childhoodalzheimers hashtag performance
#ChildhoodAlzheimers evokes heartbreak. It highlights early onset dementia, memory loss's devastating impact on children and families, raising awareness for research, support, and hopefully, future treatments.
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The medical workup that lead to Liv’s diagnosis of Sanfilippo Syndrome, also known as childhood Al
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Disclaimer: I talk freely about Liv’s fatal genetic disorder in front of her because cognitively s
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Sanfilippo syndrome is a neurodegenerative fatal genetic disorder, caused by a missing enzyme. My hu
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Sharing about an attenuated version of Sanfilippo Syndrome - say hi to @ASHLEY, ALIVIA & FAM and @Ab
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When Liv isn’t feeling good, I’m her main caretaker, and taking breaks is key to staying present
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Common questions I get about Liv and Sanfilippo Syndrome. #sanfilipposyndrome #rarediseaseawareness
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I had to jump on this trend, with our own genetic spin. Our daughter Liv has Mucopolysaccharidosis t
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Please consider a small donation to SavingLiv.com (GoFundMe link in our bio) or curesff.org to help
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start an influencer campaign that drives genuine engagement
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