childhoodalzheimers hashtag performance
#ChildhoodAlzheimers: Heartbreaking. Rare. Devastating diagnosis impacting young lives. Accelerated cognitive decline. Families struggle. Research needed. Awareness campaigns crucial. Seeking support. Hope for treatments. Facing premature loss. Remembering loved ones.
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Story time of our waiting game to find out if Liam had Sanfilippo Syndrome too, like Liv. #sanfilipp
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The three phases of Sanfilippo Syndrome, aka childhood Alzheimer’s. Life expectancy is mid to late
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Liv was diagnosed with MPS type 3, also known as Sanfilippo Syndrome, three years ago. And when I wa
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Childhood Alzheimer’s has taken a lot from Liv already, but despite that she is happy, and helping
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Why most kids with SF have coarse, thick hair. #sanfilipposyndrome #genetics #fyp #childhoodalzheime
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Replying to @kryssaloü also our GI doctor ordered the genetics consult two days before the friend t
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Please help share Liv’s story today, for MPS Awareness. Please comment (that helps engage others a
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It’s gonna be May, which means MPS Awareness Day is coming up on the 15th. I love *NSYNC, so “we
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Mother’s Day interview of my husband Tyler, the other side of our parenting equation. He’s the b
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With permission from Levi’s family, I share the touching bond they shared at his fundraiser. Liv h
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Replying to @Idk #childhoodalzheimers #raredisease #curesanfilippo #disabledadult #caregiver #termin
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