childhoodalzheimers hashtag performance
Devastating. Heartbreaking. Early onset. Lost memories. Precious moments stolen. Families struggle. Rapid decline. Advocacy needed. Research vital. Awareness increases. Support networks. Facing the impossible. Fighting for hope.
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Facial features of Sanfilippo Syndrome typically include dark eyebrows that get stronger with age, c
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Replying to @Jennifer Liv has Sanfilippo Syndrome, also known as MPS type 3, or childhood Alzheimer�
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Liv is an amazingly special kiddo. I hope she brings a smile to your face. #sanfilipposyndrome #fyp
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Liv was diagnosed with MPS type 3, also known as Sanfilippo Syndrome, three years ago. And when I wa
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If you’ve been in the awful situation of having to tell a sibling about a grave diagnosis of their
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Did you save your cord blood? Did anyone even tell you it was an option? #sanfilipposyndrome #saving
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Please consider reposting & commenting to say hello. That helps us reach more families. Don’t hesi
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Replying to @kryssaloü also our GI doctor ordered the genetics consult two days before the friend t
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It’s gonna be May, which means MPS Awareness Day is coming up on the 15th. I love *NSYNC, so “we
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#Stitch with @Daily Mail #childhoodalzheimers #raredisease #curesanfilippo #disabledadult #terminali
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