Kyra

carterschallenge hashtag performance

The #carterschallenge is a viral TikTok trend celebrating creativity, spontaneity, and fun. Participants showcase unique talents, dance moves, and humorous skits, fostering community engagement and inspiring others to join the challenge.
Eight years since diagnosis, and Carter is showing us what resilience looks like. At 12 years old, he’s doing well for someone with Sanfilippo syndrome. And yes we did find out that he is type A which is considered to be the most common/severe. Every day is a reminder to cherish the moments that matter most. 💜  #pepememe #pepetheprawn #swipe #fyp #storytime #mco #diagnosis #diagnosisstorytime #sanfilipposyndrome #disney #disneyworld #tramatized #familytrip #medicallycomplex #carterschallenge #rarediseaseawareness  #raredisease #momsofinstiktok #specialneedsmom #lifewithadisability  #caregiverlife #advocatelikeamother #specialneedsfamily #sanfilippoawareness #sanfilippolife #parentingjourney
Replying to @Keazma nope, he was just doing his job. The news would have been shitty regardless where we were and honestly I’m thankful to have a doctor like him on our team.  #letmeexplain #raredisease #diagnosis #diagnosisstorytime #doctor #genetics #genes #metabolic #sanfilipposyndrome #sanfilippo #carterschallenge #resentment #medicallycomplex #parenting #momlife
Just in time for 2025!!! C-Money is line free!!!! We cannot wait to do all of his favorite things and share all of them with you!!!  From our family to yours, happy New Year! May your 2025 will be filled with a lot of love, joy, happiness, health, Carter, Vlogs, and memories, of course ❤️ we love you!  #carterschallenge #raredisease #genetics #chronicpancreatitis #pancreatitis #piccline #tpn #lipids #liquidnutrition #educational #advocate #medicallycomplex #sanfilipposyndrome #sahm #caregiver #parenting #disabilityparenting #themoreyouknow #LearnOnTikTok
Replying to @Pixie it’s a 💩situation to be in and my heart goes out to you!! you’d hope that clinical trials would help and maybe even prioritize chronically ill people but sadly they don’t because anytime they are sick, have an issue, or hospitalization they have to report it which will hurt them in the long run #Inverted #raredisease #sanfilippo #sanfilipposyndrome #genetics #clinicals #clinicaltrials #didyouknow #howitworks #chonicillness #LearnOnTikTok #learnfromme #truthhurts #science #cars #invisibleillness #themoreyouknow #disabilityparenting #navigatingaterminaldisease #howclinicaltrialswork101 #momonamission #carterschallenge
Replying to @⚠️TACI.LYNN⚠️  a clinical trial you say?  Why didn’t I think of that?! 😂 ps 🤟 #Inverted #raredisease #sanfilippo #sanfilipposyndrome #genetics #clinicals #clinicaltrials #carterschallenge #medicallycomplex #hospital #gov #themoreyouknow #LearnOnTikTok #parenting #disabilityparenting #navigatingaterminaldisease #howclinicaltrialswork101 #didyouknow #howitworks #learnfromme #momonamission

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