childhoodalzheimers hashtag performance
#ChildhoodAlzheimers: Heartbreak, premature cognitive decline, cruel diagnosis, family struggle, memory loss, rare, devastating, research needed, support groups, awareness, early onset, advocacy, hope, resilience.
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I hope that sharing my anticipatory grief journey can help others. Whether they can relate, or feel
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The reality of Sanfilippo Syndrome, right now, is that it will take Liv’s life, regardless of a tr
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Liv has Sanfilippo Syndrome, a form of Childhood Alzheimer’s. It’s a neurodegenerative fatal gen
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Are kids with Sanfilippo Syndrome in pain? Unfortunately yes. I’ve appreciated all the questions a
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Sharing our story comes with scrutiny, but at the end of the day, we are helping others, fundraising
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Sanfilippo Syndrome, aka Childhood Alzheimer’s is a fatal genetic disorder with a life expectancy
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Replying to @Mary Kurtz Case Study 180: Neimann-Pick Disease Type C 🧠✨ Niemann-Pick Disease Typ
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Sanfilippo Syndrome is Mucopolysaccharidosis type 3, a terminal genetic disorder. Life expectancy is
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He held onto his speech much longer than we could have imagined and were so thankful for that! #spee
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