little dark humor makes everything better 🧠💜 #chiarimalformation #chiari #chiarimalformationawareness #intracranialhypertension #shunt #vpshunt
#CapCut babygirl 🥹😍 #daughters #babygirl #premie #vpshunt #99problems @Colten Holland
677.0
#CapCut babygirl 🥹😍 #daughters #babygirl #premie #vpshunt #99problems @Colten Holland
I don’t usually post her, but I feel so called to share her miraculous story #audreystrong #tinybutmighty #nicu #nicubaby #braindamage #cerebralpalsy #cp #epilepsy #25weeker #god #godisgood #miracleworker #preemie #micropreemie #vpshunt #ivh4 #brainbleed #gaittrainer #riftonpacer #rifton #daughter #family #specialneeds #specialneedsmom #fyp #foryou
And, no questions are off limits. #SpinaBifida #Hydrocephalus #VPShunt #chiarimalformation  #corpuscollosum  #developmentaldisabilities  #Scoliosis #caregiving #caregiver #medicalmom #medicalmomsoftiktok  #Epilepsy #specialneedsmom #medicallycomplex #disabilityawareness #advocate #medicallyfragile

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